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Old 04-03-2011, 03:13 PM   #1
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Join Date: Apr 2011
Location: San Diego, CA
Posts: 4
ShelleyGerber HB User
Fatugue and other symptoms

Hi,
I am posting regarding my 16-year-old daughter. In 2010, we discovered that she was having episodes of VT. She had an electrophysiology study that showed that the arrhythmia originated in the right ventricular outflow tract and the electrophysiologist told us that her condition was not life-threatening. She is experiencing many other symptoms and I feel that they may somehow be related, as many of them came on at approximately the same time. If anyone has any ideas, I'd love to hear them...She has seen tons of doctors and none of them seem to be interested in anything more than their specialty (cardiology, rheumatic, etc) I'm having a terrible time finding a good doc in San Diego to put it all together. The only thing that I can find online that matches her symptoms is POTS. No one seems to want to consider that as an option, though. Lyme disease matches too, but she tests negative.

She has had to drop classes and was even home-schooled for 6 weeks. She's basically a straight A student that can no longer function because she feels sick and exhausted all of the time.

She was put on Zoloft and that has helped a bit, but I don't think that her symptoms are caused by depression. Depression may certainly be exacerbating the problems, though.

Here are her symptoms:
Painful joints- hips are most severe
Nausea
Migraines and a constant underlying headache
Shaking hands
Muscle twitches
Fatigue (severe on many days)
Fever off and on (only 99-100)
Positive ANA
Difficulty falling asleep
Ringing in ears
Feeling of being removed (periodically) which is accompanied by a strange smell
Vaso vagal syncope (sometimes, but not recently)
Vision blacks out when she stands from sitting or supine positions
Cold hands and feet
Cough (one cough now and then-this is not related to illness)
Major decrease in attention span
Depression

Thanks for your help!
Shelley

 
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Old 04-07-2011, 03:47 AM   #2
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(female)
 
Join Date: Nov 2008
Location: Houston, TX, USA
Posts: 35
katyhilton HB User
Re: Fatugue and other symptoms

I have all that plus more. Take her to an Good internal med or immunology doctor. Do some research and find the best doc in your area. I saw 3 neurologists. I mean, I was having neurological issues so it seemed to make sense. When they figured out by a fluke I had chronic EBV - I was told to go to an infectious disease specialist. I tried. They all refused to treat me. I found my doc who is an hour away... And then my neurologist told me I chose the only expert in town! I live in Houston!? Only one he would recommend. I had to wait a long time for new patient appointment. But I have learned that any specialist who can get in a unestablished patient quickly probably has no patients for a reason. One told me it was impossible for EBV to reactivate even though I had test results that showed early antigen and nuclear antigen from mono 16 years ago. Doctors are just people. Most of them not so brilliant.

 
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