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Old 04-09-2011, 08:16 PM   #1
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What has helped your CFS?

Hi folks, I just stumbled across this thread in a google search and had to join up to add my 2 cents.

A couple of years ago I decided to put my scientific knowledge to use and actually find some things would work to combat CFS.

The first thing I took was magnesium malate 1250mg and zinc gluconate 25mg twice a day, after reading a study which showed that fatigue levels in CFS patients was inversely proportional to their magnesium and zinc status, and that most patients are deficient in both - and after 10 days the difference was noticeable. In fact it took me by surprise because I thought any benefit would not be obvious or happen so quickly. I found that on waking in the morning I felt much more refreshed and didn't have to lie there for an hour or so waiting for enough energy to get up. I felt more energetic and my head clearer.

Of course there are still good days and bad days so you don't always feel the benefit, but I'm confident that on the good days I wouldn't feel as good without the magnesium and zinc.

One side effect was that it has caused acne on my shoulders. This is a documented phenomenon as they optimise your natural levels of testosterone if you were deficient in those two minerals before. I'm male by the way so might not affect women in quite the same way. Incidentally I'm into working out (when possible) and bodybuilders take a workout supplement called ZMA which consists of magnesium, zinc and vit B6 (to aid nutrient absorption) which some people report increases their strength and stamina. Some report no benefit from ZMA and I suspect that this is because their Magnesium and Zinc levels were already optimised.

So if you're looking for something safe and relatively cheap, try magnesium malate and zinc gluconate. I try lots of supplements but these I consider my bread and butter which are essential for every day

(incidentally I mentioned this to a sportsman friend and he reported back to me that the supplements noticeable increased his speed and stamina in swimming)

I'd love to hear from other people that try it, or have any other recommendations.

 
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Old 04-10-2011, 10:13 AM   #2
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CFIDS HB User
Re: What has helped your CFS?

Yeah I have used ZMA...I now take a multi-vitamin for men that actually has ZMA in it. But at night I take some extra magnesium and thoughout the day I use Emergen-C packets and get some extra B6 and zinc. Royal Jelly is still the king though!

 
Old 04-10-2011, 02:23 PM   #3
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Re: What has helped your CFS?

hey thanks for replying. I only found this thread because I was looking for information on Royal Jelly for CFS.

May I ask how much do you take, and what kind of benefits do you feel?

 
Old 04-10-2011, 05:55 PM   #4
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Re: What has helped your CFS?

Extreme low levels of vitamin D has been found to be the cause of CFS in many many cases. A simple blood test can give you an answer in days. Be sure to ask your Dr. for this simple inexpensive test. It saved me!

Last edited by maryjan; 04-10-2011 at 05:56 PM.

 
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Old 04-10-2011, 06:00 PM   #5
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Re: What has helped your CFS?

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Originally Posted by jaybravo View Post
hey thanks for replying. I only found this thread because I was looking for information on Royal Jelly for CFS.

May I ask how much do you take, and what kind of benefits do you feel?
I like 1000mg in pill form taken twice per day in between meals (some people take even more but i never tried it)....start with just 1000mg for a week or two and work up. Also, the royal oil is even more powerful but expensive so I just used it for a month or so, about 2-3 times per day under the tongue then swallow, that is a massive amount into your system...helps hormones, energy, overall feeling of well being....take the pills daily for several months before full benefit is noticed. If you can only do/afford one, then just get the YS bee farms 1000mg royal jelly pills...I have also wanted to experiment with the triple bee complex pills that have bee pollen and propolis in them...bee pollen with royal jelly is supposed to be a one-two punch for fertility and vitality but I have yet to try it...propolis has antiseptic properties so I think it could help, but I wish YS bee farms made 100mg royal jelly pills plus just be pollen...you'd have to buy them separately to get just those two together and I like all-in-one for convenience but I have heard some natural docs don't recommend propolis for more than 3-6 months so I am gonna do the triple bee complex for a couple months, then maybe switch to either another brand with RJ and pollen together, or just break down and do the two separate products taken together...

If you and I were on the phone I could give you enough to write a book on what works for CFIDS, but for now I will say I am in between bee products due to some other experimentation but I expect them to be my old stand by and will eventually return to using them as part of my daily supplement regimen even if I get totally well some day.

Last edited by CFIDS; 04-10-2011 at 06:01 PM.

 
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Old 04-10-2011, 06:17 PM   #6
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Re: What has helped your CFS?

I went to a specialist at a large university hospital. After much testing..ct scans, mri's ect.... and blood tests, The blood test for vitamin D levels showed extreme deficiency at 11. (98 would be awesome) However most doctors are satisfied with numbers in the 50's and 60's. I took prescription vitamin D, 100,000 iu's twice a week for 4 months, which brought my numbers up to 61. At that time and since then, absolutely NO cfs! Now daily I am on over the counter vitamin D3 (1000iu) along with a calcuim suppliment 3 times daily. BUT get the blood test. You MUST know your numbers! Too much Vitamin D can cause as much damage as too little.

 
Old 04-10-2011, 07:33 PM   #7
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Re: What has helped your CFS?

Quote:
Originally Posted by maryjan View Post
I went to a specialist at a large university hospital. After much testing..ct scans, mri's ect.... and blood tests, The blood test for vitamin D levels showed extreme deficiency at 11. (98 would be awesome) However most doctors are satisfied with numbers in the 50's and 60's. I took prescription vitamin D, 100,000 iu's twice a week for 4 months, which brought my numbers up to 61. At that time and since then, absolutely NO cfs! Now daily I am on over the counter vitamin D3 (1000iu) along with a calcuim suppliment 3 times daily. BUT get the blood test. You MUST know your numbers! Too much Vitamin D can cause as much damage as too little.
5000iu of D3 per day will usually get you back up over time...that is what I did to get from 20 to 50 something...Some people take up to 10,000iu but it must go through the liver and I was not comfortable doing that much. Forget that D2 stuff they perscribe as a perscription unless it is the only option...it does take time though to get it up if you do it orally non-perscript.

Also, 80% of people get enough calcium in their diet, it is magnesium that they are usually deficient in...women do need more calcium but they need the right ration of boron and magnesium and vitamin D3 to actually prevent ostiperosis...but yes, Vitamin D levels is an important one in CFS, unless you suspect Lyme, then you gotta weigh in the Marshall protocol...I did not have Lyme though (tested via Igenix) so luckily I do not have to make that decision.

 
Old 04-15-2011, 08:44 PM   #8
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Re: What has helped your CFS?

what helped me.. cutting out gluten, dairy, and sugar. That includes fruit.

Also I heard cortisol can help, like cortef or hydrocortisone.

 
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Old 04-15-2011, 09:20 PM   #9
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Re: What has helped your CFS?

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Originally Posted by ecstasy View Post
what helped me.. cutting out gluten, dairy, and sugar. That includes fruit.

Also I heard cortisol can help, like cortef or hydrocortisone.
Well that sounds like adrenal fatigue or even Addison's disease...the adrenals are important, but don't forget cortisol also suppresses the immune system and in CFS people are generally TH2 dominant and need more TH1 response. I'd say that those who MUST have cortisol (like addison's) get it, but for the avg CFS person they might be better of to drop all sugar and eat and supplement for their adrenals...DHEA, royal jelly, etc....you want to "balance" the immune system. beta glucan, colostrum, and royal jelly all have a claim to that but I still don't know which is the best and am scared to take 3 things that arte supposed to do the same thing.

 
Old 05-02-2011, 10:50 PM   #10
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Re: What has helped your CFS?

i'm glad to find this post. i will try these suggestions. i have cfs, live in rural south. all i hear is take anti-d. meds. never works and bad side effects. no dairy and low calcium caught my attention. i have a low tolerance to dairy so i don't get much calcium.

 
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