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bittygirl · 04-26-2011, 05:14 PM

I was wondering if someone with CFS can have breaks in the exhaustion?
I was just told by my rummy who was testing me for different things that in order to have a CFS diagnosis you have to be exhausted all the time for a matter of months and not letting up. But then i read on the CDC website to be diagoned that some people have a pattern of remission and relaps of exhaustion and other symptoms. I have been trying to find out whats wrong with me for over 7 years now and no one has the answer.

purplestar1960 · 04-29-2011, 08:43 AM

I have had CFS for 22 years with no breaks, and recently tested positive for Lyme and XMRV virus, so have your doctor test you for lyme.

seekfind · 05-03-2011, 11:32 AM

Do you have any other symptoms related to Lyme Disease? Maybe you can post over on the Lyme board.

Unfortunately the tests for Lyme are only 30% accurate. So you may have it and test negative. Most people who have Lyme also have CFS.

For me the fatigue was constant but some days I had a little bit more energy than other days (when I literally could not move at all from the fatigue).

Get a Lyme test but don't believe that it's the be-all-end-all. The tests are faulty and only a Lyme specialist (LLMD) can diagnose you or rule it out.

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