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Old 05-31-2011, 05:50 PM   #1
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Join Date: Feb 2011
Location: Cornwall, United Kingdom
Posts: 6
sara1967 HB User
Question Help, please!

Hi,
am really looking for some advice - I've been ill since September: fatigue (like I've been drugged, and can sleep up to 18 hours a day); dizziness/low blood pressure; weak muscles/jelly arms/legs; durr brain (see? I can't even think of the right word!!); skin rash; constant back pain/tingling in hands and feet; shaking attacks (like I'm going into shock - really cold, body shakes, teeth chatters, cold sweat); erratic periods. There is other strange stuff going on, but I don't want to bore you.

My GP (I'm in England) diagnosed depression and stuck me on Prozac. I kept going back to her as it wasn't helping, so she doubled the dose and gave me a SAD light box. I kept returning - insisiting it was physical and she eventually ran some tests - full blood count came back low on sodium, low on blood glucose, high on potassium - but all within the normal range. How many times have you heard that old chestnut,eh? To cut long story story - every test has come clear - cortisol levels, pituitary gland, menopause, uterine and cervical cancer, liver and kidney function etc.

I've seen an endo who threw my list of symptoms back across the desk, telling me to go see an ME specialist. My GP said she'd refer me after running another set of bloods. They came back clear a week ago. She's now decided to wean me off anti-depressants, wait a month for them to leave my system and then try me on another one before she'll refer me on.

Meanwhile I'm really struggling - I can't walk upstairs without getting palpitations. I can't change a double duvet cover without resting halfway through. And today I couldn't lift a shopping bag into the boot of my car.

Does anyone have any suggestions what to do next? I know this isn't depression - yet! but I feel if I go in, demanding a referral or further tests, she's just gonna write me off anxious/neurotic when I need someone in my corner. I've seen all three GP's in my surgery about this, by the way, and they all just say it's depression

Thanks in advance for any advice.

I should add - I've had several episodes like this over the past 6 years where I just 'crash', usually after soemthing stressful, but it's never been this severe or lasted this long.

Last edited by sara1967; 05-31-2011 at 05:57 PM. Reason: I forgot to add some info

 
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Old 06-01-2011, 09:55 AM   #2
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Join Date: Feb 2011
Location: Cornwall, United Kingdom
Posts: 6
sara1967 HB User
Re: Help, please!

Jen,
No I've never considered that one! Thought it was only ticks to be honest. I'll head over and check it out, thanks.

No I don't want more anti-depressants. I'm certain it's physical - don't feel hopeless, negative or even down, just worn out. It's just so frustrating trying to fight the GP's all the time. Sounds mad but I feel I'm about to lose the little bit of co-operation they're giving if I push too hard.
Thanks for posting, Sara

 
Old 06-04-2011, 09:35 AM   #3
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Join Date: Feb 2011
Location: Ayrshire,Scotland
Posts: 10
mads12 HB User
Re: Help, please!

I have had cfs/mefor 3 years and tried loads to no avail, unfortunately stress flares the condition up and you end up crashing and it can take weeks to get back to a leve lof the condition that is tolerable. I am always on the internet trying to find something new that has worked for others and at the moment i have started taking D-Ribose and Magnesium, if you search the internet for these along with cfs it will give you all the info on how it is supposed to help you recover. I havent been on it long enough to no whetherits working or not, should see results in around 12 days but should give it atleast3-4 weeks.
CFS if a minefield, everyone has a theory of whatis causing it but i think its different in each individual,what may work for me may not necessarily work for you.
Hopeyou find something soon and i no exactly where you arecoming from with the antidepres, its not mental its physical.

 
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Old 06-04-2011, 09:23 PM   #4
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Join Date: Jun 2011
Location: Calgary, ALberta, Canada
Posts: 9
Angela219 HB User
Re: Help, please!

Do you struggle with these symptoms regardless of where you are? Do they go away when you spend a couple of nights at someone else's house - someone who lives in a different part of England or another country?

 
Old 06-06-2011, 09:32 PM   #5
Junior Member
(female)
 
Join Date: Feb 2009
Location: Warren, OH
Posts: 32
melody1 HB User
Re: Help, please!

I have been thru this for over 25 years and still keep trying . Robose did not help me. The best of health to you.

 
Old 06-06-2011, 09:46 PM   #6
Junior Member
(female)
 
Join Date: Feb 2009
Location: Warren, OH
Posts: 32
melody1 HB User
Talking Re: Help, please!

Quote:
Originally Posted by sara1967 View Post
Hi,
am really looking for some advice - I've been ill since September: fatigue (like I've been drugged, and can sleep up to 18 hours a day); dizziness/low blood pressure; weak muscles/jelly arms/legs; durr brain (see? I can't even think of the right word!!); skin rash; constant back pain/tingling in hands and feet; shaking attacks (like I'm going into shock - really cold, body shakes, teeth chatters, cold sweat); erratic periods. There is other strange stuff going on, but I don't want to bore you.

My GP (I'm in England) diagnosed depression and stuck me on Prozac. I kept going back to her as it wasn't helping, so she doubled the dose and gave me a SAD light box. I kept returning - insisiting it was physical and she eventually ran some tests - full blood count came back low on sodium, low on blood glucose, high on potassium - but all within the normal range. How many times have you heard that old chestnut,eh? To cut long story story - every test has come clear - cortisol levels, pituitary gland, menopause, uterine and cervical cancer, liver and kidney function etc.

I've seen an endo who threw my list of symptoms back across the desk, telling me to go see an ME specialist. My GP said she'd refer me after running another set of bloods. They came back clear a week ago. She's now decided to wean me off anti-depressants, wait a month for them to leave my system and then try me on another one before she'll refer me on.

Meanwhile I'm really struggling - I can't walk upstairs without getting palpitations. I can't change a double duvet cover without resting halfway through. And today I couldn't lift a shopping bag into the boot of my car.

Does anyone have any suggestions what to do next? I know this isn't depression - yet! but I feel if I go in, demanding a referral or further tests, she's just gonna write me off anxious/neurotic when I need someone in my corner. I've seen all three GP's in my surgery about this, by the way, and they all just say it's depression

Thanks in advance for any advice.

I should add - I've had several episodes like this over the past 6 years where I just 'crash', usually after soemthing stressful, but it's never been this severe or lasted this long.
I know what you are going thru I have seen so many doctors and have so many physical problems now in addition to the CFS. So the ortho dr. tells me to exercise more - not even noticing that my body is at a 34 degree angle because of spinal fracture even tho I had been taking Evista for 15 years to prevent osteoporosis. Always walked stairs (3 story house) taught school 42 years . So now I have not much of a life left but I am going to try the new advice by Dr. T. Just keep trying , you might be one of the lucky ones hang on . Maybe you will find the key to the solution.

 
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