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Old 08-19-2011, 12:43 PM   #1
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darkling thrush HB User
Chronic Fatigue Syndrome??

Hi, I apologize that this may be a long post. Not sure where to begin. I've been told today that I most likely have CFS. I'll list my main symptoms chronilogically, and see what you think!

3 years ago I began with tinnitus in left ear. I shortly afterwards started to have dizzy spells and a fuzzy head/headaches.

About this time, I woke on a couple of occasions with out-of-focus, blurred vision and pain in my eyes, which subsided within the day each time.

Then, I began to wake with a completely dead arm and cramp in my legs. Now I get numbness in my hand, arm, feet, bum, etc. every day. I also have constant spasms and twitchy muscles, or just a weak feeling in them.

I have an overwhelming fatigue every day, worst in the afternoon, where it feels like the life has been drawn out of me, if that makes sense.

I can't stand the heat - it makes me feel ill, fatigued, blurred vision, etc - the same with even tepid baths.

I get one bug after another which lingers for ages and I get nauseus and lose weight all the time. Recently, I've been so itchy it's unbearable.

My moods are so changeable, it's scary, and my memory is rubbish. I also have a tremor in my left hand.

There's probably loads more I could say, but I'd bore you all to tears!!!!

Honestly, does this sound like Chronic Fatigue Syndrome?

Thanks for any advice, as I have to get to the bottom of all this.

 
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Old 08-19-2011, 04:58 PM   #2
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KAL66 HB User
Re: Chronic Fatigue Syndrome??

Despite the name, Chronic Fatigue Syndrome - also known as myalgic encephalomyelitis and post viral fatigue syndrome - is so much more than being tired. It is a severe complex neuroimmune disease.

CFS should not to be confused with the solitary symptom of chronic fatigue which is just one of many symptoms found in over 30 diseases including ME/CFS.

You need to be careful that you are not misdiagnosed with ME/CFS when it could be something far less serious or something serious that can be cured or treated. Like depression and Parkinson’s Disease there is no diagnostic test.

Last edited by Administrator; 08-19-2011 at 08:55 PM.

 
Old 08-20-2011, 02:26 AM   #3
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darkling thrush HB User
Re: Chronic Fatigue Syndrome??

Thanks for your reply. I'm not totally convinced it's what I have as the rheumatologist I saw seemed to come to that conclusion quite quickly - and it doesn't explain some of my other symptoms, such as numbness, etc., which she said could be down to neck and spine problems, so I'm still unsure.

I suppose when I'm referred to the CFS clinic for evaluation I can ask more questions then. Thanks again.

 
Old 08-20-2011, 04:25 AM   #4
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Re: Chronic Fatigue Syndrome??

Yes numbness and tingling can be part of ME/CFS.

Last edited by moderator2; 08-20-2011 at 08:20 AM.

 
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Old 08-20-2011, 04:43 AM   #5
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darkling thrush HB User
Re: Chronic Fatigue Syndrome??

It would be helpful to have as much information as possible - I'll search online for the criteria. Thanks again for taking the time to reply to me - I appreciate it.

Last edited by moderator2; 08-20-2011 at 08:20 AM.

 
Old 08-20-2011, 07:16 AM   #6
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Re: Chronic Fatigue Syndrome??

Everyone has a mild form of one or two symptoms on occasion, but CFS is a distinct pattern of symptoms not just one or two mild ones every once in awhile.

The key to the diagnosis is whether you have post exertional malaise lasting 24 hours or longer, unrelieved by rest and upon minimal exertion. This is pathological in its severity completely unlike the mild tiredness that accompanies say depression.

Most expert CFS clinicians feel that if you do not have this pathological form of exhaustion then you don't have CFS. And if you don't that is good news because ME/CFS can be severely incapacitating.

Last edited by moderator2; 08-20-2011 at 08:20 AM. Reason: please do not post a commercial website

 
Old 08-20-2011, 08:17 AM   #7
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darkling thrush HB User
Re: Chronic Fatigue Syndrome??

Hi, thanks for your advice. At the moment what the specialist told me is still sinking in, and I don't honestly know if I have CFS or not. I've had a whole host of symptoms for over 3 years. The fatigue is just one of many. It is fatigue like I've never experienced before - I never have much energy, but it seems to really dip each afternoon, and I feel totally drained - my body and mind.

I used to be one of those people who couldn't sit down - had to do and organize everything - now my house is a bit of a tip to be honest. I use what little energy I have to keep my children fed and clean. I rarely go anywhere, and when I do feel totally wiped out. This, as I said, is just one of loads of horrible symptoms. I've posted quite extensively on the MS board too, and I still feel I need to rule that out if I'm honest.

I'll have a good look at the Canadian Consensus Criteria, as there seems to be quite a lot to it. I may, one day, get some answers. Thanks again.

 
Old 08-23-2011, 06:39 AM   #8
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Re: Chronic Fatigue Syndrome??

Hi Darkling

Honestly, no, it sounds like something else. I have CFS and it was caused by a underlying viral infection which caused a auto immune response which started attacking my thyroid, which in turn mucked up my hormones. You might have a similar thing going on, not viral as such, but something else causing the issues.

If I were you, I would go for a full blood analysis and a live blood test, see if there are no parasites in your system. Parasites really can cause major havoc in ones body, all kinds of weird things happen.
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I learned to manage and I am slowly healing my CFS. I spent $2000 trying to figure out what was wrong with me. "Keep on searching until you get the right answers." Get CFS help.

 
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