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Old 10-17-2011, 07:18 PM   #1
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Day 4 on Nuvigil

Well, so far I see a difference. I'm trying to take the smallest dosage possible, so on days 1 and 2, I took 1/6 of a pill. It made me a bit more alert and I made it through the day without napping or craving a nap. The biggest thing I noticed was that my legs felt jittery; they were moving the whole time I was sitting down. Day 3, I took 1/4 of a pill and it was pretty much the same. Today I took 1/2 a pill and I definitely have more energy. Again, no nap, no horribly intense craving for sleep, I wasn't yawning all day. I'm hoping I can keep it to 1/2 a pill due to the cost and for the fact that I like to take the least medication as possilble.

So, if you're considering Nuvigil, you might want to give it a try. I think it's going to work for me.

Last edited by microwave; 10-17-2011 at 07:19 PM.

 
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Old 10-18-2011, 04:19 PM   #2
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Re: Day 4 on Nuvigil

Day 5 on Nuvigil and I LOVE it! Today was the first day at work in 2+ years that I didn't spend the entire day thing about how tired I was, how I wanted to go home and take a nap, how I couldn't wait to go to bed. It was awesome! I'm on 1/2 a pill.

 
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Old 10-19-2011, 06:54 PM   #3
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Re: Day 4 on Nuvigil

Day 6 on Nuvigil. I'm still at 1/2 of a 150 mg pill. I finally feel alive again! I'm finally me again, for the first time in years! Today was a day I would have had 5 years ago: I bounced out of bed, was energetic and upbeat all day, I was smiling and happy, never once had any kind of craving for sleep, dropped by the store after work to grab a few things for dinner (never went to the store after work because I was too tired), bounced in the door when I got home, still up at 9:00 at night without falling asleep at the computer. For the first time in years, I want to start really living again!! I swear this sounds like an ad for Nuvigil, but it isn't. I'm on a sample pack right now and my dr. gave me a one month Rx while we wait to possible battle it out with insurance to get it covered. I know you all with understand how good it feels to finally be ME again!! I really hope this pans out for me and I hope all of you can find something that helps as well.

 
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Old 10-24-2011, 10:25 AM   #4
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Re: Day 4 on Nuvigil

Day 9 or 10, not sure, but I've also noticed that I'm sleeping much better at night. That makes sense, as I'm not napping during the day.

 
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Old 10-24-2011, 10:40 PM   #5
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Thumbs up Re: Day 4 on Nuvigil

I am really glad for you. You must be so happy to find "YOU" again. I hope you make it and show some light for us. Everything is so expensive , even to try as I have a bunch of tries that didn't work but cost me. I wish the companies would offer free samples, you would be a great person to promote the drug for the company - give them a note. The best to you.

 
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Old 10-26-2011, 07:09 PM   #6
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Re: Day 4 on Nuvigil

Day 14? on Nuvigil. Someone at work said that I was like my old self again, had my pep back. Today was the first day I was kind of sleepy on Nuvigil, but it was a different kind of sleepy. It was the normal type you get when you don't get enough sleep (my fault there), and not the kind of CFS sleep when you're so bone deep exhaused that you can't think straight. It was really cool to have normal tiredness!

 
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Old 10-26-2011, 10:02 PM   #7
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Talking Re: Day 4 on Nuvigil

I hope everyone will be able to have that feeling again. Congratulations and keep us informed about your progress. I am even afraid to ask my doctor or tell my husband I want to try another drug. I have spent so much money on "to help" drugs not covered by our medical plan and very expensive and now in the bad bag. I hope you continue and what dose are you on?

 
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Old 10-27-2011, 06:48 AM   #8
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Re: Day 4 on Nuvigil

My Rx is for 150 mg. I started with a tiny sliver and felt a difference. But then went to 1/6 (cutting in tiny pieces), then 1/4, then 1/3, then 1/2. I want to take the smallest dose possible. I'm now at 1/2 and it's working great.

 
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Old 10-27-2011, 06:13 PM   #9
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Re: Day 4 on Nuvigil

Thank you so much. I am to under go operation for scoliosis with severe osteoporosis,My body has tilted almost 70 degrees, went from 5'7" to 5'. Started with fracture L4 and L5 in 2006. Doctor after doctor told me in those 5 years that it would heal with in time. In the time , the pain has been unbelieveable in different areas. Then I noticed my clothes were not fitting , then I began to look in a full length mirror and I was horrified at what I was seeing. Last year I had a rectal prolapse and lost 6" cut off rectum and it was this doctor that told me who to go see. Just knowing I was going to get another "can't help you' I went for more therapy and the therapist told me I had a very serious case of scoliosis and if something wasn't done I would end up not walking and need a air tube to breathe. So for 4 years I tried the best I could with CFS not even knowing what else was falling apart in my body. I had been taking Evista for tthe past 20 years for osteoporosis but it didn't help me and no doctor over the years even mentioned scoliosis or osteoporosis. I have never had a sprain, fracture, or bone broken and I am now 72 years old. Needless to say CFS is not helping me cope with all I must do to prepare for this lengthy surgery and if I will be able to over come all those physical demands when I am so tired any way. Please keep up the good you are doing and on Dec. 7 say a prayer for me. I pray that your life continues to improve. Thank you for all the information and maybe some day I will try Nuvigil.

 
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Old 11-02-2011, 04:53 PM   #10
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Re: Day 4 on Nuvigil

I've been on Nuvigil for 2-3 weeks now(?) and I love it. I'm still at 1/2 a tablet but it seems like I feel more myself every day. it's like it's finally fully in my system, if that makes sense. It has changed my life. I feel like I did 4 years ago, when i exercised, was energetic and active. I really, really, really hope I don't have to battle insurance over this.

If you're thinking about trying it, I highly recommend it.

Last edited by microwave; 11-02-2011 at 04:55 PM.

 
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Old 03-16-2012, 12:34 PM   #11
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Re: Day 4 on Nuvigil

This is WONDERFUL news!

Honestly, I'm looking into provigil/nuvigil as my last hope. After over 6 years of complete exhaustion I need a light at the end of the tunnel or something to help me a little bit.

Please, keep me/us informed as to your days forward.
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Old 03-18-2012, 11:52 AM   #12
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Re: Day 4 on Nuvigil

Quote:
Originally Posted by microwave View Post
Day 14? on Nuvigil. Someone at work said that I was like my old self again, had my pep back. Today was the first day I was kind of sleepy on Nuvigil, but it was a different kind of sleepy. It was the normal type you get when you don't get enough sleep (my fault there), and not the kind of CFS sleep when you're so bone deep exhaused that you can't think straight. It was really cool to have normal tiredness!
What's the latest on your experience with Nuvigil? Are you still using it . . . what dose? Any side effects?

 
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Old 03-22-2012, 08:38 AM   #13
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Re: Day 4 on Nuvigil

I thought I'd join the site to post and add my two cents worth.

I've had chronic fatigue most of my life. It started in my early teens and came on very gradually, to the point it took me years to work out there was actually something wrong. I'm now in my late 40s but I can still remember clearly the last time I woke up after a nights sleep and felt "energetic". I was 18 and it was just one normal day "out of the blue".

Anyway, after years of trying anything which I thought might help, from Naturopath diets to every medial test under the sun (I'm one healthy sick person) around six years ago my GP sent me to a specialist who prescribed dexamphetamine (chances are it can't be used as a chronic fatigue treatment in a lot of countries). Since then I've alternated occasionally between dexamphetamine and modafinil (Provigil etc) and I've not experienced any real side effects from either (although they do effect me a little differently). Any side effect though would have to be fairly substantial given the benefit of not feeling exhausted all of the time.

As I started on the dexamphetamine first I don't know if starting on modafinil would have the same effect (I image it would), and it probably varies from person to person depending on how bad the chronic fatigue is or how long they've had it, but while having something to "wake me up" was great, it was also initially a little frustrating as it felt like there was somewhat of a battle going on in my head. Almost like it was an "artificial awake" and the tiredness was still there in the background. Gradually though, it seemed my body got used to being "woken up" and being awake began to feel normal.

These days I take either dex or modafinil, partly because I can, as I think it helps stop my body from becoming complacent when taking the same drug all the time. I also have a break from taking anything for a week a few times per year (inevitably I sleep almost solidly for several days at a time when I do) but when I start again it seems to work a little better than it did before I took a break. As a result it also seems to reduce the temptation to start taking a little more each day. If I couldn't get dex any more for some reason I wouldn't hesitate to take modafinil all the time.

If you're like me and get sick due to chronic fatigue (for me it was something akin to getting a bad dose of the flu at least monthly, if not fortnightly) then modafinil may also help there. I found initially though that while the frequency at which I'd get sick was reduced substantially, when I did get sick I got "really sick". To the point I actually said to the doctor if I'm still getting that sick in ten years time I'll probably have a heart attack. He advised me to take planned "sick breaks", or in other words pick a convenient time to stop taking anything, let myself get sick, then start again. Fortunately though I only had to do that a few times and then for whatever reason I slowly stopped getting sick. These days I usually don't even get the flu when everyone else has got it, and when I do take a break I just get tired, not sick.

So my personal experience with modafinil is pretty positive. One of the other reasons I alternative between dex and modafinil is dex is very cheap (it's on our prescription benefits scheme) whereas modafinil is hideously expensive (it isn't).

 
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