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Old 12-14-2011, 04:25 PM   #1
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sunset5000 HB User
How is CFS diagnosed?

So, for the past 4 months, I have had several different health issues coming up and have been to several different doctors. The first was in August, I became extremely tired daily. Would sleep my regular hours at night (8-10 hours) then would get up in the morning, drink caffinated coffee and about an hour later, sit there are struggle to stay awake. I think I could sleep 24 hours a day if it was allowed (have children)/

This is still continueing, there is no certain time of day that this happens and it does not matter if I just ate a meal or not, it seems to occur regardless. In September, we had our daughter's 3rd birthday party. I had to leave my guests and go lay down during the party, I was so embarrased!

Have had 3 different types of doctor check me, all did their own blood work, all came back normal, except the beginning of a thyroid problem, but dr. does not think that my numbers are low enough on the scale to make me this tired.

Until it is hopefully determined why this is occuring, I was give Nuvigil. Wow, that stuff is sooo expensive!!!!! I am having a sleep study done on Jan. 3rd as a last possibility. (I do not want to do the sleep study, it makes me uncomfortable to lay there being monitored and recorded....grin).

None of the doctor's mentioned Cronic Fatigue and I am wondering why? Someone told me that you are diagnosed with CFS when they can't find anything else wrong, do you all think that is true? Is there a test that is done for CFS?

Sorry this post was so long, thanks for reading

sunset5000

 
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Old 12-15-2011, 10:10 AM   #2
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Join Date: Oct 2011
Location: California
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Brodie179 HB User
Re: How is CFS diagnosed?

Sunset, you'll get as many different answers to this question as people you ask. Unfortunately, there's no specific blood test for it. And as you suggested, most doctors consider it a "diagnosis of exclusion," meaning they have to rule out about 40+ other conditions first.

I think the explanation on this website is pretty good: http://www.cfids.org/about-cfids/diagnosis.asp

On the other hand, specialists on CFS know what to look for and test for, whereas most most regular doctors do not. I was recently diagnosed by a CFS specialist, partially based on the same blood test results that other physicians had declared "normal." Apparently, this is a pretty common experience for those who have been diagnosed. I explained my path to diagnosis in a thread below entitled "Big Day..."

 
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