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What is wrong with me?

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Old 08-13-2012, 08:25 AM   #1
Join Date: Aug 2012
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kv1059 HB User
What is wrong with me?

For as long as I can remember, I've been tired. Not a little tired -- exhausted. At all times. It doesn't matter how much sleep I've had (I've experimented with all lengths from 5 - 10 hours a night), how hydrated I am, how much protein I've had, or any of the other "quick fixes" magazines promise. I. Am. Always. Exhausted.

What worries me most is that I'm a single girl with no children -- what happens later down the road, when sleep is compromised? How will I cope?

Has this happened to anyone else? How do I fix this? I've had blood work done, and I'm not anemic. Most doctors just shrug, like this isn't a real problem, but it's crippling.

Can anyone help?

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Old 08-17-2012, 07:54 AM   #2
Join Date: Aug 2012
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Suisse85 HB UserSuisse85 HB User
Re: What is wrong with me?

You say you've been tested for anemia, but that is only one cause of exhaustion. Have you been tested for anything else? Have you had a thyroid panel? Tested for signs of past mononucleosis? You say you've been exhausted "forever", but surely you remember some energetic times as a child, don't you? When did the exhaustion actually start and what were some of the surrounding circumstances?

It sounds like a more thorough work up might be in order. I know it can be hard to get docs to be interested if you don't look acutely ill. It's frustrating, but keep trying.

Old 09-04-2012, 11:21 AM   #3
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PoppyDoug HB User
Re: What is wrong with me?

I use to have all the energy in the world. Now I can sleep all night but if I sit still for more than 5 minutes at work, I can go right back to sleep. I have been diagnoised with Chronic Fatigue Disorder and Sleep Apenia. I just found out that I have Chronic Kidney Disease stage 3, which also causes constant fatigue. Keep after those doctors to get you tested more thoroughly. Stay young as long as you can. Life is short enough without having problems. Have a Blessed day.

Old 09-05-2012, 01:13 PM   #4
Join Date: Apr 2012
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sarahm472 HB User
Re: What is wrong with me?

Have you had your thyroid checked? I had a lot of exhaustion and my doctor is looking into POTS syndrome which means your heart races when you stand up and it takes a lot of energy to remain standing.

Orthostatic hypotension is also makes your blood pressure drop when you sit and stand and does some of the same things. I'm not a doctor, but I was incredibly exhausted and my doctor had read about these two things and says it hits a lot of young women and that more people should know about it.

Last edited by Administrator; 09-06-2012 at 08:58 PM.

Old 09-07-2012, 10:29 AM   #5
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PoppyDoug HB User
Thumbs up Re: What is wrong with me?

I have been tested for many things. The VA has related my problem to Desert Storm. Also, this Kidney disease I have causes total fatigue, so I just have to keep on keeping on. If I stop I will go to sleep. As long as I am active I do good.

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Old 09-14-2012, 12:02 PM   #6
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Re: What is wrong with me?

PoppyDoug, how were you diagnosed with CFS and who did it? Never heard it diagnosed by a medical person before. Thanks.

Old 09-14-2012, 01:01 PM   #7
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Re: What is wrong with me?

I had my appointment with MS specialist Wed. Saying no now but could be yes later. My fatigue and pain has gotten so bad, I started researching back to CFS and learned that CFS actually has lesions in the brain also, and can be located in the subcortical area where mine are. I also read that there is a push to change the name from Chronic fatigue to Chronic fatigue immunity disorder syndrome and that is should be classified along the same lines as MS because it can have the same level of disability. CFID/M.E. and fibro are considered sisters. There is no longer a stigma that these conditons are just "sleepy" issues. They are real with real problems and that there are more people with this disease than MS and there are people that have this and have been misdiagnosed with MS. Doctors just need to be informed. I walked in my doctors office today and had all kinds of research with me that he found interesting. He than put me on Lyrica

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mare50 (09-15-2012)
Old 09-15-2012, 07:42 AM   #8
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Re: What is wrong with me?

This information is great. Makes sense about that new name for CFS because we have to stress the fact out there that it is the immune system. You're right that probably some MS patients really have CFS. I'm hopeful that this all will come to light just like Fibro is now recognized so much with medical professionals AND with the government, actually saying to apply for SSD if we can't work anymore. Thankfully I'm one of those who get it. All the best and thanks again for this info.

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