I came across this board and found it pretty interesting. Let me start off by saying the last 3 years of my life have been an on and off hell. I have literally had the million dollar work up in medical tests. I live in Massachusetts so it is one of the best areas in the world for medicine. Anyway, I started to feel like crap around the fall of 2009. At this point I had just quit my job at a restaurant and started my own business as a web developer working from home. I started to get tired a lot and by february 2010 I was sleeping all the time. I had gone to the doctors around november 2009 because I wasn't feeling great so he did some blood work and my White Blood Cell count was around 19,000 when the normal is between 4-11,000. He checked again in a few weeks and it was down to like 15,000 and then checked again a couple weeks later and it was like 13,000. He sent me to a hematologist/oncologist that I saw for 6 months about 2 to 3 times a month. She tested me for tons and tons of stuff and it all came back negative. At that time my symptoms were severe fatigue, weight gain and brain fog.
I also saw an infectious disease doctor, tested for infectious diseases and parasites and so forth which were all negative. Around the beginning of summer of 2010 I started to get head pains in the back right of my head, dull achy pains that wouldn't go away. This along with the fatigue and the brain fog had me worried so I saw a neurologist who gave me an MRI without contrast, I also had a CT scan without contrast at an ER about 3 months prior. All came back fine. I must have had atleast 35-40 blood tests in the past 3 years, all blood work pretty much fine except for a slightly raised white blood cell count of between 10-13,000 usually. I asked the blood doctor a million questions about cancer and so forth and she said we tested you for all of that stuff. She tested me for lupus, HIV, and other autoimmune stuff.
I do have Hashimoto's thyroiditis which I was diagnosed with in 2006. The levels are fine though. I have seen every type of doctor except a gynecologist, and since I'm a man I don't think I need to see one
. Anyway it seems like these symptoms come and go in cycles. I'll be fine for a week or week and a half and then feel like crap for about 2-3 weeks. The symtpoms I consistently have are fatigue, brain fog, muscle aches and most annoying of all is this squirmy like, almost split second seizure like feeling in my brain. I have been assured by my neurologist that it isn't a tumor and it isn't seizures, but of course he did not offer up advice of what it may be. So to wrap up my profile looks something like this:
- 27 year old male
- Has Hashimoto's Thyroiditis since 2006 (under control)
- Been feeling like crap since 2009
- Have had every test under the sun (MRI's, blood tests, CT scans, EEG's) which have all come back fine except for a slightly raised white blood cell count.
- Pimples/Papules/Postules that are sometimes painful, I get them on my chest, stomach, thighs and occasionally legs and arms.
- Constant fatigue and occasional muscle and back aches.
- Some days are better than others, also have what seem to be cycles
- Most concerning symptoms are the neurological ones: brain fog, concentration, fatigue, and this squirmy/split second seizure like feeling in the back of my head.
Does this sound familiar to anyone? I feel like im in some sort of purgatory or something and I need some sort of feeling that I'm not alone here as this has affected my work and my life in incredible ways.