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Old 05-04-2013, 05:29 AM   #1
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Can CFS Have Sleepiness As One Of The Symptoms?

Is CFS patients also experience
daytime sleepiness as perceived
by the patient's anemia,
hypothyroidism, sleep apnea?
Or just feel extreme fatigue
alone? Thank's.

 
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Old 05-04-2013, 02:12 PM   #2
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

Hi Berlian,

I am not a doctor but I do have CFS. From reading some of the threads in this forum it seems to affect each person a little bit differently, but yet, I can also see how much in common we all share. And in many ways affects us all the same. (if that makes sense. LOL)

Also, I had noticed that as time went by, it got progressively worse. At the onset, I didn't seem to have all the symptoms. For example I didn't really have low grade fevers, but now I often do. At first I did not have mild headaches, but now I do. I read through the symptoms according to the Mayo clinic the other day and found that I do suffer from most of the symptoms now. Bummer! This is what I mean about how it affects everyone differently.

For me, I am extremely fatigued most of the time, but I am not really sleepy. Sometimes my fatigue weighs on me so heavy that I do become tired and need to sleep. But there is a big difference between fatigue and just being sleepy.

Hope this helps.

 
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Old 05-04-2013, 04:53 PM   #3
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

Thank's for you reply zimzampow. I want to ask you again. Do you feel these symptoms : unusual headache, swollen lymph nodes, sore throat, flu like symptoms, muscle and joint pain in many area?
Thank's.

 
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Old 05-05-2013, 02:29 PM   #4
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

Berlian

Why don't you try telling me your symptoms and how often you have them. I have a feeling from reading your threads that you are fishing for answers but avoid coming out with what you are actually experiencing. I know how frustrating it is to know something is wrong but you can't put your finger on it. I hate to burst your bubble but you will not find a worthwhile diagnosis in any chat room, and you also cannot diagnose yourself with any certainty either. Doctors have years of study and practice and even they have a hard time sometimes. Have you been to a doctor? If you have what has your doctor told you?

Also, I believe you (and many others) have a complete misunderstanding of CFS and what Chronic Fatigue really is. Medical Science can not quantify CFS. There is no blood test that says it is definitely CFS. There are no scans, no X-rays, no ultra-sounds, nothing, that can say conclusively that you have CFS. This is why it is so hard to diagnose CFS.

What's more is that science does not really know what causes it; nor does science know what cures it. The best a doctor can do is try to treat the symptoms.

The only way a doctor can make a legitimate diagnosis of CFS - is after he has eliminated every other possible cause of your symptoms, and there are many. Fatigue is a very common symptom for many illnesses. In fact all of the symptoms experienced by CFS sufferers could caused be a number of different things. When a doctor has exhausted every other possible diagnosis and still can not find an answer; that is when they finally diagnose it as CFS.

One of the worse things about CFS is it's name. Chronic Fatigue Syndrome. Makes it sound like it's no big deal, and often causes others to say insensitive things like, "I'm tired too." Or, "Well, you don't look sick." Activists are trying to change the name to just the acronym CFS/ME.

But medical science realizes that it is a very serious illness, and is very debilitating. It dates all the way back to the 1700's and today it is found in every culture. CFS/ME is also known as one of "The Invisible Disease," along with Fibromyalgia, Lupus, among others. Although it is not likely a fatal disease, it causes suffering and it is disabling.

It is not a psychological disorder although many of us do suffer depression for many different reasons. They are two completely different things. For me depression is from not being able to work, and often not being able to go anywhere, feeling a loss of identity, feeling no one believes you, are some of the things that my depression holds. I have a handle on it most of the time because of antidepressants.

In closing I would tell you that if you have excessive or persistent fatigue and sleep does not seem to refresh you, see a doctor.

 
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Old 05-05-2013, 03:29 PM   #5
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

I'm likely have chronic fatigue rather than CFS. I think i don't have common symptoms of CFS like unusual headache, flu-like symptoms, swollen lymph nodes, sore throat, muscles joints pain, etc. I only have sleepy (my no. 1 symptom), dizzy, and fatigue. I've see 3 doctors until now. 1st and 2nd doctor told me to do CBC. And the result is normal. The 3rd doctor is like a nuts. He told me i'm very depressed and have pshycosomatism.
What do you think?

 
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Old 05-05-2013, 03:48 PM   #6
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

I've done tests: CBC, glucose,
cholesterol, and once a month
blood pressure tests. But all
were normal. Sleep apnea does
not have likely. Because I do not
snore, not obese, rarely wake up
at night with a choked breath,
do not have a headache in the
morning. I also have done a
simple test for adrenal fatigue as
blood pressure tests, pupils
exam, sergeant white line, and
everything is normal. Incidentally
I did not test thyroid. I
attempt to do so far is already
taking the B100 for almost 2
months, to no avail. Recently I
take 5000 IU of vitamin D per
day, and every morning at least
half to one hour sunbathing.

 
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Old 05-05-2013, 08:08 PM   #7
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

There is a difference between excessive daytime sleepiness and abnormal fatigue.
You are trying to diagnose yourself without the aid of diagnostic testing that could give you the answers. You can have sleep apnea without obesity, AM headaches, snoring or any awareness by you or your partner of sleep problems. I did, and I was shocked, but feel better now on treatment for it. You should see a sleep specialist and get a sleep study and possible EEG for narcolepsy. You are not going to answers here or within yourself without objective, scientific testing.

 
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Old 05-05-2013, 08:23 PM   #8
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

@ Ladybud: I think it is not sleep
apnea. Because almost all sleep
apnea patients narrative I've ever
read on the internet, all have at
least three to four of all
symptoms. While the symptoms
that I have only daytime
sleepiness, nothing else.
Honestly, I suspect if I have
hypothyroidism. Low
testosterone is also unlikely.
Because my erectile normal, normal
libido too. But this is just my guess.

 
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Old 05-05-2013, 11:30 PM   #9
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

Berlian,

You posted:
Quote:
I'm likely have chronic fatigue rather than CFS. I think i don't have common symptoms of CFS...
Chronic Fatigue is CFS. (Chronic Fatigue Syndrome).

Quote:
He told me i'm very depressed and have pshycosomatism.
What do you think?
You asked if I thought your doctor was correct by saying you have pshycosomatism. It's like I said, I am no doctor and neither is anyone else in this forum and I would guess his diagnosis is better than mine will ever be.

Also, I have to say, I've never heard of the word pshycosomatism. I think your doctor is saying that your symptoms are psychosomatic which simply means it's pertaining to disorder 'caused by' or 'influenced by' emotional factors. What do you think?

Quote:
I think it is not sleep
apnea. Because almost all sleep
apnea patients narrative I've ever
read on the internet...
Like I said and Ladybug reiterated you are trying to self diagnose according to what others list as symptoms. You just can't get an accurate diagnosis without a trained physician and a lot of tests. I thought I was pretty clear about that in my last post.

Also, Ladybug is correct, you may not show any signs or symptoms but still may have sleep apnea. But somehow you've already dismissed that possibility when you can't possibly know one way or another based on other peoples symptoms. It's like you're chasing your tail around a tree. To determine sleep apnea, you must have a sleep study.

Also, although I am not a doctor, I really doubt you have CFS. You say you are sleepy and that is not a symptom of CFS. I am extremely exhausted but not sleepy. There is a big difference between the two words. Sometimes I am so fatigued that I need to sleep but that is different than what you are saying. Also, for CFS patients, sleep is not refreshing and the fatigue prevents us from doing much of anything. I cannot work, it's rare that I can visit friends, I hate telephone conversations because they are so draining. Making a doctors appointment is sometimes very challenging for me. I have written all my life, and I am a writer, but now writing is exhausting and takes me a long time to accomplish what I used to be able to write in 15 minutes!

You have seen 3 doctors, pick one and let him help resolve your health issues. That is the only way you will ever figure out the information that you are seeking. You cannot diagnose any illness by comparing symptoms. Symptoms may suggest a cold when it is really the flu, or vice-versa.

I do wish you the very best.

 
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Old 05-06-2013, 12:27 AM   #10
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

Thank you very much for the
help you two, ladybug and
zimzampow. To perform a
variety of tests seems difficult.
May test CBC, thyroid, cortisol,
can be done. But for a sleep
study test is so difficult. Because in my
country, the government does
not care about people's health.
Tens of billions of money to
subsidize healthcare facilities
corrupted by some **** officials. And sleep study is still expensive in my country.
Especially if I've done a sleep
study can cost about $ 1,000
more, but the results are
normal. Really hurt for my wallet, hehe. It seems in
some time to come I will try to
test thyroid. Thank's.

 
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Old 05-06-2013, 07:27 AM   #11
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

Berlian, maybe you can get a friend to observe you while you sleep for snoring, stopping breathing for a minute at a time, strange noises, gasping, etc. If you have it perhaps some of simpler measures for treatment would work as CPAP is expensive too and perhaps not readily available. Another clue is if your oxtgen drops during night and can be measured with a pulse oximeter on your finger that costs very little and can be purchased at drug store. Your observer would have to watch for oxygen to drop below 94% and record the lowest it goes. Falling asleep too easily can be dangerous, especially if driving or bicycling and you fall asleep. I assumed you have tried caffeine throughout the day?

Last edited by ladybud; 05-06-2013 at 07:29 AM. Reason: added info

 
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Old 05-06-2013, 08:17 AM   #12
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Re: Can CFS Have Sleepiness As One Of The Symptoms?

@ Ladybud: Here strange
symptoms that I have. Honestly I
never consume coffee as an
alternative to resist sleep. My symptom often sleepy and
yawning, but ... I NEVER GET A NAP
AND CAN NOT SLEEP IN DAY!
Isn't it strange enough? Although severe
drowsiness, but I've tried to sleep
and I can not. Can not at all. My
night sleep normal. From 9 pm
to 5 am or 6 am. Not insomnia,
and rarely wake up in the middle
of the night. I will explain in
detail all my symptoms. Who knew you
could have guessed exactly what
I suffered. Often sleepy, slightly
dizzy (like when a mild alcohol consumption), sometimes appeared
tired. Not endurance in cold, especially
in the room that have air conditioner. Feet
and hands cold sweats
sometimes. Sometimes sore neck
muscles. Weight gain 5 pounds (i think it's don't have correlated).
Maybe it's only the symptoms
that I have.

 
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