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Old 07-04-2007, 05:14 AM   #16
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Re: How do you deal with doctors who don't take your pain seriously?

Seal,

I just read the post about primary docs. You REALLY need to find a pain doctor. ASAP. This primary is jerking your around. There is no doctor worth his salt in anything that would write one vicodin for a patient in constant pain. This is worse than writing for anything at all, as it's a slap in your face.

Then he cannot look at your back, because he is out of time??? WHEW! I would have blown my top! You need another primary doctor, but you need pain doctor first. What a nightmare! Please stick up for yourself, advocate for yourself. I know it is hard with all the bad experiences you are having, but it is not okay to pay these doctors your hard earned money, to allow them to treat you like this!

By the way, studies have shown that patients who take narcotics as prescribed, for pain, have less than a one percent (1&#37 chance of becoming addicted. Your primary obviously knows nothing about pain management, which is why you should stop wasting your time with him, and find a pain specialist.

Focus on getting your pain under control, THEN continue searching for a diagnosis. You cannot do both right now, because you are so overwhelmed with pain. I finally went to a pain doctor for this very reason. I could not "fight" anymore. I was too miserable, too stressed, too exhausted. Once my pain was better controlled, I could spend the energy researching specialists, going to appointments, and enduring test after test. It took them TWO years to find my problem. I cannot imagine if I had gone that entire two years in that much pain. Please do this, today.

Your Friend,

Amanda

 
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Old 07-08-2007, 08:58 PM   #17
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Re: How do you deal with doctors who don't take your pain seriously?

Hi Amanda,

Thank you so much for your thoughtful replies.

That's lousy what happened to you in the ER with what that doctor said...he was making a stupid assumption. For a doc to state that a patient is a drug seeker when that is NOT the case is just awful in so many ways. Some ER docs are arrogant and rushed and overwhelmed, but that's no excuse for getting the facts wrong. Also, I'm so sorry that you had to endure pain for two years before learning what was wrong.

Doctors should not make assumptions and should not write their unfounded comments in our records, since what is incorrect info in our records may affect the care we receive in the future and may make us look like bad patients, for example. But oftentimes, docs write things in our records to protect THEMSELVES.

You're right, the podiatrist wrote mostly his opinion in my record, not facts. To me, the record reads as though he has something personal against me. Absolutely, I think the God complex came into play here. I've been to doctors in the past so that I have some idea what is wrong with my foot, although those doctors couldn't help me. But this podiatrist couldn't stand the fact that I knew something. My mother was with me in the room while he examined my foot, and she thought he was a know-it-all, arrogant jerk, too.

I am thinking about writing a letter to this podiatrist's office to request that they correct my record (height & weight are wrong, & they never checked my vital signs, but vital signs are listed in my record) and to ask why the doctor failed to include in my record that he told me I have osteoporosis in my feet and to go get a bone density test done...his record states that there are NO orthopedic issues. I will also probably voice my disappointment that the podiatrist wrote several unfounded negative comments in my record about things he claims I said at the appointment. All that he wrote is self-serving and makes me look pretty bad.

I am definitely going to search for a pain management doc. I don't know of any PM's, though, and I hope I don't meet another crappy doc. You're right, I also have to find a new primary care doc...not examining my painful lower back on two occasions is neglectful on my primary doc's part. Plus, recently I had a bone density test done, and the lady who performed the test said I have osteopenia (abnormal for my age, plus osteoporosis is in my family so I need to be careful), and she said that my primary doc would discuss the results and possible treatment with me. However, all I received from my primary doc was a very short note in the mail stating that I have osteopenia and to take a calcium supplement and be more active. I've been taking calcium supplements since my 20's, and this doc knows my activity level is very limited due to my foot pain! Hey, treat my foot pain and I can be more active on my feet, simple as that. I'm not going to even bother making an appointment with him to try to discuss my test results because he doesn't sound too smart.

Amanda, thank you for all the advice...thanks for being a friend.

 
Old 07-09-2007, 06:57 PM   #18
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Re: How do you deal with doctors who don't take your pain seriously?

That is terrible you have had to go through that. I think I would get in touch with an attorney!

 
Old 07-09-2007, 07:36 PM   #19
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Re: How do you deal with doctors who don't take your pain seriously?

sealover,
I'm so sorry you are going thru all this. I wish you were in Va. I've got the best Pod. and Primary, and my PM is ok. I wouldn't trade them for anything. I also have bad feet. I had 9 surgeries in 3 years (on my left foot) left me with RSD, and not being able to wear shoes, or walk, as the last surgery put me in the hospital for 11 days. My pod took all the flesh from the top and bottom of the foot. if you moves the bones apart, you could look thru the foot. Kinda gross. Had a vacpac attached for another 2 months after that. Nothing is worse than not being able to get around due to feet hurting. I know you will find a good doctor...you deserve it.
Mary

 
Old 07-12-2007, 10:28 AM   #20
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Re: How do you deal with doctors who don't take your pain seriously?

That reminds me of a situation I was in.. Last year I coughed up a lot of blood but only one time. I went to the ER cause it scared me. At first they thought it was TB, but wasnt. They only took blood, no xrays or mris etc. they chalked it up to bronchitis only cause they didnt know what else it was and asked me if I am sure I coughed up blood... at the beginning of this year I was in a bad car wreck and they took a ct/ mri of my entire upper body and found about 1 inch big nodule in my lung...what the hell? so I wonder if its comming from that. anyway dont give up. it took me 5 years to find a good doctor for my neck and back pain!
good luck
mel

 
Old 07-15-2007, 01:21 AM   #21
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Re: How do you deal with doctors who don't take your pain seriously?

BROSS,
Thanks for the advice, but I don't think an attorney can help with these doctor problems. I just have to search for a doctor that is going to be able to help me.

Mary,
Gosh, I wish I was close to where all your good doctors are! I'm so sorry for all that you've been through with your foot/feet and all the surgeries you've had to endure, and I truly relate to the frustration of having painful feet. My left foot is the bad foot as well. My foot doesn't need surgery, but what is wrong with it can't be fixed, though when I find a good doc, perhaps something can be done to relieve my pain.

Mel,
I won't give up trying to find a doc (I'm just sick of having to go to docs and meeting some lousy ones). It must be a relief that you finally, after 5 years, found yourself a good doc that is helping your neck and back. I don't understand why the ER didn't order more tests to find out why you coughed up blood, but it's a good thing that you ended up finding out you have a nodule in your lung (instead of not knowing about it). I hope the nodule is nothing serious (I don't know much about nodules). Best wishes.

Last edited by sealover; 07-15-2007 at 01:26 AM.

 
Old 07-15-2007, 02:08 AM   #22
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Re: How do you deal with doctors who don't take your pain seriously?

One thing I have learned is you have to go in strong headed. Walk up in the office like you OWN it and the doc... Confidence is priceless. I remember the IME crap and the first PM I saw. Both non believers and both quickly got put in there place.

Fired the first PM. Everytime I walk into the IME appointment I treat him as the enemy and as though im above him. The tactic actually works. Just give him a cold stare and have a strong voice until submission occures or my better half intervenes. Bring someone with you who knows you VERY well. there input is not taken lightly when they speak up too about you.

If all else fails sealover wouldnt he look real cut with a four pound lobster shoved up his er... you know what I mean. Wait, that would so wasteful! LOL


Jon

 
Old 08-16-2007, 09:00 AM   #23
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Re: How do you deal with doctors who don't take your pain seriously?

First off i'd say get a new doctor. If they are not taking you seriously or don't believe you, how would you expect to get any help or heaven forbid, fix the problem thats causing the pain issue in the first place.

 
Old 08-16-2007, 10:48 AM   #24
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Re: How do you deal with doctors who don't take your pain seriously?

Hi Jon,
thank you very much for your advice and telling me what you do to handle doctors. Although I'm an adult, I bring my mom along for some of my appointments, and I don't think doctors like it very much that someone else is in the room with me for support.

Hi Amy,
I can't understand why a doctor wouldn't take pain seriously, no matter what age a person is. Pain is pain. It's not like a younger person suffers less than someone 15 years older. I hope you find a good doctor...keep searching...I totally understand your frustration.

Hi Donorpanc,
you made a great point...I can't expect my problem to get better from a doc that's not helping. I'm looking for another doctor, but my efforts have been hampered because I've been feeling very tired. Hope I have good luck.

 
Old 08-17-2007, 03:56 AM   #25
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Re: How do you deal with doctors who don't take your pain seriously?

Same thing is happening to me too. I have DDD and arthritis in my neck. I just found this out finally after a trip to the ER when my primary wouldn't do anything for me. All he does is adjust my neck when i visit him and give me Klonopin or some other useless drug. I have horrible neck pain that causes me to have horrible headaches for 3-4 days at a time. I have called my doc several times to tell him how much pain i am in and he just recently prescribed a migraine med that he had me try a year ago that didnt work and made my headaches worse.

I am convinced it is caused by my neck and I know the pain I am feeling. I am going to fax the info from the ER doc today to show him this doctors opinion. I have been complaining about the pain for 4-5 months now and my primary has never ordered x-rays nor has he ordered MRI or anything like that.

I am spent and in pain. It is obviously getting worse. He has me going to a neurologist now so maybe he will help but that is a month away. Wow, we hire these doctors to take care of us and we get pretty much nothing in return.

t~
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Old 08-17-2007, 05:13 AM   #26
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Re: How do you deal with doctors who don't take your pain seriously?

Yes I was so sick of doctors treating me badly i wanted to scream. I have perphial neuropathy that doctors couldn't figure out themselves. They acted like I was nuts. It was 8 years ago and I guess they did't discover neuropathy yet and they acted like I was making the symptoms up. I told them I gelt like bees were stinging my foot and on doctor in my regular doctors practice told be to buy good shoe! I had'nt slept for months by this time and she told me to buy good shoes at "You know, at adepartment store", like I never went in a good store in my life. So yes another neuroligist said well take an mri, but it sounds like you have ms. Well 3 weeks went by and I was scared to death I would be in a wheel chair so i called them and the nurse said she would pull my file. I told her its been 3 weeks. She honestly (this almost sounds unreal)but she said your mri is normal, he wrote you off the case. He never called me. When I called her she said, sorry he did't call you. He was on vacation in Isreal. It took me 2 years of jerky answers even from my regular doctor to have a nurse that my mother knew tell me it sounds like neuropathy.

 
Old 08-23-2007, 08:16 AM   #27
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Re: How do you deal with doctors who don't take your pain seriously?

Quote:
Originally Posted by marya53 View Post
Yes I was so sick of doctors treating me badly i wanted to scream. I have perphial neuropathy that doctors couldn't figure out themselves. They acted like I was nuts. It was 8 years ago and I guess they did't discover neuropathy yet and they acted like I was making the symptoms up. I told them I gelt like bees were stinging my foot and on doctor in my regular doctors practice told be to buy good shoe! I had'nt slept for months by this time and she told me to buy good shoes at "You know, at adepartment store", like I never went in a good store in my life. So yes another neuroligist said well take an mri, but it sounds like you have ms. Well 3 weeks went by and I was scared to death I would be in a wheel chair so i called them and the nurse said she would pull my file. I told her its been 3 weeks. She honestly (this almost sounds unreal)but she said your mri is normal, he wrote you off the case. He never called me. When I called her she said, sorry he did't call you. He was on vacation in Isreal. It took me 2 years of jerky answers even from my regular doctor to have a nurse that my mother knew tell me it sounds like neuropathy.

 
Old 08-23-2007, 08:20 AM   #28
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Re: How do you deal with doctors who don't take your pain seriously?

I finaly sent my pcp a fax stating " IF YOU DON"T BELIEVE ME" I'll take a ##)&$(# Polygraph, and to my surprize, he started acting actually sypathetic, and is now helping me. They work for you ! You are the boss !
You may want to try it ?
God bless

 
Old 08-23-2007, 10:02 AM   #29
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Re: How do you deal with doctors who don't take your pain seriously?

Let's see, over the past yrs I've been called hypochondriac, a drug addict, etc, etc.

I do have peripheral neuropathy also. Hematologist is puzzled over my 'sawtoothing' lab work. But says something is DEFINATELY going on.

It takes sometimes going thru a few docs to find one that actually cares to try to figure it out and treat your pain.

 
Old 08-23-2007, 11:21 AM   #30
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Re: How do you deal with doctors who don't take your pain seriously?

I have had more than my share of Dr's who are too full of themselves... I call it the 'typo' syndrome... someone put a I where the O should be on the old Hypocratic Oath.

The absolutely worse I have ever had was a kidney specialist who, when discussing my severe BP and heart rate issues told me that only three things could cause it... being completely paralized from the waist down... an adrenal issue... or chronic binge drinking, and since I was not paralized and he did not think it was an adrenal issue I was there-for a binge drinking alcoholic! The fact that I do not drink at all was ignored with a condescending shake of the head and rolling eyes.

Then there is the surgeon that blamed me because he did 18 surgeries on my foot and it was still just as misserable as it had ever been so "I could fuse it, but you would just screw that up like you did all my other fantastic work" was the last thing I ever heard from him... this was a Dr that also refused to believe that I could not walk without at least a cane and thought pain management was just people wanting to get high.

Luckily, I will never see either of those Dr's again!
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