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Old 06-02-2010, 02:42 PM   #31
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Re: How do you deal with doctors who don't take your pain seriously?

We as patients make doctors super sensitive about pain. IF you truly have bad pain your doctor should refer you to a PAIN CLINIC.
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Originally Posted by lady53 View Post
Yes I was so sick of doctors treating me badly i wanted to scream. I have perphial neuropathy that doctors couldn't figure out themselves. They acted like I was nuts. It was 8 years ago and I guess they did't discover neuropathy yet and they acted like I was making the symptoms up. I told them I gelt like bees were stinging my foot and on doctor in my regular doctors practice told be to buy good shoe! I had'nt slept for months by this time and she told me to buy good shoes at "You know, at adepartment store", like I never went in a good store in my life. So yes another neuroligist said well take an mri, but it sounds like you have ms. Well 3 weeks went by and I was scared to death I would be in a wheel chair so i called them and the nurse said she would pull my file. I told her its been 3 weeks. She honestly (this almost sounds unreal)but she said your mri is normal, he wrote you off the case. He never called me. When I called her she said, sorry he did't call you. He was on vacation in Isreal. It took me 2 years of jerky answers even from my regular doctor to have a nurse that my mother knew tell me it sounds like neuropathy.

 
Old 09-01-2010, 02:30 PM   #32
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Re: How do you deal with doctors who don't take your pain seriously?

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Originally Posted by sealover View Post
Hi everyone.

I am venting hereÖand would welcome any replies.

At this point, Iíve become tired of meeting doctors in the past two years who are totally unhelpful and uninterested in treating my foot that has been in chronic pain since an injury in 2003 and cortisone injections that caused damage in my foot.

Iím a bit upset about the appointment I had with a podiatrist last week. I know I shouldnít let his remarks get the better of me, but the problem is that he may write his lousy comments in my medical record which will be passed onto my primary care doctoróhe also told me that he would be speaking with my primary care doctor. Iím afraid that perhaps my primary care doctor will not take me seriously anymore because this podiatrist does not believe I have the pain in my foot I truly suffer from and because the podiatrist thinks I'm malingering. I wish I never went to that appointment.

A specialist my father went to highly recommended that I see his colleague, the podiatrist. I had a lot of hope and faith that this podiatrist would be able to provide help for my foot. Well, in a nut-shell, he is a know-it-all type who thinks that if someoneís problem doesnít fit with what he learned in podiatry school or with what he typically sees in his patients, then the problem cannot possibly exist. He was so closed-minded. Heís a doctor who is NEVER wrong. For example, he suggested that I have ketaprofen compounded into a cream to put on my foot, and I said that I have already tried two different formulations of compounded medications which include both ketamine and ketaprofen. He said it is NOT possible to combine ketamine with ketaprofen because ketaprofen can only be compounded by itselfÖhe is WRONG! When I tried to explain where my pain in my foot is, he kept jumping all over my words and interrupting me. Iím going to skip over a lot of what went on at the appointment, but it was him basically contradicting what other doctors diagnosed me with and saying that I cannot have the pain I describe. But you can actually see some damage to my foot by simply looking at it.

He looked at my most recent x-rays that were taken in the office of an orthopedic surgeonóhe made a few negative remarks about this orthopedic surgeon such as he has a terrible personality and heís not a good doctor (personally, I agree because I had an awful experience with that doctor). He then looked at the x-rays of my feet and said that I have osteoporosis in my feet due to disuse atrophy. Plus, he said I have arthritis in my big toe. I told him that the orthopedic surgeon who looked at the exact same x-rays stated that my x-rays are normal. His response was that the surgeon is not a radiologist. My understanding is that osteoporosis does not show up on regular x-rays until maybe over 30% of bone loss has occurred, so how could an orthopedic surgeon miss osteoporosis on an x-ray? Or maybe the podiatrist is wrong and I donít have osteoporosis in my feet. I donít know who to believe, so Iím going to have to get a 3rd opinion.

Anyway, at one point, he asked me: "Do you know what malingering is?" I answered, "Yes," but I totally misunderstood the meaning of the word at the time and found out later what the real insulting meaning is: that a person is exaggerating/faking an illness or injury to avoid work or duty or for financial gain. He said something about how I am malingering, but I didnít respond to his comment. MalingeringÖhow much more insulting can he get? I would give all that I own just to have the pain go away in my foot and to be able to be on my feet for hours like I used to. He doesnít see me when Iím unable to bear walking after doing a few short errands. Thereís no faking to my pain...I want to walk so badly like I used to be able to. Iíve actually had to sit in the car while the people Iím with do their shopping because my foot is in awful pain. Itís embarrassing. Then, as Iím sitting in the car all alone, I see people walking fast and even running in and out of the stores, and I wish that was me running or walking fast. I even got stuck in the center of a mall one time, unable to take many more steps because my foot was killing me and my knee was very fatiguedÖbut I didnít tell any of this to the podiatrist. Gosh, I just want relief for my foot pain so my life can be better.

He told me most of what I'm experiencing is in my head.

Then he called me "histrionic." I said, "I do not have histrionic personality disorder." He responded, "That's okay, I have it, too." Great, another insult! I don't know where he came up with me being histrionic (my personality doesnít have histrionic characteristics), it just doesn't make sense why he would say this to me. Iím sorry if I sound sensitive to his comment, but it bothers me that Iím at an appointment to receive professional help for my foot, and Iím being insulted for no reason that I can think of.

I really donít want to meet another doctor like this again. How do you deal with a doctor like this at an appointment? Do you just walk out in the middle of the appointment? Have doctors treated you rudely?

 
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Old 09-01-2010, 02:38 PM   #33
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Re: How do you deal with doctors who don't take your pain seriously?

Hi there, I too have been having problems like you I went to the docotrs with bad pain on the top of my left foot (worse on walking but at rest too) it wakes me in th night trying to find a comfortable position sometimes the pain makes me feel sick. This started in 2006 just mildly now it's 2010 and all I have gained is a visit to a foot doctor who told me that my ligaments needed stretching and that he thought that I aught to see a lower back physio as he thought that the rest of my problem was nerve endings resulting from my spondylitis in my back. The physio gave me some exercises which I have done for 4 months now and my foot is getting worst. When I went back to my doctor (luckily with my husband in tow) I told her things were getting worst and she sat there yawning! It took my husband saying that we needed to know what the problem was as we had had no definate closure and now I am on a 14week waiting list to see a specialist. I know just how you feel

 
Old 09-01-2010, 08:05 PM   #34
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Re: How do you deal with doctors who don't take your pain seriously?

I have had lower back problems now for about 10 years and about 18 months ago I started having pain in my butt and pretty much just assumed it was a progression of the nerves being stirred up. I thought that would be as far as it would get but it started creeping down my leg. Now I can't walk more than 50 meters or yards over there before I start getting pain in my foot also. Now it hurts to go shopping when before that was the only place I could go to get some exercise. So now not only do I have chronic lower back pain but right down my left leg and also my foot. so it is very painful to walk on my left foot. It is one of those pains that you just can't nail down.
So I feel bad for you as I now know what it is like to have to walk with a walking stick and to be in more pain the more I walk. It is a horrible pain and I hope I can be rid of it soon. I am having a fusion on one level and a disc replacement on the next on the 25th of November. I hope you can find what is causing your pain. Could it possibly be nerve related like mine is? Anyhow good luck.
Allan
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25-Nov-2010: ALIF fusion L5-S1. 9 years of Chronic lower back pain. Nearly 18 months of pain across my upper pelvis, through my butt and down my left leg into my foot. Sciatica relieved by surgery.

 
Old 09-02-2010, 06:47 AM   #35
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Re: How do you deal with doctors who don't take your pain seriously?

YOU said a mouthful Izzy-I cant tell you how MUCH i agree with you- we are already suffering and who has the xtra energy to have to deal with a B****** like alot of these so called physicians!!!!! are- and it's so un-neccessary- i am at that point where i refuse to be walked all over ANYMORE-EVER AGAIN!
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Old 09-02-2010, 07:03 AM   #36
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Re: How do you deal with doctors who don't take your pain seriously?

you write a detailed letter, exactly what you have told us on this board-leave nothing out! how you were made to feel, the humiliation, the minimization of your symptoms, EVERYTHING, and you send it to him by REGISTERED MAIL, and you also CC copies to the American board of podiatrist's, the American Medical Association, the Department of Professional Regulation, And to the Administrator of any Hospitals he is affiliated with.
you MUST do this. WE have to fight back!! I for one am not going to be treated like this ANYMORE and not let my voice be HEARD. Please do come back and let us know what you do and i certainly hope you do take action. We have to stand up for ourselve's so we can get the proper care that we need. Living with chronic pain is a HORRIBLE way to live and i wouldnt wish on my worst enemy. Remember-nothing changes if nothing changes
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Last edited by BB07; 09-02-2010 at 07:04 AM.

 
Old 09-02-2010, 09:29 AM   #37
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Unhappy Re: How do you deal with doctors who don't take your pain seriously?

Hi there and thank you for your reply. I am in England and this is our wonderful National Health! I will complain as unless you have the money to go private which if you are an average wage earner is not possible as they take the National Health from your wages at source, so unless your earning a really good wage, private is out of the question. It would seem there are uninterested doctors everywhere and as you say living with pain day in and day out sometimes make you wonder if it is worth while. This country is more interested in looking good for the way it treats its immigrants never mind us that have paid in all of our lives

 
Old 09-02-2010, 10:12 AM   #38
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Re: How do you deal with doctors who don't take your pain seriously?

To get the surgery I need I had to join a private health fund and I am on a pension. I am lucky I live in Government housing. They take little under a quarter of my income for rent then I am slugged extra for not joining earlier and have to pay 38% extra but receive a 30% subsidy so it works out $200 a month. I struggle to pay it but I am having surgery soon on my lower back that I may have had to wait another 3 years for in the public system and I have my own doctor and a private room. Along with better treatment. So it is worth the cost even though I have had to save as well for any gap in the cost. I may be in a better situation than others but I hope you get the treatment you deserve eventually. Good luck also finding a good doctor which is half of the battle as they can be hard to find. I had been to about 6 or more before finding my doctor and I still visit a couple for different problems. Allan
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25-Nov-2010: ALIF fusion L5-S1. 9 years of Chronic lower back pain. Nearly 18 months of pain across my upper pelvis, through my butt and down my left leg into my foot. Sciatica relieved by surgery.

 
Old 09-02-2010, 10:22 AM   #39
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Re: How do you deal with doctors who don't take your pain seriously?

Report this doctor.No doctor has any right to belittle or talk down to a patient.I just joined this site and canot believ how many posts I have read already about doctors not wanting to give out proper meds and talking down to patients.I understand now at days thay have to cover themselves,but the people that have posted actually have the xrays,mri's and proof that they have a serious problem.Enough said-report him.Hope you find the help you need speedily.Have a lovely day!

 
Old 09-02-2010, 11:20 AM   #40
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Re: How do you deal with doctors who don't take your pain seriously?

your problem could very well be stemming from your low back-you may have a herniated disk-i have 2 in that area and the pain is so severe,it radiates thru my butt(mostly lt side)down to my feet-mostly lt foot the pain in my lt foot is like onthe outer part of the foot and great toe and also have some numbing,it is sciatica says doc. i have the greates doctor! i feel so lucky and blessed to have found him, he give me thourough exams, and he LISTENS to me and i know he cares(i can feel it) i had mri which diagnosed herniations at 2 levels of lumbar spine with some tearing, and nerve damage, he said that is why i have so much pain on my lt side-lumbar area;radiating to feet and is causing the sciatica-he is very open and honest with me-he told me this is never gonna go away, there are some surgical procedures to consider but he doesnt recomen that for mr now unless my bowels n bladder become affected or there is a spinal instability but the durgery wont relieve the pain he told me-he told me there are alot of doctors who will tell me different and be happy to cut my spine open and take a hammer and chisel n drill to it but 9 times out of 10 they are unsuccessful and you end up in more pain than before. he told me you think you are having the worst pain of your life now-you could come out of a spinal procedure n have to get used to a whole new level of intractable pain-now how many doctors are that honest-i truly believe God put him in my life as i have been praying to God to please guide me, tell me what to do and please help me have this horrible pain stop. this doctor told me he could help me, but to only expect minimal relief-he told me alot of his patients have to high of expectations and cannot accept reality. anyhow he tried PT, trgger point injections, electrical stim,massage(the massasge helped but only until massage was done,he gave me a tens unit,we tried everything includin various pain medications-and the narcotic pain meds is the only thing that really helps, and i told hil that-he had no problem with me telling him that, right uo frot he told me that i must always be consistently honest with him or he wont be able to provide me the best care possible, i have also developed severe case of insomnia cuz pain is so stimulating and intrusive in a neg way. so right now he has presrcibed me oxycontin(LA) and percocet for bt pain, klonapin for anxiety, and restoril to help with sleep. i do get some relief and i am so grateful, this doctor makes me feel so much better just by being able to talk to him without feeling dumb or embarassed,etc he also tried me on a drug LYrica for nerve pain but i had a bad reaction-my vision sudenly became very blurry and the lids swelled so he d/c'd it. but he is truly a great physician and i than God for him- i always make it a point to thank him and tell him how much i appreciate everything he does for me, and he always tells me if something new or strange comes up before next appt to contact his office immediately-and his staff is great to, everyone is so nice!! i know how lucky i am cuz docs like him are darn hard to find and i wish all of you struggeling to get the medical care you need and deserve will find one like mine

The best of wishes and God's speed to all of my fellow CP friends
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Old 09-02-2010, 11:43 AM   #41
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Re: How do you deal with doctors who don't take your pain seriously?

my doctor told me fusion surgery is a bad idea unless there is a serious instability issue-it wont help at all with the pain-he told me in Europe they hardly do them at all any more and New Zealand wont do them period, they consider the procedure "barbaric" and leads to un-necessary increase pain problems afterward. he told me the most popular spinal procedure is endoscopic discectomy-i hope i spelled that right-he also told me neurosurgeons, if they are honest will tell you the procedure wont alleviate the pain, he says you have about a 30% chance of the surgery helping with pain and basicallly he doesnt believe any spine surgeries significatly help pain-he told me that if i was his wife he would have me try non-surgical treatments and work at keeping the pain down to a level where you can function. he considers getting a patients pain level to a 5-6 a success, and only consider any spinal surgery as a very last resort, he told me so many people have come to him regretting that they went thru with surgery because thier pain is so much worse than before the surgery. this doctor is so easy to talk to and i just love him! he always makes me smile evan when i have been up for three days with no sleep cuz of pain-he tells me,"now dont you worry dear, we'll figure out something and do some tweeking with your meds and your gonna feel better, and i always do-i swear he is a miracle worker and i believe God has truly laid his hands upon him
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Old 09-02-2010, 12:24 PM   #42
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Re: How do you deal with doctors who don't take your pain seriously?

YOU CAN SAY THAT AGAIN!!!!! that's another issue that just burns my A**!!!!!
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Old 09-02-2010, 01:12 PM   #43
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Re: How do you deal with doctors who don't take your pain seriously?

that sounds awful im so sorry

Last edited by minnow18; 09-02-2010 at 01:13 PM.

 
Old 09-02-2010, 05:29 PM   #44
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Re: How do you deal with doctors who don't take your pain seriously?

We will see how surgery goes with me as I couldn't go on with it like this. I was told that you hold off of surgery until you can't walk, well it is very close to that with me. It is embarrassing in the shops dragging yourself behind a trolley and My life is not good when I can't sit and I can't walk. A person can't live their life from bed. I have been told by a number of pain sufferers that they don't regret having surgery and would do it again. Good luck with your situation.
Allan
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25-Nov-2010: ALIF fusion L5-S1. 9 years of Chronic lower back pain. Nearly 18 months of pain across my upper pelvis, through my butt and down my left leg into my foot. Sciatica relieved by surgery.

 
Old 09-02-2010, 06:08 PM   #45
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Re: How do you deal with doctors who don't take your pain seriously?

allan, have you ever tried a d.o. manipulation? i realize it probably wont cure your problem, but it could definitely provide some comfort.

Last edited by minnow18; 09-02-2010 at 06:09 PM.

 
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