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Old 09-02-2010, 11:37 PM   #46
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Re: How do you deal with doctors who don't take your pain seriously?

I have given up on all other treatments until after I have the surgery and start the physio about two weeks later. I will look at physio rehab natural therapies again after things settle down. I imagine I will need some therapies afterwards and will then be open to suggestions. I am not closed off to other treatments it's just come to a time when this is my only option as I am only damaging nerves now that will take longer to heal if I don't do something soon.
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25-Nov-2010: ALIF fusion L5-S1. 9 years of Chronic lower back pain. Nearly 18 months of pain across my upper pelvis, through my butt and down my left leg into my foot. Sciatica relieved by surgery.

 
Old 09-03-2010, 01:36 AM   #47
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Re: How do you deal with doctors who don't take your pain seriously?

Hi there,
Sorry to hear of your pain & I sincerely hope that it is sorted out for you at last. Luckily I do not have leg pain just a knee that gives out and is a bit painful on inclines and uneven ground. My pain at present is just back foot and waist, hopefully when I see specialist I will get some definate answers. Such long waiting lists over here. So annoying isn't it all the dreams of having time to yourself and carrying out hobbies and then you can't do most of them. Hope things improve for you

 
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Old 09-03-2010, 07:58 AM   #48
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Re: How do you deal with doctors who don't take your pain seriously?

Hi ther i totally know how you feel. I am 23years old and have had chronic back/hip pain for 12+ years and the amount of "Professional" specialists and doctors i have come across that have been so rude to me it's a suprise i'm still here today!! They really do make you feel so small. Just last week my personal doctor whom i thought understood, started having a huge go at me, shouting and pointing in my face saying how i "don't want to get better" (humm despite over the 12years ive had this pain thats all i have ever do is tried to get better, or find an answer to get better!) I think because he doesn't know the answer to my suffering he has failed, therefor took it out on me! I ended bursting in to tears and stormed out, now i don't know what to do. I expected a phone call saying he was sorry but nothing, i can't go back there ever again i am going to have to tell my story to an other new stranger doctor and hope they can help me,humm!??! I hope you find a little comfort in this that you are not the only one having trouble, hope you get help soon x

 
Old 09-03-2010, 01:22 PM   #49
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Re: How do you deal with doctors who don't take your pain seriously?

That is terrible and he needs putting in place or someone letting him know how he has hurt you. I have been to a lot of doctors and it is hard to find the right one for you. My GP, though I still see him still is very moody at times and the next visit he is great but I only depend on him for basic things. I also see a specialist who is about my 3rd as either they have moved on or I have. So it doesn't hurt to find another and surgeons well I have seen 5 of those. The first was very arrogant and got up me for not going back to him sooner. The second and third didn't want to do anything, also and I realised I needed insurance because that is what seemed to put them off. The forth actually wanted to do fusion on both levels from the back but was a really nice guy and I thought I was getting on the right track as I had insurance then. So I went for another opinion and found the neurosurgeon I am with now. He was the first one who wanted to do a disc replacement at L4-L5 with the fusion at L5-S1.
I am finally going to stay with this surgeon as I just can't afford to change doctors again and I believe I have found the right surgeon for me and I feel that is very important. He is going to help me financially and keep the cost down as much as he can and I have heard a lot of positive feedback from other medical people and from patients. He trained to be a doctor locally and I feel comfortable with him. I do believe this is all very important if he is going to be cutting me and I have my trust in him.
So I think that if you don't have faith in your doctor or if he is treating you badly you should think seriously about moving on and looking for someone who you can trust and one who will give you the medication or treatment you believe is right for you and that gives you some relief from pain.
I wear patches and use Norgesic regularly. have valium for at night and have Endone for BT pain. I also take Celebrex and Endep so this combination keeps me sane just until I have this surgery. I really hope it will help me, even if it takes the pressure off the nerves and gives me back my left leg and lets me have an occasional outing as I have been stuck at home mostly apart from visiting doctors and hospitals. I actually enjoy a walk through the shopping centre now as that is about the only social event on my calendar these days. I would love too meet a nice woman also. So I have a lot depending on this surgeon.
Allan
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25-Nov-2010: ALIF fusion L5-S1. 9 years of Chronic lower back pain. Nearly 18 months of pain across my upper pelvis, through my butt and down my left leg into my foot. Sciatica relieved by surgery.

 
Old 09-03-2010, 02:48 PM   #50
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Smile Re: How do you deal with doctors who don't take your pain seriously?

Wishing you the very best of luck with everything. I will take your advice but will wait until I have received letter for appointment from specialist as if I change doctors now that could slow things down even more, which after all this time of waiting I really don't want. I really hope that you get out and about after the op. I am lucky in one way as I have a very supportive hubby I wonder sometimes how I don't drive him mad when I get grumpy with the pain but he seems to take it all in his stride, hopefully this specialist will prescribe me something to make things easier

 
Old 09-03-2010, 08:04 PM   #51
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Re: How do you deal with doctors who don't take your pain seriously?

Yes it takes a while to see some specialists. I am very lucky with mine as he is a muscular skeletal specialist who works out of a medical clinic and bulk bills pensioners. So it costs me nothing and I can normally see him within a week of calling. He has done injections, arranged my referrals, and changed my medication until we found the right ones for me. I have seen a anaesthesiologist in the past who was a pain specialist who gave me a lot of injections. But he died from cancer and is sorely missed, a wonderful man, he was treating me and couldn't talk with throat cancer.
I am happy with the GP, Specialist and surgeon I have now. The surgeon is the most expensive though. But if he will do what he says I will be pleased.
This is a horrible thing to go through and I have called an ambulance a couple times. The pain is bad if you loose control of it. That is why you must have good doctors who will give you narcotic medication when it is needed. If not I would be in the emergency department on a regular basis. I use first the Norgesic regularly if not the paracetamol then a hot wheat bag. Then valium when I lay down and have spasms or leg pain and then endone if all else fails because I can only get that from my specialist every couple months. It is harder to get here that in the US and depending on the doctors. I don't like to take it too often anyway. It is easy to get reliant on the short acting meds like Oxicodone.
I hope you have luck with the specialist Delvon, let us know how you go. I know I have mentioned the meds I take but everyone is different and I found the specialist the best person to find the medication that suits you. Along with your own judgement as you know your body best.
Allan
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25-Nov-2010: ALIF fusion L5-S1. 9 years of Chronic lower back pain. Nearly 18 months of pain across my upper pelvis, through my butt and down my left leg into my foot. Sciatica relieved by surgery.

 
Old 09-03-2010, 09:17 PM   #52
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Re: How do you deal with doctors who don't take your pain seriously?

Given that you are on patches, norgesic, endone (oxycodone for our american friends) and Endep (amitriptyline) I think your pain IS being taken seriously, by atleast one doctor.

The ones who arnt interested in your pain are awful, the best way to deal with them is to move along and find someone else in my experience - trying to convince them or change them just upsets the both of you, wastes yourd and the doctors time, and the health insurers money

 
Old 09-03-2010, 11:26 PM   #53
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Re: How do you deal with doctors who don't take your pain seriously?

jonstar, it's sealover (the author of this thread), that feels her doctors aren't taking her pain seriously, not allan. just a friendly reminder....janiee

 
Old 09-04-2010, 12:38 AM   #54
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Re: How do you deal with doctors who don't take your pain seriously?

Yes and I'm sorry Sealover if it sounded like I was having the problems or stepping in on your thread. It sounded to me like the pain in your foot may be a little like mine. My foot can get so painful I can't put my weight down on it. And the more I walk the worse it gets. At the moment it is fine but once I start getting around a bit or even bending or lifting things like the groceries the pain in my leg and foot increase. It also seems to start on the opposite hip and travels across my waist and down my leg. But the pain in my foot can feel like it is totally different and as if it is burning sometimes other times it just hurts to stand on and my big toe feels numb at times. But I am sure mine is all from the sciatic nerve and just gets mixed up in my brain I suppose.
Anyway sorry for going on about my stuff too much.
Allan
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25-Nov-2010: ALIF fusion L5-S1. 9 years of Chronic lower back pain. Nearly 18 months of pain across my upper pelvis, through my butt and down my left leg into my foot. Sciatica relieved by surgery.

 
Old 10-05-2010, 05:46 AM   #55
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Re: How do you deal with doctors who don't take your pain seriously?

I am so happy to know I am not the only one treated poorly by doctors. You have to get the actual MRI CD's/x-rays etc. directly from where you had the test. And you have to go to a doctor who knows how to READ THEM. I will explain why...

I have gone to doctor to doctor. You say the word Vicodin and you are automatically accused of being a drug addict, a pill shopper. I rarely take the vicodin, makes me hyper, so I suffer. I tell them I am an ADULT, I am not pill shopping, I am Doctor shopping. Although, I cry a lot when i leave another doctors office, what choice do I have? Doctors have become like politicians, they think they are GOD!

After failed foot surgeries, which no ortho or podiatrist would treat, I was having problems with my knee and back. I couldn't sit, bend my knee etc.

An ortho sent me to a Pain Management doctor and he wanted to do Lumbar Sympathetic Block, without doing and MRI or nerve test! Imagine?

So I took myself to a neurologist, I had to go back 2 times before he did that eeg, or whatever that nerve test was, since it was fine, in my medical notes he said my pain was "MENTAL"! Than I went to another Pain management doctor and got the MRI on my back, it said I have stenosis. Than he scammed me into doing acupuncture, than he would do an epidural. he wanted to do 10 sessions, one per week, than do an epidural. I was screaming and crying in pain, I said I needed to do the epidural ASAP, he said no, try the acupuncture first! WHAT??? SCAM! I told this PM, I can barely walk, he said that is what you say, how do I know you are not lying? Fired him! I cried for days.

Than I went to a spine specialist, and showed him the MRI cd on my back and guess what? the Radiologist missed a big problem. So the REPORT was wrong!!! So I go to a PM to get an epidural in my back, you know how they say you may need 2-3 epidurals to see if they work? Well, the nurse tells my Mom, she is skinny, we don't want to give her so much cortisone. I called the spine specialist and his physician assistant, said yes,you may need 2 or 3, I said they won't give me a second one. Than the PM called and said they are WILLING to try a 2nd epidural. Well, I am NOT willing to beg. It was like going to your pharmacist with a prescription and the pharmacist saying take this instead.

2 months after this, I found another PM, had another epidural yesterday. I am not too thrilled with this PM as I feel he does not explain things that much, but he knows I suffer.

Another thing I am tired of, the people that work in the doctors office. Overworked and underpaid they say. Yet, they are the ones dealing with our medical records.

I know in Florida all malpractice is online, so you can check out the doctors. I had to come here, since I can barely walk. As for other states I think we should all put up a post on where you can find out doctors history.

Last week I went to a DO to manage all this stuff.

As far as I am concerned this is the USA, i will go to doctor to doctor, obviously I have had slow success in constantly changing doctors.

I read a lot of books, this is the only thing that has kept me sane, i can barely sit and type all this.

 
Old 10-05-2010, 05:56 AM   #56
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Re: How do you deal with doctors who don't take your pain seriously?

I am so happy to know I am not the only one treated poorly by doctors. You have to get the actual MRI CD's/x-rays etc. directly from where you had the test. And you have to go to a doctor who knows how to READ THEM. I will explain why...

I have gone to doctor to doctor. You say the word Vicodin and you are automatically accused of being a drug addict, a pill shopper. I rarely take the vicodin, makes me hyper, so I suffer. I tell them I am an ADULT, I am not pill shopping, I am Doctor shopping. Although, I cry a lot when i leave another doctors office, what choice do I have? Doctors have become like politicians, they think they are GOD!

After failed foot surgeries, which no ortho or podiatrist will treat, I was having problems with my knee and back. I couldn't sit, bend my knee etc.

An ortho sent me to a Pain Management doctor and he wanted to do Lumbar Sympathetic Block, without doing and MRI or nerve test! Imagine?

So I took myself to a neurologist, I had to go back 2 times before he did that eeg, or whatever that nerve test was, since it was fine, in my medical notes he said my pain was "MENTAL"!

Than I went to another Pain management doctor and got the MRI on my back, it said I have stenosis. Than he scammed me into doing acupuncture, than he would do an epidural. he wanted to do 10 sessions, one per week, than do an epidural. I was screaming and crying in pain, I said I needed to do the epidural ASAP, he said no, try the acupuncture first! WHAT??? SCAM! I told this PM, I can barely walk, he said that is what you say, how do I know you are not lying? Fired him! I cried for days.

Than I went to a spine specialist, and showed him the MRI cd on my back and guess what? the Radiologist missed a big problem. So the REPORT was wrong!!! So I go to a PM to get an epidural in my back, you know how they say you may need 2-3 epidurals to see if they work? Well, the nurse tells my Mom, she is skinny, we don't want to give her so much cortisone. I called the spine specialist and his physician assistant, said yes,you may need 2 or 3, I said they won't give me a second one. Than the PM called and said they are WILLING to try a 2nd epidural. Well, I am NOT willing to beg. It was like going to your pharmacist with a prescription and the pharmacist saying take this instead.

2 months after this, I found another PM, had another epidural yesterday. I am not too thrilled with this PM as I feel he does not explain things that much, but he knows I suffer.

Another thing I am tired of, the people that work in the doctors office. Overworked and underpaid they say. Yet, they are the ones dealing with our medical records. Some of them are so RUDE, that even if you may like the doctor, you have to deal with them!

And what about Physical Therapist? The last PT group I went to, one told me Pain can kill you, another one said maybe your immune system is breaking down. Lovely!

I read a lot of books, this is the only thing that has kept me sane, i can barely sit and type all this.

 
Old 09-23-2011, 09:48 AM   #57
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Re: How do you deal with doctors who don't take your pain seriously?

what is rsd? can you explain please? I have chronic pain in my rt. kidney area, have been seeing multiple docs, had multiple labs and xrays and ct scans, various pain meds and zero luck with a diagnosis. i am looking into getting accupuncture and an mri next. any adivice you have i'd greatly appreciate. thanks!

 
Old 09-28-2011, 06:40 PM   #58
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Re: How do you deal with doctors who don't take your pain seriously?

It kills me how hurtful a doctor's words can be. When you're in a certain level of pain and your listening to a doctor tell you that it can't be this or it can't be treated with pain meds (when you've tried every other solution) and he isn't listening to a thing you've said it is both frightening and infuriating. I just lost my doctor who I loved and got stuck with his to colleges one who believes I can't possibly be suffering from chronic pelvic pain due to traumatic nerve damage and the other who barely spent two minutes with me. I'm know looking for a new doctor because I can't deal with the incompetence of my current doctors. However, I'm scared as heck that I'll run into issues with my newest doctor. I hope someone on the bored will be able to point me in the direction of a good pain doctor in my area (as soon as I've made enough posts :P). At this point I do not want to draw out of a hat.

 
Old 04-19-2012, 12:30 PM   #59
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Re: How do you deal with doctors who don't take your pain seriously?

Dear Sealover, That type of attitude is so wrong,disrespectful and patronizing.It is bad enough,having such pain and no answers. To me,it shows a doctor,that can't figure out what the problem is,doesn't really care,and therefore doesn't validate your pain. i went through a similar situation,as to what the Dr. wrote in my chart. She wrote,in a mocking way,that I thought my pain was serious... didn't even say that. I told her,that I know my own body,and having this type of pain,isn't normal. Unfortunately,I lost my health insurance,and am in a clinic for uninsured,so have to take what I get. She even told me,that the clinic doesn't do pain meds. I am on tramadol,that doesn't help at all. Quess the way they see it,if you don't have insurance,you don't have the right to have your pain treated,or they think if you don't have tons of money,you are probably an addict.Very frustrating. Change dr's. I would if I could.....

 
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