Hi. I've had chronic abdominal pain for 2 1/2 years now. Mostly on the right side. I've had numerous CT Scans and other tests done but they've all come back negative. I was finally diagnosed with Fibromylgia a year ago. Sometimes I wonder if that's really what I have. Staying busy and exercising helps but my biggest obstacle is that I can not sit for more than 10-15 minutes without having to apply heat to my abdomen (hot water bottle, heating pad etc). I begin a Pain Managment course next week. Hopefully that will help.
Does anyone else have a sitting problem due to abdominal pain, or know anyone who does? Thanks!
I'm not sure about the sitting part but....have you tried any elimination diets? My daughter has chronic abdominal pain(mostly on the right) and all her tests have come back negative. Even with the negative results the docs have recommended removing sugar, dairy and/or wheat. We've tried the dairy and sugar with little results and are moving on to the wheat. Another idea is low cortisol and/or thyroid. Or nerve pain coming from your back. There are so many things it could be. does it feel muscular? Do you have nausea?
Good luck your search. I hope others have better ideas.~Mush
undiagnosed lung and back pain after pneumonia in '03, tmj, migraines,(two failed surgeries for) Kienbock's disease
Hi TeacherLynn, Welcome. I know this may be a delicate topic, but I was wondering, have you ever been screened for IBS??? While there is no real definitive test for it, sometimes a colonoscopy is used to rule in/rule out the possibility and a gastro doc will also use history and symptoms to diagnose. There are varying levels of IBS, from mild to severe, and it can be very painful. Some people have IBS w/constipation and some have IBS w/diarrhea.
The reason I ask, is because I have moderate IBS and I sometimes find it difficult to sit for long periods of time when I am having a flare-up. I will get stomach pain and feel very bloated and uncomfortable. Mine tends to be the type w/constipation, so that can add to the discomfort. I used to be the opposite, but after years of taking opiates/opoids for my chronic pain, I guess it was inevitable.
I don't know if this is helpful and this may not be the reason for your pain, but I just thought I'd throw it out there as a possibility. Either way, I hope you get some answers when you see your new pain management doctor. Please let us know how your appointment went. Take care, CMP/MM
Thanks so much for your responses!
I have had IBS with constipation for 20 years. But never had chronic pain or trouble sitting until 21/2 years ago. Tried eliminating foods with no relief. I also had a hida scan to check gallblader when the pain first started.
But I appreciate all your suggestions. Hang in there.
My second suggestion would be a possible ovarian cyst or cysts. They can cause lower back and abdominal pain as well. They are benign cysts that some women experience with hormone fluctuation as well as other conditions.
Sorry if I sound like I'm grasping at straws, but I guess I'm just going by my own experience. Even though you've had CAT scans, they don't always show up on them. Mine took several ultra-sounds, both abdominal and trans-vaginal. (sorry if that's TMI)
Just another thought. Hope you can find an answer. Take care, CMP/MM
Hi bb0165. Yes, I still have chronic abdominal pain since March 2006. I've been diagnosed with fibromyalgia. Probably because doctors can't figure out anything else. I've seen many, many doctors. I also have shooting pains that go down my legs, mostly the right one. I've had 3 epidural shots in my lower back but they didn't really help me. Exercise, staying busy and applying heat to my abdomen are the only things that help me get through the day.
Thanks for your answer TeacherLynn...
Sorry you didn't get any better ...
And the ambiguity of the fibriomyalgia diagnosis doesn't help
You said you had shot in your lower back...
Is the abdominal pain is in the lower part also ?
My pain is mostly in the upper part of the abdomen (epigastric region)
mostly on the right side and affects low ribs up to the spine...
But even if the pain is in the upper part...
I still cannot wear normal pants... so I have to wear very loose sweat pants...
Do you, also, have problems with clothing ?
Did you check with your doctors for the folowing syndromes :
- Thoracolumbar Junction Syndrome
- Abdominal Cutaneous Nerve Entrapment Syndrome
< edited >
Last edited by hb-mod; 04-18-2011 at 08:47 AM.
Reason: Please don't post unapproved website links, per Posting Policy. Thanks.
Oh, look into Pudendal Neuralgia and Pudendal Nerve Entrapment. It's rare, but it's pelvic pain (mine was on one side only), mine also shot down the leg on the side of the pain, and one of it's biggest signs is that it's worse when sitting. I had this condition and went to doctor after doctor with no clue. They diagnosed me with Fibro and IBS, but I knew I didn't have those, and it ended up being the Pudendal nerve, trapped by surrounding ligaments, and firing off nerve pain constantly.
It was hard to find a diagnosis, took me about 4 years, because not a lot of doctors have even heard of it. I had to travel to another state, but it was worth it. They did nerve decompression surgery and were able to wrestle the nerve out from it's entrapment. It's a long recovery, but if you can get to a doctor that knows what it is, they can do a nerve block injection and that can help you figure out whether you have it or not, before committing to surgery.
I know how horrible finding a diagnosis is. I hope you find it. Hang in there.
Last edited by Scootmer; 04-23-2011 at 04:29 PM.
Could you tell us what kind of doctor did you see (what specialty) ?
And was that in a pain specialized clinic ?
Sure, he's a gynecologist at the Center for Pelvic Pain in the Greater Baltimore Medical Center (in Maryland).
Edit to add: I just noticed you're male, so gynecologist isn't very helpful for you, but it is also a male condition and from what I understand, the handful of doctors that know about this condition are different types of specialists. I think it's just so rare that it doesn't fall under one specialty. There are lists of doctors that you can find if you search google for "pudendal neuralgia doctors." I've read that it's not unusual for people to fly to other countries even, to get help for this. And my doctor was aware of this, so he saw me for three hours on my first visit, which I had most definitely not seen before.
Last edited by Scootmer; 04-24-2011 at 10:58 AM.
Reason: added paragraph
Pain coming from the SI joint (sacroiliac joint) often creates a confusing pattern of back and pelvic/abdominal pain. I have also had pain in my thighs and down my right leg as a result of this. The pain can be especially strong in the femoral nerve area for me as well. I had an SI joint injection a few years back and, it was not until that moment, that I realized that the SI nerves travel many places. This is often an overlooked cause of both back and pelvic pain. Physicians tend to diagnose lumbar problems instead and place injections into this area. Oh, and sitting is a killer. Hope this is helpful for someone browsing this thread. Lisa
I had chronic rt abdominal pain for about 2 yr. First time it was severe they tested for appendicitis, it was not the cause. Then I had colonoscopy with polyps, but that was not the cause. Then I had gallbladder symptoms and had an inflamed gallbladder which was removed. But that didn't fix it. Finally my wonderful ob/gyn said "everything is pointing to the ovary though I see nothing wrong with it, if you are willing I'll take it out laproscopically". I agreed, simple outpatient surgery, pain went away, never came back. Interestingly the ob/gyn said nothing was wrong upon opening me up, the lab came up with no abnormalities after evaluating the ovary in every way they could, but his theory is it was irritating some nerve that we just cant see (in it's movement, position, etc). I will stay with this ob/gyn for as long as I can , he was willing to take a risk (as was I) and it worked. He said when insurance wanted a justification after the surgery he said "all I can tell you is it has worked, she has had no further incidents of abdominal pain as you can see from the cessation of testing"