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Old 08-05-2008, 08:07 PM   #1
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Developing Arm Pain

Everyone,

I've not written much about this, but it's time - and I may see a doc on Monday about it. I already have my regular monthly pain management follow-up appt that day, so I could just add this to the agenda.

I have been developing serious arm/elbow pain - left side. It's just getting worse and worse. Actually, it scares me. I don't know if this makes sense, but it feels rotten. Really. The pain is in and around my left elbow, and is now preventing me from lifting my left arm sometimes. Sometimes I can't even hold the left pages of a magazine, with the right hand holding the right pages. It hurts that much. It feels like a "sick" pain. Not like a tear. Not like a break. Not like tendonitis. It feels rotten - like it might feel if it was going to fall off. I know this sounds weird, but it's the only way I can think to describe it. This is the arm in which the bone scan showed to have very poor density. I don't know guys. I will bring it up if I don't feel too stupid trying to describe it. What would a doc think about someone who describes their pain as sick, or rotten. I mean, I've had all kinds of accidents and injuries and surgeries while at this medical practice. They know me. But I feel so stupid going in and saying, "hey doc, my arm feels rotten, like it's gonna fall off."

Anyway, please be thinking of/praying for me, because this is no longer minor, the pain level is rising fast.

Thanks,

steve

 
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Old 08-05-2008, 09:07 PM   #2
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Re: Developing Arm Pain

Hi Steve - does is feel like a bruise -put a finger on each side of your elbow bone and push and see if it feels like you are pushing on a bruise - this is the kind of pain I have with my RA -I feel bad for you Sugar - you do not need any new pains - I know when my elbow is inflamed(nothing like what you are taking about) I am just miserable - I never thought too much about my elbow until I started having problems; pain, dropping things, putting something on over your head - that's a bummer
well I will be praying for you that it is just a little summer "love" and will go away - how long has this been going on - was it sudden onset and then rapid rising pain levels or just a gradual onset that is starting to get out of hand
huggs Aver

 
Old 08-05-2008, 09:42 PM   #3
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Re: Developing Arm Pain

Steve,

Do you think it is possible that you might have an odd fracture? Not like a regular break, but more like a deterioration of the bone to the point where it is actually becoming porous and/or crumbling? I don't know if I'm totally off base, but going by your description that is all I could think of.

Whatever it is, I think it is perfectly fine to describe it like that. I'm sure your doc has heard a myriad of different comparisons in his/her career. I doubt this would cause him/her to think less of you. If anything, it might be just this description that helps diagnose the problem. So I say, Go for it!

I hope you know that I am always thinking of you and praying for you, and I will add some additional prayers for this appointment. Try not to stress too much about it for now. You have so much on your plate right now. Good luck at the appointment and please let us know how it goes, when you get a chance. Many prayers and many hugs, CMP/MM

 
Old 08-06-2008, 07:29 AM   #4
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Re: Developing Arm Pain

Steve,
I am so sorry to hear of the elbow issues! I think from what you describe it is different then what I had going on in my lebow, but I tell you what....when my elbow had the compressed ulnar nerve in the Cubital tunnel I swear the pain was sooooooo awful I just wanted to disconnect the arm at that elbow and set it down and walk away! I know thats not funny! But I feel for you! I hope the docs will look into some of the things you have going on and find the source so they can better address all the things going on.

As always I am praying for you

Chrissy

 
Old 08-06-2008, 08:04 AM   #5
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Re: Developing Arm Pain

It may not be as bad as you think. Before I was diagnosed with Hashimotos Disease, I too had the same arm pain, I went to the doc , he told me I had tennis elbow. The pain only got worse, eventually he gave me a shot of cortiazone in it. That hurt like heck and only got worse. I then went to another doc and he ran bloodwork. My tsh was up to 30,000 and I was in thyroid failure. After reaching the dose of 112mcg a day everything went away. Right now I am to the point where I went from hypo to hyper so I am lowering my dose down to 100mcg. If the pain comes back I have to up it. I know its a terrible pain but have your doc check you for Hashimotos.

 
Old 08-06-2008, 11:55 AM   #6
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Re: Developing Arm Pain

Will do blondee.

Thanks!

steve

 
Old 08-06-2008, 01:57 PM   #7
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Re: Developing Arm Pain

Steve,
as bad as my arms/hands problem is since end of January - ex ray showed nothing. Only MRI showed this horrible turned (sp?) muscle/ligaments of both elbows and pretty thick tears/ruptures.
I will try to explain how my pain feels even though pain is beyond words can explain.
I can't put down my pg when I go to the lady's room at night or day; I can't move spoon to my mouth, my elbows stocked in one position and to try to open or close them is extremely painful. The top bones on them are very painful and very swollen, hot to touch. I can't hold a cup with one hand, i need help with brushing my teeth or taking a shower because I can't use my arms/hands. Pain goes from neck down to arms, elbows, hands and fingers especially my 3 last fingers.
No words how much pain I am in at night. I have my arms on pillows to keep them in certain position and this position must be changed 20 times a night.
I also clinch my fists very-very tight. I can't uncleanch them in the morning without help and tears...

Surgery will need to be done on both elbows, but my Doctors also believe that I have a spinal nerves involved in it too due to symptoms.

I feel my friend for you. I know what you are going through. I wish I could help you more... I hate to say this to you, but they all so apologetic to me saying how much DRs still don't know about their patients problems. My app yesterday was with a great Dr, arm/hand specialist at HSS and he felt so bad for me. He says that when he saw me in a waiting room he saw how much pain I am in looking on my face, but he doesn't have an easy answer for me.

Please keep us posted and good luck to you, Steve!

 
Old 08-07-2008, 09:29 AM   #8
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Re: Developing Arm Pain

Steve, It sounds like the pain you are describing is very deep. It almost sounds like the pain I get in my shoulder. Hurts like mad. I am glad you are bringing it to your doctors attention, dont let it go. You do not need any additional pain. I am dropping things more & more & the pain is just getting worse. I so wish I would have had some one take me serious along time ago. I encourage everyone I come across to never put any pain off form being checked out. I dont want want to see anyone in my shoes. Let us know what your doctor says. God bless, Sammy

 
Old 08-08-2008, 08:59 AM   #9
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Re: Developing Arm Pain

I so appreciate these posts.

In your attempts to understand this pain, each of you has touched on some aspect of it. MM talks about the poor bone density, and possible joint degradation, and I think that is very possible. After all, I do have osteoarthritis in both knees, and, as far as I know, this is a condition that can spread.

Aver mentions a bruised feeling. If I grab my left elbow at the top and bottom and just hold it, w/o squeezing, it makes me come right out of my seat. Really.

Chrissy wanted to just recycle her arm, and I feel the same way now.

Blondee talks about tennis elbow, but really worse. I've had both tennis elbow and golfer's elbow, since one is on top of the joint and the other is below. It's painful in both areas now.

Moldova can't extend her arms. Neither can I. There used to be a time when my elbow would feel "like a knuckle needing to be cracked," and I would just extend it fast and the pop would relieve the discomfort. That's not even possible eny more. Not only can I not extend or straighten it, but I can't even consider straightening it out. Even lifting it hurts a lot. And I can't close it either. I am fortunate that there are times when it doesn't hurt bad. If the conditions are just right, and I am at rest and in the right position, my arm can feel somewhat comfortable. But when it's hurting, there is no comfortable position.

Sammy - yes, it is very, very deep. On the surface and also deep. The whole joint is painful. I feel so bloody wussy complaining like this. The only reason I even bring it up is because the way it hurts it is scaring me. I've said before that it feels "rotten." That's still the case. It wouldn't surprise me for some doc to open it up and find gangrene or something. I had gangrene when an external fixator was pinned to my tibia after a past surgery, and it wasn't unlike this. Typing is so hard. Just doing this causes there to be a hard squeezing pain in the center of the elbow. And my elbow isn't even moving, just my fingers and hands.

I appreciate you all. I will bring it up on Monday. I may not write much more about it, but I am so thankful to all of you for your support. You are all my heroes.

steve

 
Old 08-08-2008, 09:41 AM   #10
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Re: Developing Arm Pain

Steve,

While reading this most recent post, I got thinking again. (I know..... dangerous!) I have times when my arms (most often my left arm) feel very much the same way. I've discussd this with my PM on several occasions. At times, I have been convinced, that it has been RA or Lupus or MS and his response to me each time has been..... "MM, I know you must think that I sound like a broken record, but believe me, it is all related to your chronic myofascial pain. At it's core, it is musculoskeletal."

He has always told me that he firmly believes that most every chronic pain patient develops some level of myofascial pain, because of the very nature of it's one (known) cause....... un-treated or under-treated pain. His theory is that it is truly a rarity for CPer's get the appropriate pain relief throughout their entire pain journey. Especially in the beginning. I have to agree.

I may have missed something in your posts, but I don't remember you ever mentioning taking a muscle relaxer. Do you? Or, have you ever? I just wonder if this might be a help to you. Having tried (extensively) almost every MR that is out there, I've found that Soma is the best MR there is. Obviously, not every person has the same experience with the same meds, but you never know........

Once again, this could be completely off the mark. You know me. I tend to think too much.........I think?? Anyway, take from my ramblings what you like, and by all means disregard the rest. I would fully understand.

I hope you are having a decent pain day. And I hope the training is going well. Prayers and hugs, CMP/MM

 
Old 08-08-2008, 10:09 AM   #11
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Re: Developing Arm Pain

MM,

I have very limited experience with MRs. One time when I hurt my back I was given flexeril. That darned thing knocked me out for over two days. I am very reluctant to take that kind of med - just too potent. I was also given something forte, which helped very little. Another was trazadone, although I wonder if that's an MR.

I don't like meds that make me feel drugged, especially when it's at night and I still feel that way the next morning.

Are there MRs that don't make you feel so drugged and out of control? How is Soma in that regard?

steve

 
Old 08-08-2008, 10:41 AM   #12
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Re: Developing Arm Pain

I think almost every good MR will make you a bit drowsy/groggy, at least in the beginning. I had moderate fatigue with Soma. But after a month or so, it was fine. I know I have heard from others that Soma was very sedating for them, but could take Flexaril or some other MR with no problem.

Flexaril is a good MR, but it does the same to me as it did to you. And the sedative feeling doesn't go away with use for me. I still take it once in a while for a "break" from the Soma. (tolerance) But I always go back to the Soma. Nothing else works as well for me. It is different than most MR's in that it targets some of the same receptors as opiates/opioids.

Trazadone is a tri-cyclic anti-d, by the way, and I've had it Rx'd for me in the past. More to help me sleep than anything. I didn't like it much.

There are other MR's that are supposed to be less sedating, but I've tried darned near every one and have had little luck with any of them. There's skelaxin, methocarbomol (Robaxin), Zanaflex, Norflex and several others.

I fully understand why you don't like the sedation. Especially because of work. But as I said, you never really know how sedating it will be unless you try it. Just thought I'd run it up the flagpole........ Hugs, MM

 
Old 08-08-2008, 04:22 PM   #13
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Re: Developing Arm Pain

Steve you might consider taking like the soma at bedtime. Flexeril and soma are both sedating to me but the soma does not give me the morning after grogginess like flexeril.

Sorry to hear about the arms. It sounds like you need to have them checked out.

 
Old 08-09-2008, 01:51 PM   #14
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Re: Developing Arm Pain

Steve,
what was done to check this out? Did you have MRI done already? IF yes, what did it show?
If you interested I will tell you how bad was my MRI results, but at least it showed right the way the problem.
They couldn't figure it out how did I get those injures, but thank God now they have an idea and hopefully treatments I will go through will prevent future damages.

Best of luck to you!

 
Old 08-09-2008, 04:15 PM   #15
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Re: Developing Arm Pain

Moldova,

Can't post much because of a migraine.

No tests have been done.

steve

 
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