It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Chronic Pain Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-08-2008, 02:18 PM   #1
Facilitator
(female)
 
Moldova's Avatar
 
Join Date: Dec 2006
Location: N.J.
Posts: 3,654
Moldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB User
Ex, how are you doing?

Ex,
As far as I remember you are not on Fentanly patch anymore...
Do you mind me asking how are you doing on your new meds? What are you taking and how much?
Do you feel it's working for you pain wise?

Best wishes and hugs...
M.

 
Sponsors Lightbulb
   
Old 08-08-2008, 08:05 PM   #2
Inactive
(male)
 
Join Date: Jan 2008
Posts: 4,017
Executor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB User
Re: Ex, how are you doing?

Hey Moldva.....Thanks for asking. I'm doing ok....Some good days, some bad. I think we all are in the same boat in that regard. I changed off the patch earlier this summer and my Doc changed me to Avinza. It's worked well, but the initial dose wasn't high enough. At first, I was kinda mad/disappointed that he under medicated me, but after asking him about it, he was very frank and said "knock on wood, but in 25 years of PM, I've never killed anyone. It's always better to cause the patient some discomfort than heart failure." Needless to say, it gave me a different perspective. He went on to say that even with opioid tolerant patients that different people react differently to wholesale med changes.

I like the concept of a pill vs the patch. I never did like the idea of something stuck to you all the time. However, it did work well and was very consistent. I'm thinking seriously of going back in the fall. There were also some "demand" issues in that finding my brand and strength got to be very difficult.

Thanks again for asking. Take care.

Ex

 
Sponsors Lightbulb
   
Old 08-09-2008, 11:33 AM   #3
Facilitator
(female)
 
Moldova's Avatar
 
Join Date: Dec 2006
Location: N.J.
Posts: 3,654
Moldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB User
Re: Ex, how are you doing?

Ex,
so if I am correct you feel like patch took better care of your pain than pill? This is the reason you want to go back?

I think your DR is very smart and that is why he is in business for so many years. Remember what happened to me when they increased my Fentanyl patch by 25? I never been more scared than that day; I was told I am lucky I am alive and only because they rushed me to the Hospital on time.
I still remember this wonderful EMT lady who took my hands and said prayer after prayer until with got to ER.

I believe in starting slow; I know we don't want to feel pain and want meds to take care of our pain ASAP. I learned in hard way what can happen to some individuals.
I know some people here are OK with going up fast and aggressive, but all depends on a person.

What bothers you the most these days? How is your pain levels? Please, don't mind me asking. I do it only because I care... You are always here for each of us and never complain about your own problems...

I also want to say ones again: thanks to you for being such a wonderful support to all of us and thank you for sharing your knowledge and wisdome...

Best wishes to you, dear heart...
M.

 
Old 08-09-2008, 09:34 PM   #4
Inactive
(male)
 
Join Date: Jan 2008
Posts: 4,017
Executor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB User
Re: Ex, how are you doing?

Quote:
Originally Posted by Moldova View Post
Ex,
so if I am correct you feel like patch took better care of your pain than pill? This is the reason you want to go back?
I think so....I think it is the most precise dispensing system out there. Conversely, pills are dependent upon metabolism and other factors. As we've discussed many times over, most of the LA pills are 8-9 hours, which almost always puts one into 3 x day. Taking something regularly 3 x day is not only a hassle, but can be forgotten...Or, at least I do. Missing by just an hour or two can make a big difference in one's BPL.

However, the patch works best when the temps aren't that hot and one's activity level is lower....No way it works for me in the hotter months.

Quote:
I think your DR is very smart and that is why he is in business for so many years.
I feel very fortunate to have him....He's been in the business for a long time and really knows the ins and outs of PM. What's interesting is that I hear fellow patients in the waiting room complain about him because he doesn't believe they are in pain and thus, there have been confrontations....A totally different side that I haven't seen! Very interesting to say the least. I just keep my mouth shut and let them complain to one another. I do think there are a certain % of "seekers" out there, unfortunately.

Quote:
Remember what happened to me when they increased my Fentanyl patch by 25? I never been more scared than that day; I was told I am lucky I am alive and only because they rushed me to the Hospital on time.
I still remember this wonderful EMT lady who took my hands and said prayer after prayer until with got to ER.
Yes, I remember like it was yesterday....I was very worried. I'm glad all worked out. Your story is a perfect example of how different meds affect different people differently. I know we all get caught up in sometimes of saying "you should take this, or you should take that." In reality, it's best to go slow like you say. Some may get away with fast increases, but I think it's far and few in between. Ironically, I think GPs are more likely to make radical changes than PM Docs. However, PM Docs are more likely to dispense higher amts when needed. Kinda weird isn't it?

Quote:
What bothers you the most these days? How is your pain levels? Please, don't mind me asking. I do it only because I care... You are always here for each of us and never complain about your own problems...
No problem with asking....I appreciate you taking an interest. I've gotten to the point now where I know what most of my "triggers" are re: my pain.....And I try to avoid / minimize them as much as possible. Sometimes, it's not possible, however, especially if you want to get out and enjoy life a bit.

Quote:
I also want to say once again: thanks to you for being such a wonderful support to all of us and thank you for sharing your knowledge and wisdome...
Thanks for the kind words. I enjoy helping people and given some of the bad cards I've been dealt in life, I've had to "re-focus" and "re-align" myself given my condition. Although I have some physical limitations, I feel like my mind is still with me (maybe not always...LOL) and that I can be a resource to some. I'm not a big TV watcher....Too boring for me....The computer keeps me interested and tuned in....It caters to my over reactive mind and fast thinking....Sort of ADHD in a way...The computer allows me to "surf" all over the place and pick and choose what I like.

Best regards,

Ex

Last edited by Executor; 08-09-2008 at 09:40 PM.

 
Old 08-10-2008, 01:59 PM   #5
Facilitator
(female)
 
Moldova's Avatar
 
Join Date: Dec 2006
Location: N.J.
Posts: 3,654
Moldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB UserMoldova HB User
Re: Ex, how are you doing?

Thank you Ex, for your respond.
I am glad that everything is under control with you.
I think that every PM DR has those patients who are very happy with him/her or those who complain that DR is not compassion, doesn't believe their pain, etc. My last app I met a lady in a waiting area, who came with her husband, about 46 years old, who talked with reseptionist about her previous PM DR and how cold and horrible he was. She came first time to see my PM and asked me if I like him. I told her that I am with him for 3 years already and I am getting excellent care; no complains.

Well, they called her name and 20 minutes later I heard so much noise inside that office and this lady runs through the waiting area with tears and anger... Nurse told me that during her app she asked DR to prescribe her new meds because she is not satisfied what her previous DR gave her. My PM told her she has to give her blood and urine speciment first and than sign contract and they will go from there. Well... she refused to do so! It was clear to me and everybody else what this lady was looking for... Very sad.
I am not saying that every PM is excellent; unfortunatelly some of them not as compassion or carrying like we would like him/her to be. It happens for sure.

I am very fortunate so far. He is a very professional, very knowlegable, tough, but very compassionate and has very open mind. I never had a problem with him; he is the one who offers new meds, meds adjustments, talks about new research, new tests available, new treatments, sends me to see other specialists if he thinks I need it...

He is the one who believed all this time that i have some underlying problems and insisted me to go and to be check for MS. And how right his was! Not only MS, but severe case of RA was discovered. I was told so many times before by other DRs that no reason to check me for MS or RA because they believed that my problems are only because of failed spinal surgeries syndrome and damaged nerves...

Therefore I consider myself a very lucky too. If I wouldn't like him professionaly I wouldn't stay with him or any other DR; I believe in professionalism at any field, especially medical.

Best of luck to you and thanks again! Stay well

M.

 
Old 08-10-2008, 07:16 PM   #6
Inactive
(male)
 
Join Date: Jan 2008
Posts: 4,017
Executor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB User
Re: Ex, how are you doing?

Quote:
Originally Posted by Moldova View Post
I think that every PM DR has those patients who are very happy with him/her or those who complain that DR is not compassion, doesn't believe their pain, etc.
Yes, I think you correct. The stories one hears in the waiting room can be amazing. I come across about one for every time I go (each month)....Sometimes two!

As I've posted before, if PM Docs took a little blood @ every appt....If it became standard practice, I think it would weed out a lot of stuff, IMO. Then, with those who are left standing, they could really concentrate on good PM. I understand contracts, random UAs, and other routine policies....Much of which are just scare tactics. But, I'd like them to move to consistent testing....We would get right to the heart of the matter....And quick.

Take care, and I hope you start to feel better.

Regards,

Ex

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
What am i doing wrong? Itsy Buggy Weight Loss 0 04-25-2010 11:12 AM
suggestions for a job/biz "doing what you love"? davidh30 Healthy Lifestyle 4 10-30-2009 10:46 AM
Over Doing It!! cindys601 Multiple Sclerosis 8 11-05-2007 03:16 PM
Help!!!! Teenage daughter doing drugs bren7 Family & Friends of Addicts and Alcoholics 14 09-24-2007 09:04 AM
Doing Well... newwoof Multiple Sclerosis 12 06-17-2007 01:43 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 01:32 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!