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Chronic Pain Message Board
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Old 08-13-2008, 11:15 AM   #1
Senior Veteran
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Join Date: Jan 2005
Location: Phoenix, AZ
Posts: 675
schao HB User
Hi Everyone........

Just wanted to give a formal hello to all the CP'ers on this board

I've asked random questions here and there but haven't participated otherwise very much.
Quick summary of me and my pain: 2 years ago I started to have severe lower back pain and excruciating leg pain at night time, some during the day but much more prominent at night. So, I go to tons of doctors including be evaluated and seeing tons of specialists at the Mayo Clinic. The only thing to be found at all is minor arthritis in my hips.
I've had TONS of blood work, MRI's, CT Scans, Bone Scan, Xrays, Pet Scan, and who knows what else and we have no idea what is causing all of my pain. Fibromyalgia has been thrown out there, but I'm not sure about that. I do have some other symptoms, but the pain is my main issue right now.

So, after a year of being in pain I finally went to a Pain Mgmt. doctor, and he has really been a god send to me. I'm 29 years old, so a lot of doctors judge me and throw anti-depressants, etc. at me b/c I'm "too young" to be in this much pain and not know why. I do take an anti-depressant, but generally I'm a very happy person...even when I'm in tons of pain I try to stay upbeat.

My hubby and I are wanting to start a family soon, I just don't know how I would deal with that and the pain. Maybe it would get worse, maybe better, maybe stay the same....I don't know.
When I have REALLY bad pain days I start thinking that I have to have some serious disease, b/c how can I be in this much pain for no reason??
Today is one of those days...thinking I have cancer or something like that and they just haven't found it yet.
I used to read a lot on the internet, but not anymore...b/c all it does is scare me and that's the last thing I need. I would hope with all of the tests I have had done if it is something serious they would have found it by now.

Ok, now I'm just rambleing....sorry.
Just wanted to say hello and want to become a part of this family

schao

 
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Old 08-13-2008, 01:21 PM   #2
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Join Date: Nov 2007
Location: USA
Posts: 308
painaway HB User
Re: Hi Everyone........

Shao...Welcome to the family!!! You're definitely in the right place, girl. The people here are AMAZING. I'm sorry to hear you are in so much pain, but let me tell you a couple of things that might ease your mind a little...

1. The Neurosurgeon/PM doc I saw when I was pregnant (sciatica) told me that scans are a good tool, but he sees SO many people whose MRI or CT don't show anything who are in excruciating pain. Also, he said there are those he sees who have TERRIBLE looking scans, who aren't in much pain at all! So, it's all just a bunch of nerves in there that can be affected with the slightest abnormality, depending on where it is.

2. Don't worry about cancer. If you've had a PET scan and scads of blood work, you'd know by now, girl. The PET scan differentiates tumor tissue from other tissue (normal or scarring).

Sometimes, we just hurt. I don't know why. I'm telling you, when I had sciatica during my pregnancy, I had severe lower back pain, and pain down my leg...even tingling in my toes and some numbness at times. My scans, however, looked good. After I had the baby, and nothing was left to press on the sciatic nerve, I was automatically better.

I whole-heartedly believe that the Good Lord has a plan for you. A plan to start a family and a plan to feel good during the process! Just let go, and let God. I'll pray for you, my friend.

 
Old 08-13-2008, 05:04 PM   #3
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Join Date: Mar 2008
Location: USA
Posts: 714
Toonces1 HB UserToonces1 HB UserToonces1 HB UserToonces1 HB UserToonces1 HB User
Re: Hi Everyone........

Hi Schao- I can really feel where you are coming from. I, too, am pretty young for this, and am struggling with some of the same issues as you are. My husband and I want to start a family (by adoption) in the next year or two, and I have been really worried about how I will do it if I am in this much pain. Many days I try to imagine how I would be dealing if I was responsible for a child. That is one of the things I have told my doctors, that this pain could prevent me from having a family. Have you been taking a long-acting pain medication? Do you want to get pregnant while taking medication? I know there are a few very good threads on this board about pregnancy and pain meds. Tell us more about your situation.

 
Old 08-13-2008, 09:46 PM   #4
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Join Date: Feb 2008
Location: NY
Posts: 1,884
cmpgirl HB User
Re: Hi Everyone........

Hi Schao, Welcome to the boards! I can relate quite a bit to a lot of what you posted. I would really like to hear what symptoms you have, if you get a chance. I am certainly not a doctor, but I went through so much testing and poking and prodding, before I was finally diagnosed by my current PM doctor.

What I have is called chronic myofascial pain syndrome. Like Fibro, it has been around for some time, but was usually considered to be what some in the medical community call a "wastebasket" diagnosis. Unfortunately, not many doctors believed it was a valid condition and many still don't, but it is getting more recognition in the last couple of years. It has some symptoms in common with fibro, but not all. There are other symptoms that do not present in fibro as well.

If you get a chance to read my "Story" in the sub-boards up on the top of the PM main page, it gives a bit more info. I'm not saying that this is what you have, but I think it might be worth a look. There is also info on the web about it. Some of the old stuff is very outdated and not accurate. But some of the newer info out there is very informative.

Glad you formally introduced yourself. I hope to hear more from you in the future, and look forward to getting to know you better. All the best, CMP/MM

 
Old 08-14-2008, 02:11 PM   #5
Senior Veteran
(female)
 
Join Date: Jan 2005
Location: Phoenix, AZ
Posts: 675
schao HB User
Re: Hi Everyone........

Thank you all for the warm welcome

Painaway: My pain doc doesn't think my pain is sciatica, but at this point who really knows. It's a deep ache down both of my legs front and back...I thought sciatica was just down the back of the leg? I could be wrong. Thank you for the prayers

Toonces: I am not taking a long acting pain medication. I've mentioned it to my pm doc, but since my pain is mainly at night he feels a short acting is just fine. I really do love my pain doc---he feels so bad that he can't figure out exactly what is wrong, but he doesn't get rid of me either. He always calls me his "favorite patient"....probably b/c I always try to be happy even when I'm not and I always think him for helping me.
I do want to get pregnant soon, so I talked to him about that today too. He said he does deal with patients who are pregnant and can recommend me an OB/GYN that he can deal with back and forth about me. That made me feel great! I told him I don't want to be on any medicine but if I have to be then so be it....but I definitely don't want to take anything that would hurt the child.

CMPGirl: Hi there. I've read a little bit about myofascial pain. It's so hard to tell if my pain is muscle, soft tissue, or bone pain. It hurts so bad I just don't know. I'll go and read your story. Thank you for the welcome...you'll be "seeing" a lot of me

schao

 
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