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Old 08-19-2008, 03:23 PM   #1
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Is it normal to have a pain management dr. tell you this?

I was referred to a pain management specialist from my primary care dr. I have the state's insurance (to a dr. this is less desirable as they pay less.) The dr. had me fill out the forms, and had me draw on a picture of a person just where the pain was. I basically shaded large portions of me, as I have large portions that hurt. He wanted to get rid of me. He said that he doesn't treat fibromyalgia and by the large area shading, that is what I have. I was sent away.

Do pain mgmt. drs not handle fibromyalgia? Do you think this guy was right to send me away? I barely got my symptoms out of my mouth before he was pointing towards the door.

I think it was due to my insurance, as well.

If you have widespread pain, who are you supposed to see?

Thanks.

P.S. Shouldn't my primary care dr. know better if they don't handle this?

Last edited by TiredOTired; 08-19-2008 at 03:23 PM.

 
Old 08-19-2008, 04:23 PM   #2
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Re: Is it normal to have a pain management dr. tell you this?

Ugh, I wonder if you can find someone else that will accept your insurance coverage. This guy sunds like a real loser in the pain management sense. I really don't think a doctor should be diagnosing you with a disease as heavy as fibromyalgia by looking at a picture you drew on. That is not very good practice. I have seen a string of doctors that have their mind made up before they even walk through the door. I am trying to stay far away from these docs. Did your PCP diagnose you with fibro?

 
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Old 08-19-2008, 04:51 PM   #3
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Re: Is it normal to have a pain management dr. tell you this?

I actually was diagnosed by a Rheumatologist. So, I did have an actual diagnosis. I just thought that pain management drs. dealt with whole body pain and not just one area.

 
Old 08-19-2008, 07:12 PM   #4
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Re: Is it normal to have a pain management dr. tell you this?

Hi Tired,

I'm Shay. I'm so sorry this happened to you. This doc sounds like a real jerk!!! As I'm sure you know, a majority of docs do not believe that fibromyalgia actually exists. My Parents' neighbor has it and let me tell you, I can tell she hurts!!

Sometimes, she barely hits a certain part of her body on something (like the furniture) and the pain will literally knock her to the floor. She never complains about ANYTHING, then a few years ago, she started having vague symptoms that just kept growing in intensity and spreading to parts all over her body.

My PM doc DOES treat patients with fibro. He also conducts clinical trials on new medications for all types of pain, including fibro. Again, I'm so sorry for the treatment (or should I say lack of treatment) by this idiot!! I think you should lodge a complaint to your State Medical Board about him and the way he treated you. Most, if not all, chronic pain patients have been treated poorly at some point in their lives, including me.

Maybe your PCP doc can help you find a true PM doc that will treat you. Please tell your PCP doc what happened and how it affected you, both physically and emotionally. As we all know, emotional stress often triggers very bad pain flares. Do you have any friends, relatives, or anybody that knows anybody in pain management that could give you some names of some docs??

Try not to let this discourage you, ok?? There really are some good, and even GREAT PM docs out there. Sometimes, it just takes a while to find them. Usually by trial and error. Take care and bye for now.

Shay

 
Old 08-19-2008, 08:38 PM   #5
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Re: Is it normal to have a pain management dr. tell you this?

Quote:
Originally Posted by friendly_one View Post

As I'm sure you know, a majority of docs do not believe that fibromyalgia actually exists.
Hello and welcome to the boards. I'm very sorry that you are in pain, however, I think you've come to the right place for support. Everyone is great here and many are regular contributors, which speaks volumes about the site.

I think Shay is right in that a good portion of Docs out there either don't believe in it, or don't know much about it, or how to treat it. Thus, they forward you on. In principal, you'd like to think that your GP would know this in advance, but in reality, unless he's had someone rejected before, he probably wouldn't know.

The good news is that there are good PM Docs out there who do subscribe to Fibromyalgia and will treat it....And treat it well. You'll have to keep searching. Most on this board will tell you that it took us all a Doc or two to eventually find the one who works for us.

I also think that your insurance also may play a role. Not really sure, but some Docs are profit driven, and to the extreme I might add. For example, some won't accept Medicare or Medicaid. However, I think the primary issue is the first part we discussed re: your condition.

Hang in there best you can and keep searching. Hopefully, your GP will continue to help you until you can get settled with a new PM Doc.

Take care, and please let me know where I can help.

Regards,

Ex

 
Old 08-19-2008, 08:48 PM   #6
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Re: Is it normal to have a pain management dr. tell you this?

TOT,

Sorry this doc was such a jerk. This is not "normal" practice for a PM doc, or any doc for that matter. (Sadly, I'm hearing more and more about jerks like him though) I responded to you in the thread that Tigg started for me about myofascial pain, but I'll recap a bit here too. My doc is a physiatrist, and he treats any and all types of pain, including fibro and what I have, which is chronic myofascial pain. My CMP is another diagnosis that many docs don't "believe" exisits or they don't take seriously.

I know you are in Scottsdale, but I have a really good friend in Phoenix who has had chronic pain for years and is on the state insurance plan, so I'll ask if he knows of anyone in your area, if you'd like. Not sure he'll know, but it's worth a try. We can post names of docs, but not addresses or phone numbers (as per the posting rules) So, I'll see what I can do, OK?

I also know that Fibro and CMP are often mixed up by docs and they are similar, but they don't share all of the same symptoms. However, it's possible that a person can have both. So, who knows. Please take care, and as the others said, let your Primary know what happened and see if he/she can help. I wish you all the best and look forward to getting to know you better. God Bless, CMP/MM

 
Old 07-05-2011, 07:06 AM   #7
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Re: Is it normal to have a pain management dr. tell you this?

Hi. I'm new to these boards so please forgive me for any errors I may make.

TiredOTired, I'm so sorry you had such a bad experience with this pain management doctor. After I was diagnosed with fibro I was referred to a pain doctor. She basically told me that the reason why none of the medicines available for fibro work for me is because the receptors in my brain don't work right. Then she gave me a TENS machine to take home and try but the problem with that is that I have pain all over and there are only a few leads to this machine. Of course she charged me $40.00 for her assistant to explain in 10 minutes how to use the machine. All in all, she came right out and told me there was nothing more she could do for me but yet she wanted me to come back once a month for "monitoring." I cut the ties right then and there and thought to myself that I wasn't about to waste my money just to hear her ask, "So on a scale of 1-10 what is your pain level today?" and then charge me money for it.

With your doctor, he never even got that far. Maybe it was your insurance coverage, I don't know. He could have tried you on different meds at least. I think some of these doctors just don't understand the amount of pain that you have all over and so many other things that make up fibro. The high level of pain isn't all, it's the sleepless nights, the restless legs, the lack of energy, depression, etc.

I wish you the best of luck in finding someone to offer you some help.

~Gabriellyn~

 
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