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Old 09-25-2008, 01:57 PM   #1
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I am overwhelmed too

I too am so overwhelmed and disgusted with our pathetic healthcare system. I have been suffering with debilitating pelvic pain for almost five years now. Sometimes my pain is so bad that I can barely get out of bed. I have had MRIs, CTs, lap procedures to remove endometriosis. After my third lap procedure with little or no relief from the pain, I was told that I had two choices, A hysterectomy at 32 or pain management. I have chosen pain management and I go for my first appointment tomorrow. I am truely scared to death. I am so tired of doctors looking at me like I am a "drug seeker". Which I believe is a horrible way to label a person in my condition. If I could get off all of my pain medications and be pain free and live a normal healthy life, trust me, I WOULD!! I am not even on that many medications. If anybody has any advice for me, please help me. I am so confused and worn out and just depressed. I am newly engaged to be married and have been told that I have less than a 10% chance of having children due to my condition. I don't know where to turn. The thought of a hysterectomy at my age is horrifying! But if it will completely eliminate this pain, then maybe I should. I just don't know where to turn. Im scared to death. Any advice would be greatly appreciated. Thanks...Mia

 
Old 09-25-2008, 05:54 PM   #2
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Re: I am overwhelmed too

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Old 09-25-2008, 06:41 PM   #3
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Re: I am overwhelmed too

Bringing someone is a great idea. Make sure to be on time and look tidy & neat.

 
Old 09-25-2008, 08:17 PM   #4
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Re: I am overwhelmed too

Hey Mia - all you have to do is scan through these boards to realize that everyone is discouraged with the health care system - it is so frustrating to have to deal with
Sorry about your other problems sweetie - that is some tough news but I would sure get some other opinions - our children are so important to us that I cannot imagine life without them - it sounds like children are important to you - my neice was having severe chronic pelvic pain was diagnosised with endometriosis and polycystic ovaries with no chance for children - she went to two more fertility specialists and one gave her a shot at trying - the good news is that not only is her pelvic pain gone but she has triplets - 2 boys and a girl soooooo please be sure she get the right diagnosis - university hospitals can be aggravating but they are up on all new technologies
Meanwhile you will be in my thoughts and prayers - I spent many an hour on my knees talking to the Lord about my neice and it helped
Huggs Aver

 
Old 09-25-2008, 09:16 PM   #5
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Re: I am overwhelmed too

Mia,

I know you have a lot on your plate to be concerned about. I just wanted to let you know I had to have a complete hysterectomy at 34, because I had really severe endmetriosis with hemmoraging during my monthly cycle. It took about a year to total get my hormone dosage right and to heal and get over all of the "i'm not a woman anymore" feellings. But then is was okay. I already had my two children, so that wasn't an issue, it was just the best answer. Everymonth at cycle time I would be in bed for a week in severe pain and hemmoraging, spaced out on heavy drugs...it just wasn't worth it.

So, if you have any questions, don't hesitate to ask, and good luck with your decision.

 
Old 09-25-2008, 10:24 PM   #6
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Re: I am overwhelmed too

I too had a hysterectomy at age 34. I was unable to have children, wish that could have been different, but I just went along with the surgeon, my situation was different, not much choice. Afterwards I experienced almost 4 yrs pain free - for the only time in my life. I am 48 now & have no regrets, at least I know what pain free is. If you have a 10% chance of kids & you want them, I will surely pray for you & hope it happens. Children are a joy in life, but there are always kids who need adoptive parents too. My hubby & I did not adopt kids, we turned to pets, have 10 cats & 3 dogs, these I call my 'children of fur' and I love them dearly. You are in my prayers, I hope this helps.
Jen
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One day at a time...

 
Old 09-26-2008, 05:48 AM   #7
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Re: I am overwhelmed too

I just wanted to say I feel you, hurts to be treated like a drug seeker when you wish with all your heart you could have a normal life & never have to take any meds. We all have been made to feel like you do & can understand.
I have come to the point I just spit it out, everything you said here to us tell your doctors, you are scared & the last thing you want is to depend on meds, but you are left no options at this time. you have been given some excellant advice & these wonderful caring people have held my hand & walked me through learning how to deal with all of this, doctors, meds & everything else that comes along with CP so take the advice & use it.
Good luck honey & know we are here for you & understand completely what you are going through. Sammy

 
Old 09-27-2008, 08:09 AM   #8
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Re: I am overwhelmed too

Thank you so much! You have no idea what it means to finally meet other people that are in my condition. I did see my pain doc, and he was wonderful!! He has given me hope for the first time in years! I was actually treated like a patient instead of a problem. He is also treating my depression as well. He told me that most patients in chronic pain do suffer from depression and anxiety which make the pain even worse. As of right now, I am trying to avoid the hysterectomy and try other treatments But in the long run, I will eventually have to see a surgeon. But thank you again. You are an angel!!

 
Old 09-27-2008, 10:01 PM   #9
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Re: I am overwhelmed too

Thank you again!! I really appreciate it! You are a god send . I hope that we can stay in contact, I have felt like a huge weight has been lifted off my shoulders! I will be looking forward o your ccomments

 
Old 09-28-2008, 08:15 PM   #10
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Re: I am overwhelmed too

Welcome Mia!

You may want to consider seeing a pain psychologist. I have been seeing one for the past few months. She has been extremely helpful!

Keep posting!

Step

 
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