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Old 02-17-2009, 10:30 AM   #1
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how did you get your Dr to take you seriously?

Hi everyone..I just found these boards and I hope I can get some help here.

I was born with chronic pancreatitis. I also suffer from Occipital Neuralgia which causes bonecrushing back/neck pain and headaches.

Even though both conditions have been documented very well..I have a lot of trouble getting pain meds. I wish I didnt need them,but when an attack hits me the pain is blinding and theres no cure.

I live in South Fl..and admittedly there are a LOT of addicts here and drug seekers. So Dr's are very hesitant to prescribe any kind of addictive drugs.

I would think that having 2 well documented chronic pain conditions would be enough to convince them,but I have so much trouble.

How can I get them to understand that I'm not an addict...that my pain is extreme (about a level 5-6 daily..10 when I get an attack) and I need to do SOMETHING (whether its pain meds or something else...I dont care)to help take this pain away.

 
Old 02-18-2009, 04:15 AM   #2
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Re: how did you get your Dr to take you seriously?

Sorry but I don't know how to either, I broke a rule somewhere and now nobody will give me anything, and I'm often in a lot of pain that I can't control. All I can say is that you're not alone, and if you do happen to get given something for the pain - for goodness sake follow the rules. If the pain meds affect you in your reasoning capability, give someone else control over them to make sure you only take them as prescribed and that you don't forget the conditions of the prescriptions.

I'm not suggesting you'll not follow the rules, I'm just saying this because I wish someone had told me before it was too late.

Good luck, and chin up

 
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Old 02-18-2009, 11:24 AM   #3
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Executor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB User
Re: how did you get your Dr to take you seriously?

How many Docs have you been to? What do they say when you go them about your pain? Do you have a family Doc, and if so, what does he say about your situation?

Regards,

Ex

 
Old 02-18-2009, 12:58 PM   #4
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Re: how did you get your Dr to take you seriously?

My PCP was going to prescribe me Oxycontin after I ahd been been on percocets for a few years for chronic pain. I was leery about that medication and went to PM. 1st visit there I was given a long acting med as well as 120 percs to last me a MONTH where as my PCP had me make that many last 3 months. Next visit to PCP he was SHOCKED that I went to PM. ( they had sent him a report ) I explained to him that whenever I discussed my pain he wanted to put me on Oxycontin and I was scared of that med. he went on to tell me how he could drive a Mercedes if he was a PM and had a witing room full of addicts that he made that way. Pain meds are all perceived differently even by the medical profession. I have MRI reports, PT history and pharmacy records showing that when I did get narcotic medicines from ONE doctor only.. my PCP and then after the contract with the PM doctor only

 
Old 02-18-2009, 07:16 PM   #5
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Re: how did you get your Dr to take you seriously?

Quote:
Originally Posted by katlovesdogs View Post
My PCP was going to prescribe me Oxycontin . I was leery about that medication ) I explained to him that whenever I discussed my pain he wanted to put me on Oxycontin and I was scared of that med.
You do realize that the only difference between Oxycontin and Percocets are the acetaminophen(Tylenol) which are in Percocets.

Oxycontin (oxycodone)

Percocet (oxycodone & acetaminophen)

Try not to get scared because the media has portrayed this drug as SO addicting. Any opiate/opiod medication can be addictive but if you take it as presribed and don't abuse it you really don't have much to worry about.

brian

 
Old 02-18-2009, 07:22 PM   #6
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Re: how did you get your Dr to take you seriously?

thanx guys.

 
Old 02-19-2009, 05:31 AM   #7
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Re: how did you get your Dr to take you seriously?

Quote:
Originally Posted by Executor View Post
How many Docs have you been to? What do they say when you go them about your pain? Do you have a family Doc, and if so, what does he say about your situation?

Regards,

Ex
I've been to a few over the years. My family Dr. is my gastro. since I have to see him so often. They acknowledge that the pain is extreme,but they are so wary of prescribing narcotics that every Dr wants to try a million alternatives. Which is fine...I'd be happy if I didnt have to take and shell out the money for more pills...but what am I supposed to do in the meantime until I find something else that works???

 
Old 02-19-2009, 05:58 AM   #8
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Re: how did you get your Dr to take you seriously?

keep going to the dr. and go to other dr. eventually you'll get help.

 
Old 02-19-2009, 08:56 AM   #9
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Re: how did you get your Dr to take you seriously?

Quote:
Originally Posted by sickinFL View Post

They acknowledge that the pain is extreme,but they are so wary of prescribing narcotics that every Dr wants to try a million alternatives.
Whichever Doc most has acknowledged that you're in pain....Ask them if they can refer you to a Pain mgt Doc. Hopefully, it's your family Doc who know's your history and the most about you. I would just point blank tell him that you just can't stand it anymore and need help and to help you get into see a PM Doc. This is what pain mgt clinics are for. Most require referrals, so it's tough to just call one up out of the blue.

Best of luck to you.

Regards,

Ex

 
Old 02-20-2009, 03:50 AM   #10
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Re: how did you get your Dr to take you seriously?

Hello
Welcome to the boards and i'm sorry to hear about your situation. Ex, gave you some good advice, which is to try to find a PM doc. If you have insurance you should be able to go to your insurance site online and pull up specialists in PM in your area. Alot of them do require a referral, but i've found in my area, that many dont as well. Do your research on a PM Doc as well online, try and find information about them, such as feedback, there are a few good sites that patients can rate a doc that they have seen. There are some quacks out there, as I unfortunaltey had to find out the hard way, but I wont go into all that. Along with your doc providing you names of a PM doc you could also ask your pharmacy if they have heard about a good PM doc.

You could always call a few of them and simply ask them if they require a referral to see them, if not, then make an appt. I'd like to give you some advice for your first appt with any new doc that is going to treat your pain though....

1. Make sure you take in your medical history at minimum a years worth.

2. If you've taken pain medications before, contact/visit your pharmacy that you use and ask them to print out the last year or two of your medication history.

3. Take with you any MRI, CT scan, Xray reports for the last year or two.

4. Make a list of all medications that you have tried that did not work and be detailed in why they didnt work, such as reactions to them ect...

5. Try to start keeping a pain diary and record your levels of pain from the time you wake up to the time you go to sleep, document what increased your pain and what decreased your pain, if you were able to decrease it document what you did to do so. Use the 0-10 pain scale. 0 being no pain and 10 being your totally incapacitated. Be realistic and honest with the ratings.

6. If you are currently taking any medications take them in with you to show them your taking them as directed.

7. You should never really ask for a pain medication by name, ask them what they think would be best suited to control your pain based on what you've already taken before and your levels of pain that you suffer from.

8. If they do prescribe you medications ask about what else you can do along with the medication to help with your pain, such physical therapy, accupuncture, massage therapy, aqua therapy, Hold/Cold packs, injections (depending on your issues) ect...

9. Dont just make one appt with a PM doc, make several appts with different docs, this way if you dont like the first one, your not waiting weeks to get into see another one, but at the same time understand that some docs will not prescribe on the first day, and I would at least give them 2 visits before I move on to another.

10. Some docs will urine test you the first day you go in to see them, so be prepared for that. If you taking an medications currently make sure you honest about what you taking in case they do test you on the spot.

11. Lastly, be open to trying what they suggest, even if you've already done it and it didnt work, alot of docs have they're own technique of doing things and will want to see if they're way works on you.

The more information you walk in with the more they will take you seriously.

I have found that doing all of the above has made my docs feel much more at ease with prescribing meds for me. If you have a documented condition/diagnosis and walk in with the all the above, you really shouldnt have a problem.

It will take some time to find the right doc, it could be the first one you visit, it could be the third one ect... If you can get your regular doc to give you like a months worth of medication, then you at least have a month to find a good PM doc to start taking over your care and at the same time your not suffering from pain while locating one.

I hope this information will help you in some way and I wish you luck. I'm not in your area, so I cant help you in that aspect, but there are many good people on here that may come along and be able to suggest someone.

Lisa

 
Old 03-02-2009, 06:48 PM   #11
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Re: how did you get your Dr to take you seriously?

SickinFL,

I am so sorry to hear about your woes. I have to say that Lisa and EX gave you great advice. I also live in FL and it is very rare and very difficult to get narcotic pain meds regularly from your primary care doctors. We can thank all of the malpractice lawsuits in FL for this. Several years ago many doctors even pulled out of FL because their insurance just became too high. Most primary care doctors will have a sign posted stating they do not routinely prescribe pain medications or narcotic pain medication. Believe it or not, it is truly to your benefit and in your best interest. Your gastro might be able to recommend a great one to you as well. Their staff is also familiar with your insurance and might be able to help narrow down the list of good ones and ones that might not suit you. By going through pain management, they know what you are on and what will interact with other medications you are taking. It will likely take time to get your dosing right but they are there for you. Make sure they LISTEN to you and hear what you are saying right from the beginning. Also have them share a copy of your report with your other primary doctors for your other health problems. In addition, only use one pharmacy. It does mean another doctor and some pain management doctors will make you come in every month for your meds, others every 3 months. You will also likely have to take a random drug test from time to time and they do this for obvious reasons but to also see how your body reacts to the meds and that you aren't abusing them etc. I really hope you will find one in your area and that it makes your life far more comfortable.

Good luck to you and please keep us posted!

Sincerely,
Lisa

 
Old 03-06-2009, 03:00 PM   #12
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Re: how did you get your Dr to take you seriously?

Thanks everyone. I had surgery again last week and they found 4 large stomach ulcers. Which is compounding my pain. My surgeon prescribed Percs even though I told him they dont work on me.

I have several Dr's appts next week including a follow up with my GP ( i have bronchitis now too). My GP absolutely will not prescribe pain meds to anyone. He's too afraid. Ugh.

I also have to make an appt to have my back looked at since its been seizing up a lot lately and I've had a constant migraine for weeks now.

I'm just so tired of being in pain.

 
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