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Old 03-03-2009, 07:35 PM   #1
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Ravenshad HB User
New Here

I just realized I have posted on a few different topics but have not actually introduced myself. My name is Raven (my other nickname is Missy). I am 40 years old, married and have 4 children. I have had chronic pain for 16 years now, with the pain being intermittent for many years before that.

I have a few things wrong in my lower back and pelvis. L4-5 ruptured and then herniated in front of the rupture (hiding it from ct and mri, it was found during laminectomy surgery to remove the herniation), the rupture cut my sciatic nerve root at that level which resulted in scarring and permanent damage that caused chronic pain and sciatica. As a result of the laminectomy the L4-5 disk is now degenerated. L5-S1 herniated also and it presses on the sciatic nerve root on the left side. I also have near sacrilization of the L5 vertebrae, basically I have extra bones coming off my L5 vertebrae that overlap the top of the illium on both sides. The orthopedic told me that my body had attempted to make L5 part of my sacrum but stopped before it completed leaving those extra bones. Where those extra bones lay there is arthritis and bone spurs because they are not fused to the illium so they rub against each other. My right SI joint is unstable, wider than it should be and has arthritic changes throughout the joint. My left SI joint has undergone (and failed) two fusion attempts. It is currently held together by a plate and screws, one of which is 6 inches long and lays horizontaly from my hip through the joint and into the sacrum itself. (easiest way to explain my left SI is this way: compound fracture held together with a plate and screws) Due to the fact that my sciatic nerve follows the line of the SI joint (instead of just crossing over the top of the joing before going down my buttock and leg) it has sustained a lot of damage from being crushed within the break, having bone fragments embedded in it and constantly being rubbed/pressed/etc when my sacrum tilts out of alignment.

Like many of the posters I have read here I have had my share of bad doctors, inadequate pain control and all that. On my last pm appointment I was told that the nurse practioner I have seen for the past 6 years (and just love!) is no longer working at my pm doctor's office! I don't know whether this will cause issues with my care or not. I am hoping it won't as I really do not want to change doctors again and the doctor she is now working for is the one who told me (when I was 31) that it was not possible for me to be in as much pain as I said I was in because I was too young to hurt that much. He also told me that there is no such thing as breakthrough pain. He then threatened to call every pain management doctor in my area and tell them I was an addict and not to treat me should I ever try to change doctors. He had me so scared that I stayed with him for 2 years before finally having the courage to change doctors. (As far as I know he never called anyone) I love my nurse practitioner but I hesitate a great deal to put myself in her new employer's care again so I am strongly hoping that the new person I am assigned to in my regular doctor's office will be just as good as she was.

I found this board by looking for information on oxycodone shortage or possible recall since I can not get my bt meds filled this month as no pharmacy in my town has any. Thank you for posting the information about the shortage as I was just going to give the pharmacy a few days to get some in but after reading the posts on that topic I called the pharmacy and they verified that they have no idea when they will get some in and recommended that I contact my doctor for a different bt medication, which I will do tomorrow.

ok I think I have rambled enough, sorry this is so long. If you have any questions, please feel free to ask.

Raven/Missy

 
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Old 03-03-2009, 10:49 PM   #2
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Executor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB UserExecutor HB User
Re: New Here

Welcome to the boards Raven. I hope you find the support and comfort here that many others have found. Many here have a wide variety of pain experiences and can offer lots of perspective.

Again, welcome and I hope you get your BT med issue worked out.

Regards,

Ex

 
Old 03-04-2009, 01:22 PM   #3
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Join Date: Apr 2005
Location: Florida
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Sage48 HB UserSage48 HB User
Re: New Here

Welcome Missy...
So sorry that your back is in such a mess....don't know how else to describe what you told us...yikes. The SI joint..well, I know about that one first hand.....(yes, I did get your posts!!!!...and replied.....THANK YOU!!)....

The issue of changing Drs.....think I'd wait and see what you feel like when you see the person taking your NP's place....don't think I'd go back to the other DR...that type of treatment and threats are unacceptable...I do understand that one...from my last PM Dr....scary.

The lack of meds., and the pharmacies not knowing when they are getting in new supplies....that is so wrong....how do they expect patients to function...don't they know that a lot of them are going to go into w/d's?? I do think I'd have to contact the Dr. about that one, although, it is sometimes difficult changing meds. out....done that.. (would calling your insurance company help in any way?? do you have a med. program with insurance??)

Hope you are resting well this afternoon...take care.

Sage

 
Old 03-04-2009, 01:57 PM   #4
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katlovesdogs HB User
Re: New Here

"too young to hurt that much. He also told me that there is no such thing as breakthrough pain. He then threatened to call every pain management doctor in my area and tell them I was an addict and not to treat me should I ever try to change "
That was UNETHICAL to say the least.... My son has a friend who is only 23 that about broke his back in 2 in a MVA and is a CP patient. I wonder what your old Doc would say about HIM..
Other Break through meds are SA morphine, percocets ( containg Tylenol ) etc. Are you on a LA medication as well ?

 
Old 03-04-2009, 02:32 PM   #5
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Join Date: Aug 2007
Location: COLUMBUS, OHIO
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brianpain33 HB Userbrianpain33 HB User
Re: New Here

Hello,
Welcome to the boards and you will find alot of people that have similarities in pain and treatment. I can tell you that my CP started when I was 29 years old and I am almost 35. I have never been told that I was too young to hurt. That is a bunch of crap. I did have a very difficult time getting my treatment since I am am recovering addict. I have been clean for quite awhile though and have no problems taking my pain medications. I would think that you would be a great candidate for the SCS nerve stimulator. Did your doctor ever mention that to you? You could do a search on the boards or an online search for more information. Keep posting and asking questions

brian

 
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