My pain doctor is confusing and irritating me. She makes me very very angry, actually. She has said today that I can have Tramadol, but she did not give me a script for it. She said I can have Gabapentin, but when I showed her the script I already have and told her it'll cost me $130 and I can't afford it, and I asked her how I can get some cheaply, she said she'll figure something out before we meet again in 8 weeks time. I went downstairs to the hospital pharmacy and found out if she just wrote me a script for the gabapentin, I could have it right then and there for $26. Surely she'd know about the pharmacy downstairs. I didn't know there was one till I was walking out to my car and found it and decided to check. She works there, though. There is no excuse.
Also, she wrote me a referral for physiotherapy and hydrotherapy through the hospital, which you may think is lovely...but there is a 6 month wait list...and I told her 2 months ago that I couldn't afford the physiotherapy and hydrotherapy privately anymore, and is there a way to do it here; and if she'd have written the referral then, I'd only have 4 months left to wait.
I'm so mad at her, this is my life and she's being forgetful, daft, cruel or something, I don't know which, and yet I can't change pain doctors now, so I have no choice but to take it. I cried through the entire consultation, and all the way home and went for a walk through the national park forest here and cried whole-heartedly there too before I could manage to come home. I'm so upset about the whole situation.
Also, I went to my local GP out of desperation and I have a temperature, which coupled with the abdominal pain and other symptoms, could mean I have an infection in my uterus...which would explain the agony there...and so he was actually kind enough to give me a script for tramadol! Praise the Lord!!! Finally! I could have kissed him. I may well simply have endometriosis again, which is not pleasant; but I can't keep having surgery for that, it's no good; so if it isn't uterine infection (find out when I get ultrasound or if I go into septic shock before then!) then my options are hysterectomy or live with it. Live with it is hard because I cant be medicated in an ongoing fashion, and hysterectomy, I don't even wanna go there - I'm 27. I want more kids. My husband wants more kids.
So there's my update for the day. Husband's also lost his day job so I have to fire the cleaner, and I managed to fight dear husband to get him to do some housework so it wasn't all up to me (since he's home all day now)...but I know my fighting spirit will give up after a few days of this.
i do hate to tell you this ss, but you just DID the very same thing that got you into trouble before? accepting an Rx from another doc when the other is supposed to be the ONLY one you can obtain Rxes from right now? i would have told your other doc that you needed the Rx if she was going to rx it for you. why didn't you ask her about that? she should have simply written it for you if she said she was going to,you know what i mean? you just cannot afford right now to get ANY type of class II or class III med from any other doc than that pain doc right now. this could end up just like before hon, i really really do not want to see you go thru all of that agian. you just REALLY have to be so very very careful right now and not do anything at all that could show a potential problem with your Rxes. you also DO have to let that other doc know that you recieved this same med from another doc and explain why, since she failed to just do her job for you. but this will be on YOU in the end unfortuently. they just NEED to know this ss.
with regards to the neurontin, unless that doc specifically wrote it with a DAW(dispense as written) on it you can get the generic, its just standard here in the US. i am not too certain how it goes where you are tho. but with most Rxes, the ins companies ALWAYS want you with the generics for any med unless, like i said,that DAW is written on it. so you really should be able to obtain it in generic form with no problem, i would think anyway.
but please do inform that other doc about what you recived hon as soon as possible or you could end up in the very same situation you just went thru all over again. you just cannot afford to do ANYTHING out of the normal set guidelines right now. hopefully since that other doc did not write that Rx she wanted you on(did you call the docs office at any time to tell them she forgot to write it?)this may not be a huge issue for you, espescially if you let them know right away. do not let time pass without telling them this ss. if they find out on thier own, it could get ugly for you. for your own sake ss, please, do not accept anything from any other doc again. its just that big of a deal for you right now. i do wish you luck with this hon. please keep us posted,marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
I second everything that feelsbad has said. Did your PM doc think that you already had a prescription for the Ultram? She may have thought that you already had some or had refills on them. It is your responsiblity to make sure that you have any prescriptions before leaving the office. I would have said that "Dr so and so forget to give me my prescription for the Ultram like we talked about" It could have been she was very busy or absent minded and just forget to write it for you. You do need to call that office on Monday and tell them that your other doctor wrote it for you. good luck and hopefully the Ultram helps you
Hi Sorespine. I hate to say but I also agree with the others about the meds. It sounds like it was your other doctors with their incompetence that got you in that position in the first place. Now, it is happening again. Your new pain Dr. will not care that you have other problems. She will only focus on the thought that you got a script from another doctor. Did you already sign a contract with that pain doctor?
Could this new Dr. be setting you up to fail? Just a thought.
I know my doctor will say that he will give me prescriptons. Then you meet him at the front desk. He forgets. I always mention something to the receptionist or nurse. They grab him and he writes the prescriptions. Even when you went to the pharmacy, they could have called for you.
I don't want to sound like I am beating you up. I know how it feels to be in pain and have pelvic problems etc. It is so hard.
I think it is a good idea to maybe fax a note to the pain Dr. advising her that you went to your primary Dr. for female issues and he gave you the prescription. This way you don't look like you are trying to pull the wool over her eyes. What about the primary Dr.? Would he send a note over to your pain Dr. advising that he gave you the prescription with his reasons. I'm just trying to think of a way to help you.
I'm terrified, from reading what you have all said, I'm so scared and paranoid, and I feel awful dread. I had no idea. I was in there to get the mirena checked and he happened to offer so what else was I to do? Na, that's ok mate I'll just wait till some other time when my new/old primary doctor can see me??? This doctor I saw was the local one, because I needed quite urgent consultation; and I did plan on getting anything from my doctor who agreed to treat me, and who saw my family for over a year before I injured my back. I must say I am quite upset about this whole thing. I literally have to get lost in other things like movies and internet (not this site obviously!) in order to get on with daily things, I feel so bad.
One of you suggested the pain doctor might be setting me up. I nearly screamed YES when I read that, as I've been wondering about that since I came home yesterday.
I'm going to call her on Monday, leave a message with the receptionist (she is not in on Mondays). And I was going to get an appointment with my primary doctor to talk with him about the situation and how terrified I am that I might have accidently screwed things up again.
Why can't I just think? I'm so upset. I thought I was walking on eggshells already, scared to say anything, scared to do anything, in case it made the situation worse. Then someone offers something that could help with the pain...oh why don't heroin junkies get treated this badly? I am feeling like this is unfair big time. I don't know what I'll do if I've made it worse.
Oh and there is no contract yet, my primary doctor wants to write one up with me when I next visit him. I have started having urine tests (a few days ago) to prove I am not abusing drugs, so that after 2 years I can have my name removed from this register.
My pain doc said my treatment plan would be the same with or without dr shopping history. She said it's irrelevant, and that I shouldn't judge her that she would judge me on it. I find that hard to believe, that in her position, with people deliberately trying to do a number on her all the time, if she knows about dr shopping history that WILL color how she treats me. She'd have to have no regard for her duty of care towards me and society if she didn't care about that history.
She said to me "What treatment plan would you give me if you were in this chair and I was the patient?" and I said the exact same treatment plan she already gave me only I would offer controlled medication for when pain is exacerbated. I said that my opinion may be uneducated as I clearly don't know as much about medicine or pain treatment as she does... I am just desperately desperate I can't stand it.
I just wrote down the points on the do's and don't's of medication, the sticky thread; and I plan on highlighting the really vital ones; and carrying it with me everywhere. Maybe that'll help.
Please be mindful that what you say may be upsetting to me, because I am not a bad person, and I know nobody has said any such thing. Do let me know your opinion and advice, but maybe if you say something positive. I just feel so bad when I think about this. What am I going to do? How would I cope if things got worse than they already are? I am thinking maybe I shouldn't say or do anything without ten minutes of careful thought prior to action, about what the consequences may be.
Ok....I'm confused. In your post titled "Dr appointment Today"...last post on 4-12 by Sammy....You said that your GP was going to call the pain Doc and get all straightened out. Did this happen? You also said that this GP was going to check with the pain Doc every time he prescribed something.
Also, was this "pain doc" that you saw most recently your new one or old one? And what about this GP that just gave you the med...Same doc or different?
it is confusing. i know.
i'll call my primary gp dr A, for simplicity sake. he's the one i have seen for months and months before i hurt my back. he's the one who said he'd straighten it out with the pain doc and check with her before prescribing. he is about a 45 minute drive from here, and is there i think 3 or 4 days a week (and is very highly sought after).
the local doctors is full of people who don't usually want to give me panadol let alone anything stronger.
and the pain doc, this one i'll call dr 1. she's seen me twice and talked to me on the phone once.
the old pain clinic i don't really talk about much.
now i go to see my local doctor for urgent things, things that are embarressing as well. i have a problem with being honest about how i truly feel with a doctor if i have laid there the day before with my legs in stirrups. it is just how i am. i tell my doctors that, and they usually understand. i make a point to only see the doctors i choose for the embarressing/urgent things, and not for personal problems; and vice versa. i specifically decided the local doctors would be for urgent matters etc. because they all outright refuse to medicate me for pain, and before Dr A said he would on occasion do so, i figured i will just keep my emotional health problems in counselling and see the local doctors just for urgent/embarressing nature probs. Dr A agreeing to treat me for pain has complicated things, but not so much that I am confused, just perhaps everyone else is. I didn't expect to be medicated for it. They never medicate me there. Should I tell them not to medicate me for pain? It's hard because Dr A isn't always there or available.
Dr A had called Dr 1 to talk with her, but she's only there Fridays. She said she was going to call him back when I left the office after our consultation. She may not have gotten hold of him, I don't know. I did ask her (Dr 1) if Dr A could give me a shot or morphine or pethidine, or 2 valium, as he'd suggested he would do. She said he couldn't do that, opiates are bad; and so since she is the specialist, I doubt what Dr A says will matter.
SS please stop beating urself up - australia is different and I think I can help u. About to get on a plane but will post later. Take care ok, I think it'll all be fine - I've been in a similar position. Talk soon
hi ss. i just went back thru some posts to find out where the one was that you really talked about the actual pain generators you have? did you ever actually ask that doc,or even this current pain doc for that very badly needed MRI? this one test will simply actually show the areas where you could very easily have pain that just needs appropriate treatment. it would most certainly help ypour current situation at this point to just have that 'proof' in hand, ya know what i mean?
this is just something that has been a very much needed thing for you that any one of the docs you have could order for you. have they ever mentioned any types of surgical options for your disc issues? attacking the actual generator and getting rid of it would really help with not even having to possibly be on narcotics at all. just some thoughts to ponder.
just getting that full spinal, considering your lower and upper symptoms would really be ideal for you right now. hopefully one of your docs, maybe the new pain doc? will do this for you. i know my PM WANTS to know exactly what and where any pain generators are. i would think think this new one would want to know too? hang in there hon. marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.
I asked my pain doc Dr 1, when I first saw her in February. She said that I don't need another MRI or any Xray or CTscan. She said it wouldn't change the treatment plan so there is no reason to justify doing it (cost wise and bother-wise, but she refused to admit it has anything to do with money). I have had my lumbar region MRI'd and so I have the proof of my injury, and my physiotherapist has given me a massage to try to help the spasm that is just stuck like that, in my back. I told Dr 1 that my physio did that, it happened last month; and so she knows that I have a chronic muscle spasm too. Yet she outright refuses muscle relaxants even if just given on a bad day.
Do you think her reasoning is about Opiate Induced Hyperalgesia or more abut something else? Like Dr shopping history, or cost, or cruelty? I just don't get it. If OIH affects you while you're taking opiates, why am I still so incredibly sensitive? Maybe OIH gives ongoing after-effects way after you stop using opiates, but that's not what my research has come up with. And if she understands that I'm actually in more pain than most with this condition, why won't she give me something just for the bad days? She says ongoing opiate medication will cause OIH to worsen, but how is it ongoing if it is not regular (eg: every 2 weeks or every Saturday or whatever) and if it is not every day?
Still, I'm desperately desperate. I'm avoiding touching those Tramadol unless I am really struggling, firstly because it takes 2 hours for them to kick in, and often at night is my worst time because the pain tends to accumulate through the day; and secondly because I doubt I will get more anytime soon.
So he is going to contact my pain doctor, and tell her that while her treatment plan for me (exercise, physio, hydrotherapy, steps program, anti-inflammatories, panadol and nortriptyline) is excellent as a long term and short term plan; he would not turn me away if I was crying out in agony in his office.
He doesn't want to give me tablets ongoing which is great, he said if he gave me tablets he'd prefer to give me enough for the day, or a couple of days at best; and that I would need to sign a contract with him to only see him and my pain doctor for prescriptions, and to avoid addiction at all costs. He said he would treat me with valium or baclofen if it was a spasm that exasurbated my pain, and with a shot of pethidine or morphine if it was just simple pain. He gave me a script to start on Gabapentin again as my sciatica has given me a lot of pain recently.
He said one of the reasons all this happened is that the pain docs at my old pain clinic do not communicate well often, and they do not agree on ideal forms of treatment. That is why one put me on this load of meds, and then I saw the other one and he put me on a bunch of others, and sometimes they would keep me on the old ones and just add new medication. This lead to confusion, on my doctors' part; and on mine, nobody knew what I was supposed to be on. So my doctor wants to check with the pain doctor every time he prescribes anything new, and I'm taking this new script with me to see her on Friday. That way everyone knows what's going on. Hopefully she won't be mean and just say "No she can't have narcotic medication under any circumstances" but my doctor will medicate me anyway if I rock up in agony; he just wouldn't do it twice then.
You know what's good about it though? Now I know I don't have to suffer with the worst pain, I don't think I'll even get that bad again in the first place. Knowing it'll be OK and he will treat me if I need it, without thinking I'm a drug addict who just wants drugs; it's just colored everything bright happy colors! Everything I see, do, everything. It's beautiful again.
I thought Dr A was going to straighten everything out with Dr. 1 (pain Doc) and Dr. A was going to the "go to" guy from here on out? Has something changed?
You're right, the idea is to see Dr A from now on, or from when we sign the contract especially. I guess I didn't expect to be offered pain relief from the local place, they have given me probably 2 scripts for pain relief in 8 months. It just wasn't something I had time to pre-think. I am figuring that now I'll have to get everything seen to by Dr A whether I like it or not, since I really can't see myself saying No to any offer of relief.
And I don't know what will happen with Dr A and Dr 1 yet. It's confusing. I just figure it'll go in a certain way, I do that with most things, I go on past experience, and likelihood of events occurring. Maybe it will work out in my favor? I don't know. I'm making an appointment to see Dr A and get the contract happening and chat about all this. That should sort it all out.
Ex, I feel like you're suggesting I'm lying or something. I might be completely wrong, but I do hope nobody thinks I'm dishonest here, I have no reason to lie. It's probably just that it's a confusing complicated situation, and I have noticed that I don't tend to say what I'm thinking in a way that people can easily understand. Sorry about that! All words that are here come straight from my brain with no editing (or limited editing, mostly about the rules on here), and I think that a lot of the time, I am the only one who understands what comes out of me! Sorry, really! I try.
Hi Sorespine, I'm sorry if all the posts upset you. I don't think that was anyone's intention. I think everyone just wants you to be prepared for what could happen. We all have pain, but realistically, no one knows your pain but you. So, please don't feel bad. I think everyone means well and would not intentionally hurt you with comments.
I was thinking about it and I agree what you said about calling the pain doctor Monday even though she is not in. You could leave a message with the receptionist that it is important you speak to her first thing on Tuesday but that it is not an emergency but important. I'm thinking she may be cranky if she has to call you back on her day off.
I was also thinking that when I am in so much pain I don't think right all the time. So it is not a sretch that you did not remember to ask for your meds before you left the Dr.
I think they only thing you handled wrong was taking the prescription from the last Dr. I don't think you did on purpose. I think that you thought he is a Dr. and knows what he is doing by giving you the meds. But I don't think doctors always have our best interests at heart. I would definatley talk to your pain doctor and lay it all out on the table. Honesty is the best policy.
How are you holding up? No one is against you here and it's difficult with different laws in different countries - I'll try and explain how it works here and hopefully that will put your mind at ease. I think that Ex was just asking what had happened with Dr A because if he'd managed to get things sorted out, perhaps you wouldn't have to worry. I, and I think everyone here, believes you and feels deeply sorry for the pain that you are going through - it must be equally hard for you listening to those who DO receive adequate pain relief when you're not getting a fair go yourself.
Ok, in Australia, if you haven't signed a pain contract to only be prescribed by one dr, you are ok. Also tramadol is not a controlled substance here and is unlikely to raise any flags. The most important thing for you is that any dr can prescribe if they believe that you need urgent or emergency treatment, which your gyn obviously did or she wouldn't have prescribed the tramadol. You have NOT broken any laws. The only thing that concerns me is that your pm is a bit weird and if she finds out, she may not like it but legally, you've done nothing wrong. If I were you, I don't think I'd tell her but I would ring and ask for that script of tramadol that she promised you but 'forgot' to write - and I'd emphasise the forgot. If you feel more comfortable being totally honest then I'd make an appointment with the gp 45 mins away and discuss it with him - that you were in terrible gynecological pain (not treated by a pain specialist anyway if it's infection related etc) and were given a script for tramadol. I'd probably also ask if he'd be willing to take over you pm with a contract and regular drug tests as you've been having. I see no reason why you shouldn't still be being prescribed tramadol, it doesn't really worry the drs here at all. It does have some opioid action but it's not a controlled substance. I think that you've done all the right things here by having the tests, continuing to do as your pm advises but it's clear that medication of some description is required. If you pm said she'd write a scipt, call and ask for it. If that doesn't work, I'd go back to your GP. But please don't worry, you haven't broken a law that I know of, you were treated for acute pain for an unrelated condition and it's not a controlled substance.
I hope this helps somewhat, probably some of the posters here haven't realised that you're from Australia. No one should judge anyone here as we're all doing this for the same reason - support and information. It's really hard to understand someone's meaning when you're reading it rather than talking to them, I've experienced the same thing.
Let me know if this helps and take care - also, you were prescribed the tramadol for acute pain so I'd take it as written on the script but contacting your gp and explaining probably wouldn't hurt in case you need further medication. It sucks that we have to chase our drs up all the time but my dr is the same, he say he wants to add something and then forgets to print the script. I just remind him nicely and away I go.
I wish you the best of luck and hope that you keep posting, it nice to have someone else from Australia here
and sorry Ex and anyone else who may have taken offence, I wasn't accusing, it is hard to decipher what the meaning is without body language or even voice tone.
I am struggling, but I see Dr A on Wednesday morning, a long appointment so we can chat about what happened just now, and about what would happen if I came to him in pain, especially if he wasn't available on the day...and about whatever was said between him and Dr 1 (pain doc).
Have you thought about asking for a muscle relaxer other than valium? I saw you mentioned baclofen, but it's my understanding that it doesn't take effect for days if not weeks, it's usually for long term use. Dr's in the US don't like to prescribe valium for muscle spasms unless everything else has failed, it is a controlled substance here. Maybe something like flexeril or skelaxin (I know there are others, but can't think of the names) that isn't usually considered addictive would work.
That was really nice of Juliet to point out some differences to us.
I do the same at times, have a hard time putting into words here what is on my mind. I have read some of my own & thought "what the heck" I dont even understand that, hence always being in a hurry.
Listen I believe you & I am sure others do to. I also agree with Juliet when your in pain or even stressed out it can be even more difficult to communicate.
We all know when that pain is out of control its hard to even think at all & stress is just as bad if not worse.
Working with doctors can be difficult & when your limited in whom you can see my gosh it has to be frustrating. I believe in trying to put yourself into others shoes & can say if I was in yours I think I may have lost it alittle by now.
My surgeon is really on me about my meds & I feel he could be a threat to my PM & no matter what I say he wont listen. He makes me feel like I have done or am doing something wrong. So I get it. Its awful when your not believed or trusted by your own doctor. I have somewhat of a choice here & you dont so I really feel for you & will continue to keep you in my prayers.
I understand alittle better since Juliet posted but I would still be careful with that PM or yours. Take care, Sammy