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Old 04-22-2009, 07:05 AM   #1
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Pain Clinics, do they really help?????GRRRR

I once had a doctor tell me that your main physician will send you to a pain clinic to relieve them of the duty of solving your problem. Basically they are washing their hands of you, I think that is unfair. Sometimes the pain we feel is not something detected from the basic MRI's,CAT's or XRays tests...

I was getting epidural injections in my upper and lower spine, of course no relief came from it and I asked one day what my actual diagnose was to the medical professions at the pain clinic and they told me "we don't diagnose, we just treat pain"...***!...these people are then treating things that they have no idea of what they are treating, how do they know they are not causing more medical problems.

I went back to my regular doctor and told him the whole story and he apologized to me that he even sent me there, that he didn't know what else to do for me, but for starters he discharged me from the pain clinic, beings no doctors can help you with your pain as long as you are a patient involved w/ the pain clinic and started sending me to other specialist to find out actually what caused the pain.....Of course that policy could be just the state I reside in.....

Why do pain sufferers have to be treated like this. I don't know about many of you here if you have actually had great luck w/ pain clinics but my experience was not a good one. Thank goodness, a specialist was able to tell me what was wrong finally, the bad news was it went undetected for so long that it could not longer be surgically repaired...So now I will spend the rest of my life on pain medicines...GRRRRRRRRRRRRRRR....

 
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Old 04-22-2009, 08:20 AM   #2
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Re: Pain Clinics, do they really help?????GRRRR

I have had a similar experience to yours at a pain clinic. Some are very good and help patients with chronic pain a lot. It differs at each clinic. I don't know if it does differ from state to state but usually when a doctor referrs someone to a pain clinic it is because they see that the patient is in need of a long term treatment plan for pain. Doctors sometimes initially prescribe narcotic and or other medications but they will not keep prescribing for long. I understand that you found the source of your problem so who is taking care of your pain management. In my case since there are no "legitimate" pain clinics in my area, though one is opening up, my psychiatrist is treating me but we are also tapering off the narcotic medication to see how I do without. We already know I do not do well as my pain is increasing tremendosly. Hopefully you have found a team of doctors who will treat you long term. Long term is basically what pain clinics do for patients with chronic pain, (I think).

 
Old 04-22-2009, 08:58 AM   #3
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Re: Pain Clinics, do they really help?????GRRRR

one big thing here about getting diagnostic treatment from others docs, is not true. when you enter a PM, the only restriction is with who can actually RX narcotics to you. you STILL do have every right to seek out a true diagnosis from any other specialist. i see five seperate specialists just to keep me on a more even keel with a host of very seperate medical problems. i have had tests, many tests, and surgeries and therepies all while being in PM. they just cannot actually Rx me any narcotics, with the exeption of surgeries. that IS done by my surgeon but ONLY for that specific post op pain management WITH coordination of my PM with everything about my Rxes til i am discharged from my surgeon again.

one BIG thing about many primarys sending you to a good PM clinic? in my particular case, we already knew what my main pain issues were about. i sat with my primary for about an hour just discussing what was the best possible option for me, and it was being sent to a good PM who could Rx the right meds and try and manage some pretty hellish type pain syndromes that just do not respond at all to any level of narcotics. your doc is not actually washing his hands of you, but sending you to someone who can help the most with pain, and alot of very hard to manage types of pain too. many primary docs or family practice settings just do NOT like to have to continually rx espescially like class II types of meds on an ongoing basis. they are just not set up with the very best controls in place to manage all that goes into just Rxing those classes of meds, so they send the patient to the place that can.

you DO have very specific rights just as a patient that are NOT limited just because the PM is taking care of your pain, you know what i mean? this is usually how this all works with most clinics. they too WANT you to actually have your ongoing conditions and the pain generators better Dxed. that is what kind of dictates just how they will even begin to try and manage your pain. but that is usually,the extent of their own involvemnt in most cases, just managing and doing some level of diagnostic injections or other types of treatment injections too.

i really do think that the doc who referred you there just really was kind of clueless as to what limitations most pain clinics actually have as far as Dxing things. they do do some, but you do need outside help with alot of what are your ongoing pain generators. UNTIL you actually obtain a real true dx of your pain situation, they are actually treating the pain and the symptoms they are seeing and what you tell them you are actually feeling. so in that regard,they ARE treating a real pain type of dx, they just do not yet know what is generating it,you know what i am trying to say?

most every type of real true pain generator will give off a very spcific "type' of its own symptoms. sometimes its easy to pin it down and unfortuently,with others,it either never truely gets shown up on any true test or Dx. it takes wortking with a very specific specialist, like in your case, an orthosurgeon, or neurosurgeon who can try and get to where that generator actually is. alot depends upon what showed up on any given test, but MOSTLY, what you are FEELING and where. in most cases, specific types of symptoms can be sort of 'tracked back' to the source of it, just by what is being affected in you and how you feel and describe it too.

just what are your specific symptoms? do you yourself actually have your own copies of all and any test reports? if not, get them so you can post summarys here. other people will be able to help with trying to figure out findings. also, PLEASE read the thread here on "how trustworty are MRIs"? its in this chronic pain section right here. trust me, it WILL inform you alot about the reality of MRIs.

i do hope this at least helped in possibly understanding what PM actually is and that you DO still have the right to outside help in Dxing pain generators or a specific medical problem. they just cannot do the narcotic Rxing for you. please let me know what was found in your MRI, it would help. alot depends upon sooo many different factors as to what actually even shows on any given MRI. but please do read that MRI thread, it contains a ton of really great info that i DO think you just need to see. Marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

Last edited by feelbad; 04-22-2009 at 09:05 AM.

 
Old 04-22-2009, 01:45 PM   #4
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Re: Pain Clinics, do they really help?????GRRRR

Quote:
Originally Posted by feelbad View Post
one big thing here about getting diagnostic treatment from others docs, is not true. when you enter a PM, the only restriction is with who can actually RX narcotics to you. you STILL do have every right to seek out a true diagnosis from any other specialist. i see five seperate specialists just to keep me on a more even keel with a host of very seperate medical problems. i have had tests, many tests, and surgeries and therepies all while being in PM. they just cannot actually Rx me any narcotics, with the exeption of surgeries. that IS done by my surgeon but ONLY for that specific post op pain management WITH coordination of my PM with everything about my Rxes til i am discharged from my surgeon again.

one BIG thing about many primarys sending you to a good PM clinic? in my particular case, we already knew what my main pain issues were about. i sat with my primary for about an hour just discussing what was the best possible option for me, and it was being sent to a good PM who could Rx the right meds and try and manage some pretty hellish type pain syndromes that just do not respond at all to any level of narcotics. your doc is not actually washing his hands of you, but sending you to someone who can help the most with pain, and alot of very hard to manage types of pain too. many primary docs or family practice settings just do NOT like to have to continually rx espescially like class II types of meds on an ongoing basis. they are just not set up with the very best controls in place to manage all that goes into just Rxing those classes of meds, so they send the patient to the place that can.

you DO have very specific rights just as a patient that are NOT limited just because the PM is taking care of your pain, you know what i mean? this is usually how this all works with most clinics. they too WANT you to actually have your ongoing conditions and the pain generators better Dxed. that is what kind of dictates just how they will even begin to try and manage your pain. but that is usually,the extent of their own involvemnt in most cases, just managing and doing some level of diagnostic injections or other types of treatment injections too.

i really do think that the doc who referred you there just really was kind of clueless as to what limitations most pain clinics actually have as far as Dxing things. they do do some, but you do need outside help with alot of what are your ongoing pain generators. UNTIL you actually obtain a real true dx of your pain situation, they are actually treating the pain and the symptoms they are seeing and what you tell them you are actually feeling. so in that regard,they ARE treating a real pain type of dx, they just do not yet know what is generating it,you know what i am trying to say?

most every type of real true pain generator will give off a very spcific "type' of its own symptoms. sometimes its easy to pin it down and unfortuently,with others,it either never truely gets shown up on any true test or Dx. it takes wortking with a very specific specialist, like in your case, an orthosurgeon, or neurosurgeon who can try and get to where that generator actually is. alot depends upon what showed up on any given test, but MOSTLY, what you are FEELING and where. in most cases, specific types of symptoms can be sort of 'tracked back' to the source of it, just by what is being affected in you and how you feel and describe it too.

just what are your specific symptoms? do you yourself actually have your own copies of all and any test reports? if not, get them so you can post summarys here. other people will be able to help with trying to figure out findings. also, PLEASE read the thread here on "how trustworty are MRIs"? its in this chronic pain section right here. trust me, it WILL inform you alot about the reality of MRIs.

i do hope this at least helped in possibly understanding what PM actually is and that you DO still have the right to outside help in Dxing pain generators or a specific medical problem. they just cannot do the narcotic Rxing for you. please let me know what was found in your MRI, it would help. alot depends upon sooo many different factors as to what actually even shows on any given MRI. but please do read that MRI thread, it contains a ton of really great info that i DO think you just need to see. Marcia

Thank you for your response, it was very helpful and I will read the thread on the MRI, Thank You again...The pain clinic I was involved with was almost 11 yrs ago, since then I have seen specialist and have 2 great doctors that work with me. The MRI back a few years ago didn't show up some of the damage that was done, so it was hard to detect anything for the Doctors I was seeing at the time. Beings test don't always show things wrong they just had no idea, but later found I was suffering from coyxidina and sciatica, something I was born with, unfortunately many doctors didn't think the removal of the tailbone would help in anyway, which my sister had done and my sister was born the same way and had the tailbone removed, unfortunately for me the doctor that she was seeing passed away and I couldn't get other doctors at that time to listen to me. I even went as far as throwing the pain medicine script at a doctor and told them I don't want to cover up the pain, I want to know what is wrong with me, He dropped me as a patient and my children and wrote I was a drug addict, LOL, I always thought drug addicts want the pain meds not throw them back at the doctor. That alone caused a lot of grief for me with my medical condition which made different doctors not even listen to me, and kept things prolonging and getting worse as time was going by, I was only 24 at the time that everything started to go down hill for me, and from then on it got worse..I am now 44 and have different DX from my 2 specialist, but I still have to be on pain meds, but at least now I know why I am on them. I can not remember some of the names that is in addition to the diagnoses above is now, but along w/ my back problems I have fibromyalgia .My Dr. does spinal treatments on my back, beings its w/ my muscles, nerves and bones, and they have made several attempts to getting my bone structure to straighten, but unfortunately to my body thinks being crooked is normal. I am not for sure how the pain clinic are now in the town I live in, beings that was many years ago I dealt with them, and when I was having a issue with increased pain or at that time I was getting a lot of migraine headaches I would call my primary physician and they would tell me back then that they couldn't help me beings I was under the care of the pain clinic, and of course I would call the pain clinic and they wouldn't do anything to help me, it was a nightmare...

I am just glad now that everything worked out and maybe some where down the line the way the pain clinic and the doctors run the clinic are a lot better now days then they were back there. It was a bad experience for me, but others I am sure have had much better experience with the clinics.

But, it was a doctor that told me that some doctors relieve themselves of the patient by sending them to the pain clinic and sometimes that is not the best choice, maybe further specialist would of been the answer.

 
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