It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Chronic Pain Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 09-16-2009, 01:12 AM   #16
Senior Veteran
(female)
 
Join Date: Mar 2008
Location: Australia
Posts: 520
Jema X HB User
Re: Back to Tramadol not so good

I'm so glad you saw your PM. Did they give you a new script? How many endone are you allowed to take each day? I just don't know how you're coping on tramadol and endone, I think I would have gone mad by now too.

When do you see the surgeon? He sounds better than the lady you saw last time. You need someone to take you seriously and unfortunately that can take time (I went through it too with the neurosurgeons and when they operated they found that the scans weren't showing the whole picture - as I'd been trying to tell them!). I'm glad you've got a good PM, I would have been happier to hear that he'd put you back on a narcotic until you see the surgeon - you went from fent to next to nothing. If the pain really keeps driving you mad, I think you need to ask for a low dose LA med like morphine or Oxy. I hope he's giving you enough endone, they're so stingy about giving more than 20 a month...yet all it takes is to ring for an authority.

I'm glad the injection worked, talk soon,

Jem

 
Old 09-17-2009, 08:56 AM   #17
Senior Veteran
(male)
 
allanbruce's Avatar
 
Join Date: Apr 2008
Location: Australia
Posts: 716
allanbruce HB Userallanbruce HB Userallanbruce HB Userallanbruce HB User
Re: Back to Tramadol not so good

Had some extra pain again this arvo so I had to use the endone. I wish he would give me something stronger than the tramadol as I just go through the endone in a week. At least I have it there to use. I am still having less of the sharp stabbing pain around the area where I had the injections so that is promising. I am having leg symptoms though and have been writing down the feelings I get like throbbing behind my knees and pain in the rear of the thighs. Also the sore feet especially my big toes and the pad behind them.
The injection also seemed to relieve the pain in the rear of my pelvis on both sides. I don't think I realise where the pain is sometimes until it stops or comes back with a vengeance. So I want to be strait with my explanation to the Orthopaedic Surgeon. I don't want to concentrate on the chronic pain, more so on the other symptoms as I will just get brushed off as a chronic pain lost cause.
I need him to know about the neuropathology and the stabbing pain (as high as 9-10 on the pain scale) also pressure in the legs and feet so he will consider treating these problems. Another thing that is a problem for me is hanging cloths up as when I reach especially if my back arches is when I get that stabbing nerve pinching thing happening. My sister bought a folding rack that I use so I don't have to reach up. This saves me considerable pain. But I also have to be very careful when I go to stand up or sit on a chair as that has been the trigger for the neuropathy in the past and can still be very painful if I don't support myself.
Oh well I can always go back to my GP and quiz her on another medication. But for now it is wait to see the surgeon on the 25th. It is not far away. I will keep up the distractions and try not to dwell on the pain.
Allan

 
Sponsors Lightbulb
   
Old 09-17-2009, 10:08 AM   #18
Senior Veteran
(female)
 
Join Date: Jun 2008
Location: United States
Posts: 1,412
nochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB User
Re: Back to Tramadol not so good

allan, did you try neurontin or any medication for nerve pain. (it's different than lyrica).
It doesn't help 100% but you know you can "mix" it together with the endone. I'm taking neurontin now together with percocet and you know, I usually take 3 percocet a day but today I needed only two.

(you know percocet has oxycodone in it together with acetaminophen(paracetamol))

I'm not sure that's the answer for you but most people here in our forum have been trying or still taking neurontin together with other meds. I've been on it for a day and will try it for at least one month and see how it goes for me.

Last edited by nochange; 09-17-2009 at 10:09 AM.

 
Old 09-17-2009, 09:14 PM   #19
Senior Veteran
(male)
 
allanbruce's Avatar
 
Join Date: Apr 2008
Location: Australia
Posts: 716
allanbruce HB Userallanbruce HB Userallanbruce HB Userallanbruce HB User
Re: Back to Tramadol not so good

Thanks for that suggestion I will talk to my doctor about that at my next visit. I am not taking anything for nerve pain and I know that I do suffer from neuropathy, burning and stabbing pain when I move the wrong way lift anything or bend the wrong way. I'm sure the nerves play a big part in my problems.
I had to go and see my GP today as I could not cope with this level of pain any longer. She has started me on Oxycontin but the Pharmacist told me it was the same family as the tramadol only a bit stronger. I will give it a try along with endone to help I should manage but we will see how it goes. She has only given me 10mg every 12 hours but if it helps she may increase that.
I just hope and pray that all this gets me somewhere and I don't just get turned away from the surgeon again. I don't know how I am going to live like this for the rest of my life. At present I can't do much of anything without ending up in agony. It just doesn't seem fare though I know there are others here that are much worse than I am. We just have to deal with our own torment the best way we can. Thanks for reading my posts and your advice.
Allan

 
Old 09-17-2009, 10:27 PM   #20
Senior Veteran
(female)
 
Join Date: Mar 2008
Location: Australia
Posts: 520
Jema X HB User
Re: Back to Tramadol not so good

Oxycontin is heaps stronger than Tramadol - though 10mg is not a high dose at all. I was started on 20mg and I believe most people are. At least she didn't start you on 5mg! (they don't have 5mg OC in the US).
I really hope it helps. You can still use tramadol as needed but you should really stick to the short acting tramadol and endone.

I don't understand why she won't give you a higher dose. I hope all goes well with your surgeon but he's not likely to give you any pain meds either - none of mine ever have. It's all through my GP/PM. It's great you're keeping a pain diary, that'll help in the appointment.

Good luck and I hope you feel somewhat better soon. Take care of yourself.

 
Old 09-19-2009, 08:24 AM   #21
Senior Veteran
(male)
 
allanbruce's Avatar
 
Join Date: Apr 2008
Location: Australia
Posts: 716
allanbruce HB Userallanbruce HB Userallanbruce HB Userallanbruce HB User
Re: Back to Tramadol not so good

I can now tell why they normally start at 20mg Oxycontin because 10mg has done nothing for me. I had to take 2 tonight along with an endone, valium, 2 endep, and 2 panadol. I was going nuts so I don't know what I will do? Go back to the Doctor tomorrow and tell her 2 of them is hardly cutting through the pain with the other as well. May be I should go back to the 2x 50mic/grm/hr patch every 3 days like I was. I just don't know. When the doctor starts asking me what I want to do it's time to look for a proper PM specialist I think, but where. I am not coping very well anymore. I really am worried about what to do. What if the surgeon turns me away again? I think I will loose it. I am so confused and I am not handling things at all. My whole life is on hold at the moment, I can hardly get out of bed in the morning, how am I going to be any use to anyone else?
I'm concerned that if I start the patch again the nausea will return again. That would be good for loosing weight again. But not a very nice way to live. Or just use up the endone and oxycontin and go looking for help again then. No wonder people with chronic pain don't live long lives.
Allan

 
Old 09-19-2009, 04:29 PM   #22
Newbie
(male)
 
Join Date: Sep 2009
Posts: 3
stevenwatson HB User
Re: Back to Tramadol not so good

You have hit the nail on the head !
I myself have no idea how to cope with my pain. Injections dont help, seems like we both live a living nightmare !


Steve.

 
Old 09-19-2009, 09:38 PM   #23
Senior Veteran
(female)
 
Join Date: Oct 2006
Location: NJ
Posts: 1,326
hessie28 HB Userhessie28 HB User
Arrow Re: Back to Tramadol not so good

Quote:
Originally Posted by allanbruce View Post
I can now tell why they normally start at 20mg Oxycontin because 10mg has done nothing for me. I had to take 2 tonight along with an endone, valium, 2 endep, and 2 panadol. I was going nuts so I don't know what I will do? Go back to the Doctor tomorrow and tell her 2 of them is hardly cutting through the pain with the other as well. May be I should go back to the 2x 50mic/grm/hr patch every 3 days like I was. I just don't know. When the doctor starts asking me what I want to do it's time to look for a proper PM specialist I think, but where. I am not coping very well anymore. I really am worried about what to do. What if the surgeon turns me away again? I think I will loose it. I am so confused and I am not handling things at all. My whole life is on hold at the moment, I can hardly get out of bed in the morning, how am I going to be any use to anyone else?
I'm concerned that if I start the patch again the nausea will return again. That would be good for loosing weight again. But not a very nice way to live. Or just use up the endone and oxycontin and go looking for help again then. No wonder people with chronic pain don't live long lives.
Allan
Hi Allan, It's not easy. I feel the same way sometimes. I'm 44 years old and I don't know how I am going to spend the rest of my life with the this pain. Who knows what a lifetime of taking pain meds can do to a person too.

I agree the Tramadol is no where the same as Oxycotin. Neither did anything for me. I have taken Neurontin and Lyrica for nerve pain too. They may have helped a tiny bit but both caused me to retain alot of water. So eventually I was having horrible swelling and joint pain. So the Dr. put me on Topamax. That was excellent. I did not get any side effects. I eventually had to stop taking it because it was interacting with my bladder meds. I needed them just as bad or maybe more. I had about 9 epidural shots from 2007-2008. Now I started the epidural shots again. Had about 4 since May. The last one may have took the edge off a tiny but but nothing exciting.

I was talking to my Dr. about the pain. I take 10mg of Oxycodone/Tylenol (Percocet) and 50mg Fentanyl Patch. I asked what was the purpose of the pain meds. Is it to rid me of pain or just take the edge off. He said take the edge off. I told him it the pain has been pretty much unbearable. He said if he increases it now that evenutally there will be nothing left to give me because I will have reached the max. I asked what is the next step and he said implanting the pain pump. I don't think I would ever do that but with the pain it may come to that.

My pain is at the lower back on each side of the scar into the hips. I have electric shocks in the groin area. I have pain down the back of both legs. It feels like someone took an hammer to them. I have a numbing sensation in my toes. My right foot hurts. Electric shocks down my right leg and sometimes the left. Both hips feel like a hammer hit them. Both knees hurt but having surgery Monday for one of them. In Sept. 2006 had a double fusion with instrumentation, Laminectomy and Discectomy. Now called Failed Back Surgery Syndrome. I also have 3 herniated discs in my neck. They don't hurt all the time but when they flare up it's bad.

Everything I have should be able to be helped with pain meds. I don't understand what the problem is. Why doesn't anything work for us?

Does anyone here have a Tarlov Cyst? Not much is known about them. Mine is 1.5 cm. It is at the base of the tailbone. It shows up on MRI's. Doctors don't even tell patients they have them. I saw it in my report and looked it up. All the symptons I have can be caused or made worse by the cyst. I have bad bladder problems which can also be caused by it. I think it presses on the nerves and you get the sensations and pains in the legs etc. My Dr. said "oh it's small and nothing to worry about". They are filled with cerebal spinal fluid. I'm just throwing that out there. Something to think about.

Allan, I hope you feel better. You are right that you may need another pain management Dr. I know I want them to come up with a plan and not the other way around.

Be well,
Kathy

 
Old 09-20-2009, 01:12 AM   #24
Senior Veteran
(male)
 
allanbruce's Avatar
 
Join Date: Apr 2008
Location: Australia
Posts: 716
allanbruce HB Userallanbruce HB Userallanbruce HB Userallanbruce HB User
Re: Back to Tramadol not so good

I have had that many injections in my back that I don't even flinch anymore. The facet joint ones just don't do enough to make them worth while.The last 2 where to the nerve roots at S1 and they did seem to take away about 1/2 the stabbing, shooting pain I have been getting the past 6 months, so as far as the surgeon is concerned I am hoping that means something, but that is only part of my problems.
I have to get the chronic pain under control before I can feel good about what the injection results mean. So I am just having to take as much oxycodone as I need to be able to cope until I run out then I'll need the doctor to increase the dose. Maybe a lower dose patch, 50 maybe with the oxy would help me.
Then I will have to deal with what I am going to tell the surgeon. I am going to have to impress on him that the spasms, shooting pain and lightning like pain up my spine (neuropathy) and leg pain needs his attention and I won't leave until he can help me with that in some way. My muscular skeletal specialist seems to think that the symptoms I am now experiencing can be treated surgically. I only have to get the surgeon to agree and offer me a procedure of some sort to stop any more nerve damage, before that is to late as well. Like my chronic localised lower back pain, that I have had for nearly 10 years now.
I'll just keep fighting until someone helps me. I just can't give up my family need me and I want to have some quality of life.
Allan

 
Old 09-20-2009, 03:02 AM   #25
Senior Member
(male)
 
Join Date: Sep 2009
Location: Australia
Posts: 162
guy in AU HB User
Re: Back to Tramadol not so good

I take tramadol 200mg SR twice a day, Celebrex 200 twice a day, and love it..... pain goes, and no side effects..... guess everybody realy is different.

 
Old 09-21-2009, 04:16 AM   #26
Senior Veteran
(female)
 
Join Date: Jun 2008
Location: United States
Posts: 1,412
nochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB User
Re: Back to Tramadol not so good

Allan, it's not living what you are going through. Sounds like it's pretty hard to find a good pain management in a australia. I wonder how long you could go on like that. Don't you just want to shout?
Somebody in our forum is taking those meds for pain, THis combination might help you.
sounds like oxycontin in itself is not enough for you.

Ask for this combination: Oxycontin, Neurontin, Tramadol, Robaxin, Cymbalta and Trazadone.
You can check over on the internet and just PRINT it to the doctor over there in Australia and tell him that's what they give in united states and you really suffer and you want to take what they take, just be really adamant about it, ok?.

sounds like you need the right combination and this might be the right combination for your pain.

Cymbalta and neurontin are both for nerve pain. robaxin is a muscle relaxant(not sure if they have this in australia but ask your doctor, anytime there is nerve pain it involves muscles and trazadone is a sleeping pill.
So then you don't need to go back to the patch if this combination works.

print it out and show it to your next pain management doctor. I hope you get better.

Last edited by nochange; 09-21-2009 at 04:19 AM.

 
Old 09-21-2009, 05:25 AM   #27
Senior Veteran
(female)
 
Join Date: Jun 2008
Location: United States
Posts: 1,412
nochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB Usernochange HB User
Re: Back to Tramadol not so good

Quote:
Originally Posted by allanbruce View Post
No wonder people with chronic pain don't live long lives.
Allan
I really never knew people with chronic pain don't live long lives. I know chronic pain dampen your immune system, I believe it can also cause diabetic, insomnia and of course to some people depression(if left untreated).

Last edited by nochange; 09-21-2009 at 05:25 AM.

 
Old 09-22-2009, 01:05 AM   #28
Senior Veteran
(male)
 
allanbruce's Avatar
 
Join Date: Apr 2008
Location: Australia
Posts: 716
allanbruce HB Userallanbruce HB Userallanbruce HB Userallanbruce HB User
Re: Back to Tramadol not so good

I forget where I read about chronic pain shortening your life but I'm sure it was factual medical information.
I really hurt my back today as I left a shop, I bumped into a lady entering and I arched my back as I bumped her. It was very painful and I am still suffering. I get a very sharp shooting pain when this happens and I could suffer for a couple of days afterwards.
I will note down the medications Nochange advised me, and talk to the doctor on Thursday when my meds run out. She may add some of these things slowly if she believes that they will help. I am sure I need something for nerve pain as this is probably what I am feeling now.
I was so happy for my parents as I found them a new home today. They just had their offer accepted, then I hurt my back within minutes. First up then down. It stinks.
Oh well see the surgeon Friday. So I have to stay confident.
Thanks Guy's.
Allan.

 
Old 09-22-2009, 03:48 AM   #29
Junior Member
(male)
 
Join Date: Sep 2009
Location: carlisle pa
Posts: 11
moovyz HB User
Re: Back to Tramadol not so good

Years ago I was on Oxycontin for chronic ureter cholic (I pass 10-12 stones a year) and for a short while I switched to MScontin. The pain reduction was great but I got headaches.

Are you still on the MScontin? If so are the results better than Oxy?

 
Old 09-22-2009, 06:24 AM   #30
Senior Veteran
(male)
 
allanbruce's Avatar
 
Join Date: Apr 2008
Location: Australia
Posts: 716
allanbruce HB Userallanbruce HB Userallanbruce HB Userallanbruce HB User
Re: Back to Tramadol not so good

I have not tried MScontin as yet. I only just started on the Oxycontin.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
How to Stop Cold-Turkey Tramadol / Ultram Wytt Addiction & Recovery 23 09-11-2011 12:50 PM
Tramadol tina76 Pain Management 14 05-08-2011 09:33 PM
Knee and Back pain... Hopeful Wishes Knee & Hip Problems 2 10-04-2010 07:45 AM
tramadol question katlovesdogs Pain Management 9 01-23-2010 08:55 AM
Tramadol and SSRI's deb53 Pain Management 2 10-22-2009 05:04 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:30 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!