Re: pain is so unbelieveable
are you actually 'IN" a good pain management facility or are those blocks just being done outside(just being referred to one for ONLY the blocks) of that as far as you being treated overall by a good PM doc? who is in charge of rxing your meds/narcotics?
honestly? the fact that you even got THAT much real solid relief with that first block is very encouraging actually. many of us with RSD will only get the duration of the block pain relief then it all comes back, but usually will at least lessen the overall intensity of the burn some for me on a good day, but nowhere NEAR what you achieved. one thing that could have actually happened with that second block is the doc simply missed that stellate ganglion when he injected? that unfortunetly does happen with this type of block since they have a hard time sometimes even finding that stellate that just sits next to the trachea. they know thay have hit it when you actually develop what is called a 'horners syndrome" in an eye? the lid gets droopy and the pupil really constricts down to almost pinpoint. if you did not actually experience the horners upon having that second block done, it just could have not hit it. thats just one possibility here since you just really seriously achieved an amazing level of response from that very first?
i would just wait and see how this next one goes. it is usually much more effective to do a whole series vs having just one done? i have had many done down in my low back in that symp chain level for my knee RSD. i only have had the one actual stellate ganglion done in my neck when i first started at my PM. it was just to kind of confirm a Dx of what is called 'central pain syndrome' that i have in my left arm from spinal cord damage. he just wanted to make certain, since some of those symptoms are the very same with both syndromes, that i did not get mis Dxed by my NS with that central. since the block did absolutely nothing up there with my pain, we did know for certain that it was indeed central and not RSD.
the one really huge thing that i have found over the years in trying to really manage my RSD pain(espescially the hidious flares) that actually helps is my TENS unit. i have had sooo many really bad side effects from like every one of the anti convulsants and cymbalta i have tried that took away abilities(espescially the lyrica) that i just go with more of the 'outside' forms of treating this hell. lidocaine patches can also help ALOT with this crap too. just exactly where is your RSD located and what triggered it, do you know?
getting to a really good pain management doc who is just willing to try the long acting types of narcotics,i really do think may help ten times more than a short acting form of med,espescially somethiong as weak as vicodin for this level of pain. while many docs will tell you that narcotics just wont actually 'do' anything when it comes to RSD, i have personally found and if you go to the RSD site just a scroll on down from here too that many RSD sufferers DO manage to at least get some level of true relief with the right narcotics taken. i am on oxycontin for my other pain crap and i do know it also does help at least some(probably more due to the natural dissassociative effects that narcotics just have on the brain?)with certain pain parts or components that just make up my RSD. it is always worth at least a good solid try to see if this would work with the appropriate type of longer acting narcotics. a good knowlegable PM would just let you give this a try anyways. anything should at least be given a good solid try when our pain is just that bad. what you are on now just would not even be enough of a good "hit' with this level of pain this syndrome brings along for the ride. if it can even just take some of that overall intesity down it IS a success in my book. lowering overall intensities of any pain just makes it much more tolerable.
but DO go down to the RSD boards here if you have not already done so. the people there are really great and caring and very helpful too. you WILL be welcomed there. there are just many many peop[le there who also have found many different and effective ways of trying to manage this level of hell. i DO hope that next block gives you what you were actually able to achieve that first go round. that really was an amazing response you had to one symp block. at least treatment is being aggressively persued right now, and that really IS crucial in possiby even getting this crap to actually remit itself in some people. yes, it can happen with aggressive and early hits with those symp blocks. so there is always some hope there hon. please let us know how that next block goes, marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.