Re: Not sure of diagnosis
has any of these docs ever really looked into just what these 'lumps' actually consist of? are these actually on the outside of the muscles and kind of 'visable', or are they actually INSIDE of the muscle? what tig mentioned about trigger points is a possible, but depending upon how these actually 'are'(how they are presenting?) would really dictate what needs to be done to really determine just what they actually consist of, like a possible bunch of 'cystlike' globs or something, or plain old TPs. just what do they feel like to you if you can actually even palpate on of them with your fingers? very hard or soft oo gel like/liquid in consistancy? i personally have been having an ongoing battle with some really insane levels of TPs myself for well over a decade now.
just the mere fact that these are on the muscle of the arms and legs really would kind of rule out the basic TPs, since those will usually form more on the upper torso like all over the upper and lower back muscle, but not where you are describing 'hundreds' of these lumps? they really need to just aspirate one of them or biopsy one to just see what they are and what their make up is. that finding after this is done would really tell much more just what the 'base' of the formations could be stemming from. 'something' is very obviously stimulating these to grow, and THAT is what needs to really be found out.
if no one has actually looked inside one of those little buggers they really really need to at this point. i do hope they can find out just what is causing all of these and your other symptoms too. please keep us posted as to what you find out. marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.