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Old 01-19-2010, 08:56 PM   #1
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Hai to all of u, my name is roslee and from malaysia.
I've been a cronic pain patient for several years since 2004. In 2006 i've warded and opt twice and implant with screw(titanium) at my back (L4/L5) spine. On 2008 i was ask to attend class for pain management under Dr. Mary Cordosa (pain specialist). At the beginning i was very shock that not only me but 9 people include me at that class. So surprise that everybody had same attitude ie: wanted to commited suicide because of pain.
After several classes finally i know that my pain cannot be cure but the doc told us that our pain can be manage.
Now my pain is "0" compare before i attended the class is "10".
I dont know how to tell u all but if u need some advice please let me know if i can help u all i will. Maybe we had in common.
Sorry my english is worst

 
Old 01-20-2010, 12:08 AM   #2
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Thanks for your thread. I am in Australia and suffer from chronic lower back Pain and have so for about 8 years. I still suffer at least 5 every day and this pain will not leave me. I hope that in the future there is a procedure that will help to stabilise my back and reduce the sciatica pain and shooting pain I have when I do anything more than just walk around for short periods. I am also unable to sit for any more than about 15 minutes.
Anyway I welcome you to the Health Board.
Allan

 
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Old 01-21-2010, 05:01 AM   #3
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Quote:
Originally Posted by allanbruce View Post
Thanks for your thread. I am in Australia and suffer from chronic lower back Pain and have so for about 8 years. I still suffer at least 5 every day and this pain will not leave me. I hope that in the future there is a procedure that will help to stabilise my back and reduce the sciatica pain and shooting pain I have when I do anything more than just walk around for short periods. I am also unable to sit for any more than about 15 minutes.
Anyway I welcome you to the Health Board.
Allan
Hai Allan..
U need to buy a timer so that after every 15minute the timer will alarm u that times up for u to sit.
The same procedure for your standing or walking time. But remember please do not over do ie: when u sitting for 15 minutes u dont feel any pain u go for a longer sitting. Dont care about everybody around u what they said. U are the one that suffer from pain.
Try to learn how to do relaxation

 
Old 01-21-2010, 10:50 AM   #4
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Re: New to this forum

So how did you manage to get your pain for a level 10 to a level Zero?

 
Old 01-21-2010, 10:45 PM   #5
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Re: New to this forum

Quote:
Originally Posted by rosleehadi View Post
After several classes finally i know that my pain cannot be cure but the doc told us that our pain can be manage.
Now my pain is "0" compare before i attended the class is "10".
I dont know how to tell u all but if u need some advice please let me know if i can help u all i will. Maybe we had in common.
With all due respect, this is not medically possible. Either your pain wasn't not a true 10, or this post is spam. A "10" on the pain scale is the worst pain imaginable....Worst than post surgical pain. Conversely, a "0" is no pain whatsoever and completely pain free.

Regards,

Ex

 
Old 01-21-2010, 11:15 PM   #6
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I'm sorry but I think that you're taking the pain scale a little out of proportion. A 10 is supposed to represent the worst pain imaginable and I've personally experienced that recently (and it's worse, much worse than post op pain) - a 10 is where I literally pass out because my brain shuts down because of the intensity of my pain. This is not common and many pain patients will never experience it. I certainly didn't know until I did. My PM and the hospital have both explained that if someone's pain is untreated or not treated to a high enough degree and the pain is extremely severe, the brain shuts down as a protective measure. So this is really what a 10 is.

I live mostly with a 6 and that's pretty bad, affects my concentration, energy levels, sleep...pretty much everything I do.

A 0 is something that true chronic pain patients are not expected to achieve. If they do then they are over medicated and at risk of addiction or they were never 'chronic' pain patients - rather people that have pain flare ups at times.

I hope that doesn't sound harsh but that's the reality. No PM will ever push for a 0 because for most it's impossible anyway. I take fairly reasonable doses of narcotics and a 6 is my minimum (maybe a 4-5 first thing in the morning after my meds have kicked in, if I've slept well and I haven't gotten out of bed yet). This is considered by my PM (all pm's really) as acceptable. In order to get my pain lower than a 6 average I have to take more than double my meds and that isn't worth it for numerous reasons.

I'm glad the course worked for you.

 
Old 01-22-2010, 07:16 AM   #7
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I agree with Ex and Jema. A 10 is the worst pain ever and with Pain Management some of us hope to hover around a 5 on a good day! If someone has chronic pain he/she will not be at a 0. A 0 can occur after acute pain, but not chronic pain. I can say that even though I've had severe spine problems since 2005, I have not experienced a 10 in all that time EXCEPT for during or after certain procedures (for example, headache that was induced during the myelogram as dye entered my brain and a spinal tap that went poorly).
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