I have had a extremely bad day that I don't know where it came from. Yesterday I was sore so only had a casual swim. Then this morning was very hard to get up but after my meds kicked in I was ok. But that lasted about 2 hours. Then the pain kicked in. I took more paracetamol and a 5mg endone and went to bed. An hour later in agony I took another 2 endone (10mg) and and 2 valium (10mg) and bed again. I was just able to get up for some dinner but it is still not good. I would go to the ED only the wait is usually about 4 to 6 hours so it is hang in there until I see my specialist at 4pm tomorrow. I am going to ask him to ring for an authority for more endone as it seems the oxycontin is not lasting as well as it did before. I also think the nerve block has worn off as the pain is from my waist down. You know when you can't really tell exactly where it is coming from, it just hurts big time.
I am just going to go back to bed soon and hope I can sleep and then be prepared with water for the morning for my last 2 endone. I will be having another 2 valium tonight to try to get to sleep.
It is a little later now and the pain has come down some so I will get to sleep ok I think. I really hope tomorrow won't be a repeat of today.
Last edited by allanbruce; 01-28-2010 at 04:43 AM.
Hi Allan. I sure hope that the bad day was just a "one of" occurrence!! I sometimes think that the changing weather really affects my neuropathy and pain levels. Something to do with the atmospheric pressure. This may be a little out there, but I have heard of others with the same reaction.
Anyway I just wanted to say that I am hoping your doctor appointment went well and that you don't have very many of those awful days.
I am always glad to see your posts and I hope your doctor finds something to relieve that awful pain your experiencing.
Happy belated birthday too!
Nochange I find valium very helpful but as others have said you may heed to start on a low does and only take it when you need to. I can only get 5mg tablets so you are doing well to get 10mg. Just break one in half and try that. It may not make you as dizzy. I have never had any problems but everyone is different. I mainly take it when I lay down and the leg problems (Sciatica) or spasms won't leave me alone and it does usually help me to nod of for a bit which is helpful to me.
Thanks for the birthday wishes.
No problems with valium, but I don't take it every night just when I am bad and then 1 5mg or 2 if I am really bad. I try to make them last a month. When I have a bad flare up I might take 4 in a day 20mg.
I'm glad you've got the valium but did the doc give you a boost in your meds? From what I remember, you're taking quite a low dose compared to the 100mcg fent patch you were on not long ago. Is someone supporting you meds wise? I remember you saying that your doc wasn't much good. you deserve a lot better.
No I got no response from the doctors so I don't know who else I could see. The only other option is a pain clinic and from what I have heard they are more likely to reduce my meds. I am just not sure what to do next. I see a surgeon at the end of march and I am hoping to talk to him about what surgical options I have. Even if I have to wait another 9 months now.
My GP has been concentrating on the testosterone thing and the specialist had computer teck's hovering around to turn the computers off. So nothing yet just the usual them worrying too much about there own problems. I don't really know what to ask for anymore. The injections mucking up my hormones and the anti-inflammatorys my stomach, the paracetamol effects our livers and who knows what else. I just don't know what meds I can trust or even surgeries for that mater.
The only other option is a pain clinic and from what I have heard they are more likely to reduce my meds. I am just not sure what to do next. I just don't know what meds I can trust or even surgeries for that mater.
Reducing your meds over there in the pain clinic?. I wonder why should they do that.
Do they have in australia morphine tablets/pills?. (mscontin, avinza, kadian).
I've never tried them but people here say it helps them and it's better than the oxycontin an/or the patch. If they don't have those in australia, you should ask for morphine injection, this should help, I hope?. You should ask your primary care physician and see what he say?.
Something really must be done. You must take charge here.
As I see, no doctor over there has a little compassion over your situation. It's cause they never experience chronic pain, that's why. Let them FEEL it for a day and they will shout. As matt(a member here)has said, they are smart and educated but they have no idea what it means to live like that.
So allan, if you can, go for morphine. I don't see any other options for you, honestly. Together with percocet or what they have over there similiar to percocet for breakthrough pain.
Thanks for your reply, I have just been cautious about the pain clinics but it may be my only option. As the doctors here don't want to have anything to do with narcotics. And I am not sure what the correct medication for me would be but I know that I am not being treated the best way possible, but I don't know if the doctors really know what to do. I have an appointment with the orthopaedic surgeon for the end of march. But he can't treat my pain. I do need a good pain specialist but I just haven't found one yet. All I can do is keep trying. Allan.
Allan- I'm continuing to send positive thoughts your way. I know this is so very hard for you, but hold on with everything you have, ok? I hope & pray that you will be able to find the doctor that can truly help you soon.
In the mean time, just know that we are all here for you.
Allan, I was surprised to just now read that you haven't been to a pain management clinic. I think you just need to be assertive and make an appt. for one. If the first one doesn't work out, or you just don't like it, move on to the next one. In fact, make an appt. with one, and have a second choice (sort of a back up plan) in case the first one doesn't work out. Think of Pain Clinic's like women (in your case), if the first one doesn't work out, there's always another one. Ya know like the old saying, "there's plenty of fish in the ocean". ....janiee
Thanks guys I will see if I can find one somewhere near me. I will give them a chance because I will need pain management for as long as I can foresee. I really hope that I can have an operation for at least the sciatic pain in my bottom and down my leg mostly on my left side, coming from the L5 nerve root. This is new to me (about a year) compared to the chronic lower back pain I have suffered now for about 7 years. I will keep you informed. Thanks. Allan.
I don't know how I am going to find a pain specialist in Brisbane that isn't a Private hospital. As I can't get private health until November. I have searched the internet without any luck so far. And I know to get into the public hospital clinic there is a long waiting list. So I have to find a GP who does pain management and one who bulk bills (no cost to me). I have lost a couple already, they seem to be hard to come by and hard to hold on too. I don't know what else I can do. Just cope with what I have.