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Old 03-07-2010, 01:36 PM   #1
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PLEASE HELP!! Depression from pain or is it two different things?

Hello all--

I am new here, although I should have posted a long time ago. I am 27 yof with IC and endometriosis. I also have ovarian cysts. I have had several operations for the removal of the endo but not much helps the IC. I also am having a hugeproblem with fatigue and depression. It is really hard to get out bed. i am a young mother and this is a huge problem--I feel as though my son got a bad mommy--I feel really, really bad about it. I constantly feel as though I am coming down with the flu. I also dont see thepoint in doing anything anymore. My quality of life is no good. I do am not sure what is worse--the pain problems or the depression. Not only do I have the IC and the endo but had a very bad c-section 11 months ago. My husband realizes I am miserable and I feel bad about that too....I dont even have the energy to wash dishes and do laundry--I have to really force myself. I have no hobbies as ihave zero energy. My son is suffering from my suffering. The only time I feel normal is when I am using my oxycodone but also dont want to do that. I am prescribed tramadol--does nothing, and oxycodone for when my period comes. I really cant deal anymore---does anyone have a similar exp or have any suggestions at all? I am open to medication suggestions as well as alternative therapies--but dont have a huge amount of money to spend on them. Please help!! xxx

 
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Old 03-07-2010, 04:22 PM   #2
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Re: PLEASE HELP!! Depression from pain or is it two different things?

I am sorry I can't help with any suggestions but I am glad you have spoken up at this place and are willing to listen to others opinions. I am sure there are others here that will jump in with some information for you. I welcome you here anyway and hope you can make some friends here and some support.
Allan

 
Old 03-08-2010, 09:11 AM   #3
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Quote:
Originally Posted by Jjames1 View Post
The only time I feel normal is when I am using my oxycodone but also dont want to do that. I am prescribed tramadol--does nothing, and oxycodone for when my period comes. I really cant deal anymore---does anyone have a similar exp or have any suggestions at all?
Hello and welcome to Healthboards. This is a great site where many people here have diverse backgrounds and all come together to offer support and advice.

If you don't mind, I'd like to ask a few follow up questions before commenting on your overall issue....The questions will help me get a better understanding of things.
  • What type of Oxycodone do you take and how often?
  • What is the Tramadol prescribed for and how often do you take it?
  • How long have you been taking these pain meds?
  • Why type of Dr are you seeing for your condition(s) and who (not name, but type) prescribes you the meds?

I'm pretty sure I can help....At least point you in the right direction, but need a bit more information.

Take care,

Ex

 
Old 03-09-2010, 07:40 AM   #4
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Jjames,

I am so sorry to hear about your pain. Please do not give up, as difficult as it seems and as trapped as you feel right now, hang in there. There is definitely a way out.

What kind of physicians have you been seeing for your problems ? There are special physicians that can tackle your specific type of problem. For example, a urogynecologist may be able to help you better with both your endo and IC problems than a regular gynecologist. There are treatments that you can try that will help you with your IC and I am not sure if you have tried any of these.

Most likely, your depression stems from both your IC and your endo pain. Pain is a very difficult thing to deal with every single day (as I am sure you are well aware) and I think that by successfully controlling these two things, you will be able to take control and climb out of the depressed state that you are in.

I have been dealing with non bacterial cystitis for almost a year now. It started shortly after a laparoscopic surgery that I had to remove my left ovary and tube due to a large persistent cyst. The cystitis was minor at first and I thought it would go away but it got worst and I started to have discomfort almost all of the time. I finally contacted my surgeon and she consulted with a urogynecologist who gave the choice of either a low dose of Elavil (an antidepressant that is used in low doses to control IC) or Potassium Citrate (a less invasive prescription that alkalizes the urine and reduces irritation, inflammation and pain). I chose the Potassium Citrate and have been on it for about 7 months now. I also avoid alcohol, coffee, tea, tomatoes and other acidic or irritative things. I am much better and the problem is slowly going away. I am told by my doctor that this is temporary and it will go away but I sometimes wonder if I had let it go and not started some sort of treatment right away, it may have become permanent (and I am still not sure it will go away completely .. I waited four months before recontacting my doctor because everytime it went away I thought that was it). I was to the point of becoming so depressed when the pain returned that all I could do was to sit on the couch hugging a heating pad (this also helps for the pain, even if a little) and did not feel like doing anything else. As my condition began to respond to the treatment, I started to get back to my old self again. I still have flare ups but these are getting rarer and rarer so I know there is hope.

This can happen for you as well, I am CERTAIN. You just need to find the right doctor and the correct treatment that will help you to control the pain. Pelvic pain is a field which is making big strides these days. I would highly recommend the following books for you to read if you have not already done so:

The Interstitial Cystitis Survivial Guide: Your Guide to the Latest Treatment Options and Coping Strategies, by Robert M. Moldwin, M.D., F.A.C.S.

and

A Headache in the Pelvis: A new understanding and treatment for chronic pelvic pain syndromes, by David Wise, Ph.D. and Rodney Anderson, M.D.

I am not certain that the pain killers that you are taking are the best option for you long term (I would venture to say that they are not). I am not certain if the Tramadol has addictive properties (although I believe that it is active in the same way as the more addictive drugs) but the Oxycodone certainly does and you don't want to add another problem to the ones that you already have. There are other long term options available which will help you to deal with the pain. Besides urogynecologists there are also pain specialists that exist (these are usually anaesthesiologists with special training in chronic pain) and some of these sub specialize in pelvic pain.

I am not a physician but I do know that there is definitely a treatment protocol that is right for you and that will bring you out of this depression that you are feeling. There is a way out ! If after reading this, you have any more questions or concerns, please come back and ask. If I cannot answer your questions, there are usually many people on these boards with experience and knowledge that can help.

Take good care of yourself.

Estria

 
Old 03-16-2010, 02:59 AM   #5
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Quote:
Originally Posted by Jjames1 View Post
The only time I feel normal is when I am using my oxycodone but also dont want to do that. I am prescribed tramadol--does nothing,
hello. tramadol did nothing to me also. why don't you want to use oxycodone if that's the ONLY thing that HELPS you?. I don't know how to tell you that, but sometimes in life you have to do things you don't really want to do. This pain takes all your energy and makes you feel DEPRESSED.

If I dont' take OXYCODONE I will get really depressed. Before strarting on oxycodone people STOPPED me in the street and asked me why I'm DEPRESSED!. they thought something horrible really happen.

It's the pain girl that causing you to feel depressed. If I was you I would take oxycodone so you can function you know?. I would rather not taking oxycodone if doctors could FIX my pain you know?. but they can't. so I have no choice.

let us know how you doing.

 
Old 03-16-2010, 04:31 AM   #6
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Have you tried hormonal treatment for the endo?

 
Old 03-22-2010, 10:09 AM   #7
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Thanx for all of your responses, really. I have replied via email to many of you but then got an email saying I needed to post here instead of emailing you all--so sorry for the delay. To answer some of your questions;

I use my prescribed oxycodone for my period and when I have UTI's that get into my idneys. I can use up to 30mgs and feel no altering effect whatsoever other than my pain is gone and I can function. Ihave used this med on and off since high school when my first of six surguries started. I also use it every month for seven days during my period.

The tramadol I have been prescribed to for a year. 100mg three times daily. It barely helps-usually helps me to pee without crying. I guess you could say it somewhat helps. Helps nothing when I really am in a lot of pain--which is often.

These meds are given by my GP with my OBGYN agreeing. I have also seen a urogyn--and I hate them bc the subject me to tests that really really hurt--catheters!!! ouch!!

As far as other meds I have tried/used Lupron--for regulating periods and cysts for 1.5 years and the side effects were to much to to deal with. Lupron sends you into a medically induced state of menopause--not fun for a 25 year old. I have also tried many birth controls/the patch and pills. I have used Elavil--gave headaches and made me even more tired than I already am--not helpful. Cymbalta was also prescribed but my insurance did not cover it and it is way to much to pay for myself. I have also tried MSContin-made me sleepy--again, not good.

I really want to say thanx you guys for sending such lengthy responses. It truly feels as if though you care. My body is just so tired and all I want to do is play with my son and run my household....its so frustrating..oh yea--I also tried a tens unit--useless. My stomach has 3rd degree burns from my heating pad use--they are really bad--but heat does help. I often just run the shower and lay on the floor until the hot water runs out. I am not sure what else to do. I cant seem to gt the guts to tell my doc that the tramadol does not help as much as it should and I need an alternative. I thin it is the stigma attached to oxycodone that leaves me weary. Sad huh??? Ihave just been through so much alreadyand Im exhausted.

Thanx again to you all! sorry for the spelling errors--my son is right here--an anxious one year old!! He loves to touch the computer!!

 
Old 03-22-2010, 10:10 AM   #8
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Also--have any of you used or tried Wellbutrin? and if so how did it go?

 
Old 03-22-2010, 05:32 PM   #9
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Taking your tramadol with ibuprofen (2 x 200mg tabs) or acetaminophen (2 x 500mg tabs) or even both would greatly increase the pain releif you are getting, safely and cheaply.

Might be worth giving it a try.

If your period is so bad you need oxycodone, why not use hormonal methods to stop mensturation, and thus totaly avoid the pain?
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Last edited by jonnstar; 03-22-2010 at 05:42 PM.

 
Old 03-22-2010, 08:21 PM   #10
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Jjames, You may also want to look into Fibromyalgia. Google it and see if your symptoms match, and go to our Fibro board on this website. Also, there are other forums on this website like Women's Health etc.Good Luck!!....janiee

 
Old 03-23-2010, 03:52 PM   #11
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Re: PLEASE HELP!! Depression from pain or is it two different things?

Hi Jjames - I could really feel your frustration and pain when I read your post. I was a few years younger than you when I ended up having a complete hysterectomy with removal of my ovaries and tubes due to severe endometriosis and fibroid tumors. I too went through a series of hormonal therapies and surgeries trying to rid my body of the endo. I also had a huge problem with post-partum depression that was so severe I ended up in a hospital on a psychiatric ward when my baby was about 6 weeks old. The feelings I had during that depression were many of the same symptoms you are now describing: lethargy, no interest in anything, inability to even get up off the couch or out of bed. Just the thoughts of holding my baby scared me to death! I was confused, crying all the time, and overwhelmed by the sudden sense of responsibility that I had. Unlike many women who don't get their periods right away after giving birth and especially if they are nursing, I got my period 4 weeks after I had my little girl!! I couldn't even get an extra few months away from the pain of endometriosis. So, having said all of that, I think that you need to see a ob/gyn who specializes in treating endometriosis and kidney/bladder problems like some of the other posters have mentioned. But, you also need to talk to your doctor about your feelings of depression. It is not uncommon to have feelings of depression for many months and sometimes years after giving birth and you probably need some medication as well as talk therapy to start feeling like your self again. I know how horrible you can feel while taking the hormone medications for endo and I also know how expensive they can be. I hope you will go back and talk to your ob/gyn and get some help or ask for a referal to another doc who specializes in both your problems. My heart goes out to you! I had my hysterectomy at 22 so I know how hard things can be at such a young age. But after the surgery I was completely pain free and today I have a beautiful 33 year old daughter who is getting ready to present me with my third grandchild! Please let us know what you decide to do. I'd love to hear an update from you! All the best - BrittleBones

 
Old 03-25-2010, 11:50 AM   #12
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Re: PLEASE HELP!! Depression from pain or is it two different things?

jjames,

Opiates will decrease your nor-epinephrine production, so my doctors prescribed Cymbalta which is a SNR. Basically it inhibits the reuptake of both Serotonin and Nor-epinephrine.

Also, chronic pain is stressful and depressing at times. See my blog entiltled Giving Ourselves Support http://www.healthboards.com/boards/blog.php?b=359

I've listed some tips for endorphin therapy.

~Myo

 
Old 03-25-2010, 02:20 PM   #13
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Re: PLEASE HELP!! Depression from pain or is it two different things?

I also had severe endo ending with a radical hysterectomy. I used to have cysts rupture all the time and they would have trouble stopping the bleeding. Currently I have an auto-immune disease that causes me to have chronic kidney stones and bladder infections and cystitis. I am on 2 antibiotics that for some reason keep it under control. I take one anti-biotic everyday and if I still have a flare of cystitis then I take the other one in addition. My Urologist is the one who came up with that plan and it has worked for me for years. I was in agony and I can't take peridium as something in it makes me vomit and I was dying with nothing to numb my bladder. I now take a med called Prosed. It does the same as peridium but instead of turning the urine orange it turns it blue. I got a lot of stares in the ER walking back with my blue urine sample!!

Melyssa

 
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