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Old 03-14-2010, 05:46 PM   #1
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Desperate for a solution

I have found these boards and read so many of your stories, they make me feel that I am not so alone, though I wish none of us was in pain.

I've had ulnar sided wrist pain and ulnar nerve pain for nearly six years now, following a fall. At first, my consultant queried RSD, then decided to operate which only made things worse.

I'm also severely asthmatic and have also developed gastric problems from all of the meds I take, resulting in even more pain.

I am the breadwinner in my family and the exhaustion I feel in common with you all means that I can barely cope with my work and certainly have no energy left for anything else. I manage the house as best as I can.

My husband tells me I am not the woman he married. My sense of humour has vanished. My libido left about 3 years ago. I never want to go anywhere, or do anything - apart from sleep when I have taken my painkillers.

I've been on co-codamol 30/500, amitriptyline and gabapentin for nearly six years now. Maybe I have developed a tolerance to these drugs, but they hardly touch my pain these days.

I'm so tired, yet I feel like everyone thinks I'm lazy. The gp has mentioned pain management clinics in the past but never referred me. There has also been talk of further surgery. I just don't know what to do.

The thing that gets me about pain is that the longer it goes on, the more effect it has on the person suffering it. At the same time, the longer it goes on, the less other people care. I have always made an effort not to complain as it won't change the fact that I'm sore, but sometimes I wonder if I should say more.

Sorry for this long post, just felt that this was a good place to get it all off my chest.

I wish all of you some solution for your pain x

 
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Old 03-14-2010, 06:30 PM   #2
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Re: Desperate for a solution

I'm not familar with some of your terms,but I can empathize with you and your illnesses.The one thing that I ran across recently was a radio program where the thyroid was discussed.It was too technical for me,but I did get that this organ in the throat does a lot of things to control your body.This Docter said that his work
told him that other types of tests,besides blood tests, for the thyroid were very
sucessful.He was on Coast to Coast the other night. Luck...Bill

 
Old 03-22-2010, 07:37 AM   #3
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Re: Desperate for a solution

I am in the same boat as you. I went through all this after having RSD for 10 years. I have found that the seizure drugs like Neurontin, Lyrica and gabapentin actually caused the drowsiness and loss of energy that you are feeling. Try to get referred to someone who specializes in your area in RSD or complex regional pain syndrome. Some pain clinics like to take away all your pain meds and want to do nerve blocks. I ended up in the hospital after a nerve block. I now have a pain stimualtor that is in bound and am doing as well as can be expected. Keep on trying to become the person you were, because if you give in to this you will never be able to beat it. Try pain patches and Amiben at night to get a good 8 hours sleep without the pain. I know how you feel. I went for several years from doctor to doctor before getting in touch with a pain clinic that is 56 miles from me, but it is worth the drive to get good treatment.

 
Old 03-22-2010, 02:04 PM   #4
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Re: Desperate for a solution

Thanks so much for the replies. I have had blood taken several times and my thyroid function is ok.
I've seen another consultant and had some of my medication changed. Feeling like a space cadet right now. Would rather I finally got referred to a pain management clinic, there doesn't seem to be any RSD specialist that I can find in Scotland.
Anyway, thanks again for the support - it means so much x

 
Old 03-22-2010, 08:27 PM   #5
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Re: Desperate for a solution

squiggly, You might also want to visit our Pain Management Boards. Also, I do think you need to see a good Pain Management doctor. Good Luck!!....janiee

 
Old 03-22-2010, 09:48 PM   #6
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Re: Desperate for a solution

Can I ask, if you are the bread winner, why isnt your husband managing the house? You need to not push your self so hard, so what if the flors dont get vaccumed this week, or you have a take away for dinner some nights?

You could try one of the stronger co-dydramol tablets as a stronger analgesic, and you could also take ibuprofen at the same time as either that or co-codamol to boost it even more.

Most of all, dont give up - an answer is out there for you!
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Last edited by jonnstar; 03-22-2010 at 09:50 PM.

 
Old 03-23-2010, 04:54 PM   #7
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Re: Desperate for a solution

Bit of a sore point actually, and an endless source of friction between us (the housework, that is).
I have tramadol, which I take at night, as well as the cocodamol during the day. Will be seeing my consultant again in a couple of weeks so will find out a bit more about the surgery that's on offer.
I'm not able to take ibuprofen because it affects my asthma.

Thanks for the kind words, I won't give up. I think I just wanted to vent and was feeling particularly down when I wrote the first post.

 
Old 03-23-2010, 06:47 PM   #8
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Re: Desperate for a solution

Codydramol contains paracetamol and dihydrocodeine - dihydrocodeine is semi synthetic, and is 50 - 100% stronger than codeine.

It might be worth asking your doctor if you could give 30/500mg Codydramol a try for a week or two, to see if gives you more relief than the cocodemol does.

Very best of luck!
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Old 03-28-2010, 05:52 AM   #9
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Re: Desperate for a solution

Squiggley,

Please read my blogs on Family Not Understanding and Giving Ourselves Support

Hopefully they will hold some answers for you.

~Myo

 
Old 03-28-2010, 06:51 AM   #10
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Re: Desperate for a solution

If you are working and your husband isnt, he needs to take over the running of the house. If you both work, he needs to do a good half - you cant be super woman, dont try to be. You need to have some time for you, especialy when you're in pain.
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Old 03-28-2010, 02:49 PM   #11
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Re: Desperate for a solution

If you have chronic pain and you believe you need to see a pain management specialist, come right out to your doctor and tell him you want a referral to one. You have a right to do so. (be polite about it of course) Being in pain for so long is horrible (we all know this) and we do have rights as patients to be treated appropriately. But once you do see the pm you wont get any pain meds from your gp or the doctor you see now, which in a way simplifies things. Its a long journey, but once you see a pm then you will feel a weight off of your back because they understand as well. Some offices have counciling as well, because chronic pain isnt just about the physical, its the mental and psyche as too. You can also take your husband to the appt and this way maybe he will get a better idea and understanding of what you go through.

It may take a while to get the right combo for treatment (I am still trying to get where I need to be - I have ankylosing spondylitis, fibromyalgia and osteoarthritis in knees)

Good luck to you and come read the pain mgmt boards as others have suggested.

CS

 
Old 03-28-2010, 05:12 PM   #12
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Re: Desperate for a solution

Pain management isnt such a common secialty outside of the US. In Australia, there are pain specialists in major teaching hospitals, but most pain management is undertaken by PCP's or doctors in other specialties, such as rheumatologists etc.

That isnt to say they arnt as good or as well qualified as American PM doctors, most of them just dont describe them selves as such, and conduct a mixed practive, some chronic pain patients, and some others, for example rheumatoid arthritis or whatever.

That is largely because other countries have a more relaxed system to deal with medical use of narcotics - in australia for example, there is no DEA - medical use of narcotics is managed by the health department, not the cops.
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Old 04-07-2010, 12:24 AM   #13
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Re: Desperate for a solution

Quote:
Originally Posted by squiggley View Post

I've been on co-codamol 30/500, amitriptyline and gabapentin for nearly six years now. Maybe I have developed a tolerance to these drugs, but they hardly touch my pain these days.

Sorry for this long post, just felt that this was a good place to get it all off my chest.

I wish all of you some solution for your pain x
Hello squiggley, there is no need to feel sory. co-codamol? I've checked and it's codeine with paracetamol? That's nothing for chronic pain. Are you from england?. co-codamol. amitriplyline(spelling) and gabapentin are fine but they are not enough for chronic pain.

You should ask your doctor for narcotic pain meds and tell him you cannot function. Don't they have in england percocet or oxycontin?. Oxycodone - this is the only thing that helped me function. I'm telling you the pain gets worst as years go by. If I won't take percocet I will lose my memory. chronic pain can cause you that.

PLease go back to your doctor and talk with him about that and let us know how you doing...
all the best

 
Old 04-07-2010, 03:26 PM   #14
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Re: Desperate for a solution

Thanks for the comments, my gp has changed my co-codamol to tramadol which is a bit stronger and I have surgery tomorrow morning which will hopefully improve the situation. Will be back on the forum as soon as I get used to one handed computerating.

 
Old 04-12-2010, 05:45 AM   #15
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Re: Desperate for a solution

I suffer chronic pain following failed lumbar spinal fusion and spinal stenosis. I have had repeated unsatisfactory pain clinic consultations. Luck, a friend, pointed me to an article on transcutaneous spinal electroanalgesia, and I have found it has improved my function, my pain endurance and also reduced my morphine requirement. I believe that the help it has given me is more than placebo and continue to use it daily.

 
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