I'm sorry about the pain you're in, that sounds miserable. Have they started running blood panels and testing you for connective tissue/Rheumatology related disorders - tested your ANA and tested you for Rheumatoid Arthritis or Lupus or other autoimmune type conditions? I personally have Systemic Lupus and it took forever to diagnosis, but MANY of symptoms sound very similar to what you describe. I would literally have pain from head to toe. At night I would be in tears and couldn't even put weight on my feet, without crying out in pain, yet it hurt to lay down and it didn't seem like I ever managed to get a good night's sleep (this while trying to manage twins toddlers, my duties around the house and a full-time career). It was very frustrating to never felt "heard" by my doctors. My lupus also caused neurological symptoms and I had migraines at least 3 or 4 times a day.
Developing keep pushing for more tests. Something has to be causing these symptoms and it is likely something your Doctors are missing.
I hope you get answers soon. Keep us posted on how you're doing.
~ Fiona Jo