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Chronic radiating leg pain please help!

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Old 05-04-2011, 03:13 PM   #1
Join Date: May 2011
Location: NY
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boslie HB User
Chronic radiating leg pain please help!

For the past 8 years, I have been suffering from chronic leg pain. In the last year it has gotten worse and I'm not able to deal with it anymore. I have seen a knee specialist, a back specialist, and several other doctors and nobody seems to have any idea of what's causing it. It is a constant pain, radiating from my groin and butt all the way down to my toes. Sometimes it concentrates in my knee, but usually is over my entire leg, thighs, calves, feet, groin, etc. It is in both legs alternating randomly but slightly more often in my left leg. The only pain relief I ever get is when I massage my foot (specifically the arch), or massage my thigh or butt, or when i pull my leg up from the backside of my knee, digging my fingers into the muscle in back of my knee. Once in a while I make my husband pull my leg straight out and that helps a bit. I cannot figure out what's wrong! I don't think it is a back problem because I don't really have back pain (once in a blue moon I get a sharp lower back pain but not often).
If anyone has suggestions or ideas or suffers from the same thing please help!

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Old 05-05-2011, 03:33 AM   #2
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jess7718 HB User
Re: Chronic radiating leg pain please help!

What it sounds like to me, is myofascial or muscle pain. You can have trigger points which are taut bands of muscle, that shorten the muscle, causing referred pain to other areas of your body.

I have trigger points in the gluteal muscles, and primarily the gluteus minimus muscle will refer pain down the back of your thighs in a psuedo-sciatica like distribution. Your adductors, if they are tight can refer pain to the groin area as well. When you speak of pain in those areas, I think of these muscles: gluteus minimus for butt pain down your legs, and you may also have trigger points or tight muscles in your calfs that refer pain to your feet, the soleus and gastroc muscles refer pain to your heels and sole of the feet.
I would certainly look into an Osteopath, a DR who deals with more muskuloskeletal issues, or a myotherapist , a therapist trained in recognizing tight painful muscles.

best wishes, jess.

I have had chronic leg pain for over 2 years.
One other thought is to have your alignment checked . Your pelvis. As, muscular imbalances can develop in the lower body if there is compensations.

Last edited by Administrator; 11-29-2011 at 01:17 AM.

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Old 05-05-2011, 12:45 PM   #3
curly fry
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Re: Chronic radiating leg pain please help!

I hope you find relief!!! I've been dealing with leg pains since I was VERY young. Waking up in the middle of the night screaming and crying in pain and being rushed to the emergency room. At first, my mom took me to several hospitals- joint disease hospitals, spinal surgery hospitals, but nothing was conclusive. As an adult, I still get the pain. But now I'm better at predicting the pain and make sure to carry around Tylenol (I'm allergic to a lot of stuff). Now, when I mention it to doctors, they don't even care about the pain! Since I've had it my whole life, they don't consider it a relevant issue.

But it's almost exactly like your pain. Starts (I think)in the groin and runs down. I actually can't pin point the pain cause it just HURTS. All of my leg. And this is like post Tylenol pain, because I'm better at detecting the pain now. But if I get the pain without the Tylenol, I would be crying just like I did when I was child. If you learn of anything, please keep me posted!!

Old 05-05-2011, 03:39 PM   #4
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boslie HB User
Re: Chronic radiating leg pain please help!

Mine seems to be focused in my knee and my groin but it's really not a pinpointable pain, more like a total pain across my entire leg all the way down to my toes. It just hurts, it's not sharp pain or pain in a particular muscle, just pain all over, constantly, sometimes for 10 hours with no relief. I am going to try to see a general orthopedist and see how it goes.

Old 09-21-2011, 11:28 AM   #5
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alstnick HB User
Re: Chronic radiating leg pain please help!

i just wanted to thank you for this comment... i had my alignment checked years ago and was given arch support soles to accomodate my hip/pelvic discrepancy. i never wore them, but i thank God i kept them because for the past 3 weeks i have been experiencing leg pain that has gotten worse this past week... i started researching, and it wasn't until i read your comment that it dawned on me that that could be the culprit. sure enough i am now wearing my specially made soles (that were also expensive), since yesterday evening (have to wear unsightly tennis shoes to work) and the pain has dimished, almost all gone...

Old 11-06-2011, 07:44 AM   #6
Rachel 921
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Rachel 921 HB User
Re: Chronic radiating leg pain please help!

I've had similar pain in both my legs. It started when I was pregnant with my daughter, who was born sept 21, 2011. Since i was pregnant, my OBGYN thought it was just from the extra weight since I'm so small. But then the leg pain got worse my PCP thought it was stretched out ligaments that didn't go back and gave me Methylprednisone. This did not work and now he has no clue what is going on with me and is sending me to an orthopedist specialist on November 7, 2011 here in memphis... My pain is so similar to yours! The radiating in my knee, the alternating legs, everything! Did you ever figure out what was wrong? A family friend is a nurse and she thinks they will have to do a nerve block...

Old 11-11-2011, 11:00 AM   #7
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boslie HB User
Re: Chronic radiating leg pain please help!

I'm sorry you're having similar pain, I know how horrible it is! I never did find out what is causing my pain, and I am still suffering from it. I have been thinking recently maybe it is some kind of weird early onset arthritis or something because it seems to be generally concentrated in my joints (knees, groin, ankle, toes, etc) as opposed to a muscular thing, but then again I don't understand why massaging my tush or digging my fingers into the back of my knee would help if it was joint-related. So I'm sorry but I really can't offer any diagnostic news. A few years, a knee specialist told me I had "squinting knee caps" and that was what caused the pain (my knee caps were turned instead of facing straight ahead?) but it seemed a bit far fetched that something like that could cause all that pain all the time. Also, the pain is usually much worse in the late afternoon/evening than it is in the morning, so given that it was not totally even/constant, the knee cap theory didn't seem plausible.

I am going to try another orthopedist and a neurologist next but I've been really busy so I can't seem to find the time to go. When I do I will certainly post an update! Please let me know if you get any information! And congratulations on your baby girl!

Old 11-11-2011, 07:08 PM   #8
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Re: Chronic radiating leg pain please help!

Your pain sounds like poor blood flow in your legs, if when your husband massages them and they feel better,thats a good sign of poor circulation, you could also have bad foot arches. But if you say no back problems, I would guess maybe a little, because pain from the back runs down the siatic nerve.

Old 12-02-2011, 04:16 PM   #9
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Re: Chronic radiating leg pain please help!

Hello. I have had pain that's very similar to yours for the past 4 years with no conclusive diagnosis. My pain is mostly kneecaps and feet but it does seem to radiate and switch legs randomly. I've always described it as feeling like the growing pains we all got when we were little. It seems to be very deep and therefore bone pain. For awhile they thought it was just Vitamin D deficiency due to the Celiac Disease. Then my Vit D started to get in the upper range and has been like that for some time. Then they sent me to a rheumatologist who diagnosed me with Fibromyalgia but I really don't buy it. The way FM pain is described, it's not at all like mine. And Cymbalta, Lyrica and Gabapentin don't seem to work at all...

Old 06-06-2012, 07:40 AM   #10
Join Date: May 2011
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boslie HB User
Re: Chronic radiating leg pain please help!

That is so interesting that you've always described it as growing pains from when you were little. I describe mine the EXACT same way. My husband laughs at me but one of the things that helps the pain a little is pulling on my leg (i.e. I will sit on the couch and he stands up in front of me and literally pulls my leg straight forward, holding onto my ankle), which is the same thing my mom used to do when I was little and had growing pains. It starts in my kneecaps and feet (in that massaging my knee or massaging/pushing pressure points on my feet relieves the pain a little) but radiates all the way up to my butt and groin and down to my toes. Does feel like a very deep pain, but I've always thought of it as muscle rather than bone because massaging the muscle does help a bit.
Nobody has ever suggested FM to me. I think I said in an earlier post though, that a spinal doctor said it doesn't sound like sciatica, and a knee doctor said it does sound like "squinting knee caps." Seems like BS to me. Lately I've been beginning to notice that the pain gets worse with being tired. Either being generally tired (pulling all-nighters at work and going weeks without getting a lot of sleep), or being actually tired in a particular night.
Have you had any recent luck with a diagnosis or treatment?

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