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Old 01-16-2013, 02:05 PM   #1
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Advice needed!

Brand New to the forum and looking for some support and advice.

Background:

I am 31yrs old and for the since August 2012, I have had severe pain in my Ankles and Wrists, This causes me immense discomfort and prevents me from doing certain things.

I suffer from Sleep Aponea and Epilepsy.

Dr initially thought I had RA and treated me for that, but tests shown it was unlikely and now he is going along the lines of Chronic Pain Syndrome.

I take a mixture of meds daily

I have never been pain free since August!

If it is CPS - Will I ever be pain free? - How do other sufferers cope?

 
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Old 01-16-2013, 09:21 PM   #2
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Re: Advice needed!

Welcome! Depending on the chronic pain, yes there are some types of it that can't be cured (intractable). I'm no doctor, but isn't there usually a more specific diagnosis under the spectrum of being called chronic pain syndrome? Those in this category don't expect to ever be pain free, but we work with our doctors to manage the pain. It may also help to see if you can pinpoint anything that changed at that time. For example, a medication causing this.

I'd get more opinions from different doctors of different specialties to see if anything can be ruled in or out. Chronic pain like many other health problems can be difficult to pinpoint, and then to treat. Its got easier over time for me to cope. I've made some lifestyle changes that help me manage my pain, along with some treatments that have helped. Best wishes.
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Old 01-18-2013, 04:24 PM   #3
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Re: Advice needed!

Quote:
Originally Posted by tortoisegirl View Post
Welcome! Depending on the chronic pain, yes there are some types of it that can't be cured (intractable). I'm no doctor, but isn't there usually a more specific diagnosis under the spectrum of being called chronic pain syndrome? Those in this category don't expect to ever be pain free, but we work with our doctors to manage the pain. It may also help to see if you can pinpoint anything that changed at that time. For example, a medication causing this.

I'd get more opinions from different doctors of different specialties to see if anything can be ruled in or out. Chronic pain like many other health problems can be difficult to pinpoint, and then to treat. Its got easier over time for me to cope. I've made some lifestyle changes that help me manage my pain, along with some treatments that have helped. Best wishes.
Thanks for your reply, I couldn't find my post to check for replies.

I can't pinpoint anything that has caused this, no trauma or no change in activity. I am getting th opinion that the Dr has came to conclusion that all he can do is find the appropriate medication balance for my pain to be manageable.

 
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Old 01-18-2013, 06:40 PM   #4
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Re: Advice needed!

For pain where a fix can't be found, then yes they try to manage it typically by throwing medications at it. Most folks find some improvement on a combo of treatments. Being pain free isn't a reasonable goal, but say a 50% reduction may be.

However, often doctors are too quick to jump the management stage, and don't take enough time to work through potential causes, refer you out to specialists, etc. Thus my suggestion to get multiple doctor opinions, and of different specialties. I'd start on whatever treatments your doctor suggests at the same time as make other appointments for consults. I thought I'd note that I find it most helpful to only try one new thing at a time so I know what is helping or hurting.

Some of these meds can take months to thoroughly test. Don't be afraid to ask your doctor questions. Even the answer to as simple of a question as "what is my diagnosis" is something that a lot of patients don't know! If your doctor can't take the time to answer your questions and explain what is going on, then its time to try a new one. I've unfortunately learned over the years that all doctors are not created equal. Best wishes.
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