Help-crohns - Crohn's Disease / Ulcerative Colitis Message Board

cookie51 · 04-05-2004, 09:43 PM

I Would Like To Know If Anyone Out There Has Crohns Disease? My Niece Was Just Diagnoised With It, They Said About 3 Feet Of Her Bowel Was Effected, She Is So Sick All The Time, Also She Had To Get 3 Pints Of Blood Because Her Count Was So Low, And Tommorow She Has To Go Into The Hospital Because Her Count Is Really Low Again. Please If Anyone Has Any Answer That Could Help Her We Would Really Appiciate It. She Is Taking All The Meds. They Gave Her But Noting Is Helping.
Thank You All Cookie

LAndr42 · 04-06-2004, 03:40 PM

Hello Cookie,

My husband has suffered from crohns for many years .. When he was 29 yrs old he had his first surgery to remove 18 inches of his intestines.. He has blockage again so he has to try some new med's soon and maybe more surgery..

He's been on alot of bowel meds like Questran and Imodium for many many years... Also he takes Pentsasa for the crohns ..

Plus he has uclers and has to take Prilosec..

He has spells of pain and the sick feeling through out the year...

Years ago they didnt have much for med's it took many years for them to come out with different kinds ..

What med's do they have your Niece on ? Is she running to the bathroom alot or just in pain?

Did they have to do any surgerys to remove any of the bad intestines ?

How did things go for her when she went to the hospital ??

Talk soon Lolly

cookie51 · 04-06-2004, 09:18 PM

Hi Lolly
Thank You So Much For Your Reply, We Want To Know As Much As Possible About This Terrible Problem. Right Now She Is In The Hospital, They Put Her In This Morning Because Her Count Is So Low They Are Giving Her 2 Pints Of Blood. She Keeps Losing Blood From Her Bowel. They Did The Colonoscopy And Said She Has 3 Feet Of Her Bowel Has The Crohns, She Has Lost So Much Weight, We Are So Scared, We Are Praying They Can So Someting To Help Her. She Is On So Many Meds. I Dont Know What They Are But I Think Some Are Antibiotics Other Then That I Dont Know. I Wonder If They Took Out That Part Of Her Bowel That Is Infected If That Would Help, And Even If They Did That Would It Come Back? We Are New To This And If We Can Get Some Insight In What We Are Dealing With, At Least We Would Be More Informed And Have More Questions To Ask And Take It From There. Once Again I Thank You For You Time, And Hope All Goes Well With Your Husband.
Thank You Cookie

plymouth · 04-06-2004, 09:36 PM

New Scientist magazine is reporting that a new treatment for Crohns will become available next month in Europe. The trials were conducted in the United States with a remission rate of 70%.

Gastroenterologist Joel Weinstock of the University of Iowa invented the treatment, a drink containing whipworm eggs, called TSO, short for Trichuris suis ova, made by a German company called BioCure.

Weinstock came up with the idea for the treatment after noticing that crohns is rare in third world countries where parasitic infections are common. He believes that crohns is the result of an immune system in overdrive for lack of an infection to keep it busy.

If you prefer a dietary approach, Breaking The Vicious Cycle, Intestinal Health Through Diet by Elaine Gottschall B.A., M.SC

Diet for Crohn's Disease, Ulcerative Colitis, Diverticulitis, Celiac Disease, Cystic Fibrosis and Chronic Diarrhea.

The diet is strict, but it works.

Harry · 04-06-2004, 10:47 PM

plymouth,
I thought Crohn's disease has alot to do with being inherited?? Please Correct me if this is not right?