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Crohn's Disease / Ulcerative Colitis Message Board
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Old 01-06-2008, 07:10 AM   #1
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Crohn's or Colitis????.......IBD..... NO diarrhea....

Hello to my fellow pain in the a-- friends on this board....

I have been having problems for a while, since June. I am normally a constipated person, but since then have been going every day, sometimes up to 5 times a day. I have lost 45 lbs. This all began after a very severe kidney infection. I tested positive for a fecal occult blood test (hidden blood in the stool) and started to take notice & look at my stool after going. I noticed blood a few times, in the stool. It used to be difficult for me to go, constantly constipated, going maybe twice a week, so I thought everything was finally good with my bowels. When the doctors were thinking colon cancer (with all the weight loss & my brother being diagnosed at the same time with pancreatic cancer), I thought they were crazy. I thought I was going #2 very well! Well, I had a colonoscopy & EGD done at the same time (NEVER do that–I was sick for a week!!) & found that I ulcers & inflammation of my colon. The surgeon thought colitis. The biopsies came back "focal active colitis" with mild edema in the transverse/descending colon, and "Focal Active Colitis" with mild crypt distortion and mild edema in the rectum/sigmoid colon. I was told it would go away after a month on azulfidine. As soon as that month was over, I lost another 10 lbs. So they put me back on it. My osteo said he was thinking Crohn's, some sort of IBD. I thought I had already been diagnosed! I am confused... Then my mom talked to her gastro about it & she thinks it's Crohn's, too. I couldn't believe it when I got the script filled & I have 5 refills!!! Am I going to have to take this forever??? UGh...

Please respond if you have any info. I do NOT have diarrhea or anything, just weight loss & I feel like crap, tired & such. I also have pain in my left rib, but they think that is due to a rib out of joint, so not related.

How do they tell if it's Crohn's as opposed to Colitis? Can't it just go away?

 
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Old 01-10-2008, 10:06 PM   #2
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Re: Crohn's or Colitis????.......IBD..... NO diarrhea....

did you find out yet?

Last edited by ctbo; 01-10-2008 at 10:07 PM.

 
Old 01-11-2008, 01:55 AM   #3
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Re: Crohn's or Colitis????.......IBD..... NO diarrhea....

No I have not. I have to see a gastro, I haven't yet. Everything is pointing to crohn's....

 
Old 01-11-2008, 08:47 AM   #4
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Re: Crohn's or Colitis????.......IBD..... NO diarrhea....

Have they taken blood to test for Crohn's? There are markers now they can look for. I was told I had Crohn's two years ago but now told I don't because I don't carry the markers.

Mine is now thought to be gyn related.

 
Old 01-11-2008, 09:35 AM   #5
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Re: Crohn's or Colitis????.......IBD..... NO diarrhea....

No, I haven't. I haven't been in to see the gastro yet. I have been pretty ill. Like I have the flu. I never had diarrhea before, not sure what is going on. I am really bloated too. Food not digesting... I see lettuce & stuff in the toilet. So gross, I know. Not sure what to do. I feel so ill, but I guess I have to wait for 2 weeks to see my pcp so I can get a referral to a gastro....

I would love any suggestions or ideas... I am running out of gas on this...

 
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