It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Crohn's Disease / Ulcerative Colitis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-04-2008, 12:56 PM   #1
Newbie
(female)
 
Join Date: Apr 2008
Location: Albuquerque, NM
Posts: 9
whatthescrap HB User
Crohns Disease - My story...

This site has been so helpful in helping me understand that even though I am new to all of this....I am certainly not alone!

First, I am female, 36 years old.

About 4 or 5 years ago I started losing alot of weight pretty rapidly. Diarreah has always been around, about 5-7 times a day, but I never knew that it was a "problem". People would tell me I "looked sick" or would ask if I was anemic. I could only eat small portions at a time (like a kids meal) several times a day.

In October 2006, 3 months after my fourth child was born, I became very ill. Unbelievably painful cramping in my lower abdomen on the right side. I was hunched over in bed for about 8 hours. I thought, Im just constipated, it will pass. Then the nausea started...not long after, the vomiting began.....and would not stop. When my husband came home from work, he rushed me to the er.

The next 10 hours consisted of x-rays, ct scans, lots of bloodwork, and finally being admitted for being "very ill". I was confused....I was just constipated.... After 3 days, I was released with prescripts for flagyl, cipro and prednisone and instructions to see a GI.

My GI appointment was two weeks later. It was a simple..."this could be a number of things that are going on..." (no real explanation) "start taking pepcid ac once a day, an outrageous amount of Pentasa and start tapering off the prednisone".

December 2006, I am laid off from my job, insurance ends at the end of the month. The same symptoms come back, and back to the hospital I go. Ten days this time with daily x-rays and numerous ct scans. Ulcerative colitis or Crohns Disease is suspected. I was released on New Years Eve. My colonoscopy is scheduled for mid January. Due to lack of insurance, I did not go! I intended on taking the medications still, but Pentasa turned out to be CRAZY expensive! I continued on the prednisone for the next several months, then, carefully tapering myself off until I ran out of refills.

October 2007, cramping, nausea and vomiting came back and I find myself back in the hospital. (I have a new job now, so new insurance, along with new hospital and new doctors). I had my first colonoscopy and was told I had Crohns Disease, more specifically Crohns Ileum. The doctors reconfirmed the diagnosis and location with a barium x-ray (upper GI screening). I am finally sent home with new script for prednisone 60mg, Azathioprine 25mg (low dose due to infavorable blood screening), and Asacol-12 a day! (btw, the asacol comes out whole!) I am also on a low fiber diet...basically, anything that is supposed to be "good" for your digestive system, is not good for mine!

December 2007, the symptoms came back, again, so back to the ER. I have now learned that if you tell them in triage that you have Crohns disease, they will take you much quicker! GI believes the Azathioprine is too low of a dose but is hesitant to raise it due to my bloodwork showing I already have a low white blood cell and platelet count. Its time now to decide on a new plan of attack...

January 15, 2008, I begin taking Humira. Within 24 hours, I developed severe itching...all over...no rash, no difficulty breathing, just skin crawling itching. Doctor believes it was a mild reaction to the large "starter" dose. He prescribes anti-itch cream and pills. The itching subsided in about 3-4 days. I took my second dose, as prescribed, two weeks later. No itching!! I had the first "normal" BM in....who knows how many years! I am very optimisitic!

March 25, 2008, the pain in my abdomen has returned, severely! The nausea is back. The diarreah had been back for a couple weeks now, but not as often...but, today, nothing! I went back to the er before the vomiting began. The bloodwork could not confirm a flare up, but the x-ray showed a partial obstruction. GI says it is now time for surgery to remove the damaged ileum. Scar tissue has formed narrowing my small bowel.

Today, I am anticipating my small bowel resection on April 22, 2008. Thats how I ended up here. Looking for everyone elses stories of trials and tribulations. I wanted to find out from others how long their hospital stay was, how long it took them to recover, and when did they return to work. Having had gall bladder surgery some 19 years ago, I can mostly remember the pain of sitting up, laying down, coughing, even breathing hurt! I never wished that type of surgery on anyone, and now I find myself in a similar situation. You dont realize how much you use your stomach muscles until you have an incision on them! I am nervous, but not scared. I am still the optimist though! I look forward to being able to eat fruits and vegetables again!

Thank you to everyone who have posted their stories! I think it truly helps everyone to "compare" notes and know they are not alone!

 
Sponsors Lightbulb
   
Old 04-04-2008, 02:12 PM   #2
Senior Veteran
(female)
 
Join Date: Sep 2004
Posts: 1,019
gardenandcats HB Usergardenandcats HB Usergardenandcats HB Usergardenandcats HB Usergardenandcats HB Usergardenandcats HB Usergardenandcats HB Usergardenandcats HB User
Re: Crohns Disease - My story...

Surgery done now is so much better then years ago.I have had 3 bowel resections I also have Crohns. My 1st resection was done in 1977. My latest was done in 2001..And what a difference ! Pain control is so much better ..You will be offered the choice of having a epidural block put in . it numbs your stomache area and your really practically pain free.It doesn,t hurt or cause any problems you can walk with it as it does not numb your legs. You will also have a pump which you can push and receive pain meds through your IV line as you need it the first few days. Sadly with crohns even with the best meds and care often in time you end up having to have a resection.
Good Luck with your up coming surgery.. The worrying is worse then the surgery !!!

 
Old 04-17-2008, 11:52 AM   #3
Newbie
(female)
 
Join Date: Apr 2008
Location: Albuquerque, NM
Posts: 9
whatthescrap HB User
Re: Crohns Disease - My story...

I figured I'd bump this up since so many people are waiting on diagnosis of Crohns, this might help to compare notes!

Thank you Gardenandcats for the well wishes! My surgery is less than a week away now!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Has anyone ever had colon surgery? or colostomy bag? Please Help!! adventurer Bowel Disorders 32 12-29-2010 05:11 PM
Been diagnosed with crohns what is it ?? jadeylex Crohn's Disease / Ulcerative Colitis 12 12-27-2010 07:15 PM
My Crazy Story SilverSurfer NZ Anxiety 2 05-13-2010 04:35 AM
Crohns Disease Sheri91 Crohn's Disease / Ulcerative Colitis 7 11-24-2009 08:49 AM
Crohns Treatment VincentA Crohn's Disease / Ulcerative Colitis 4 01-20-2008 08:25 PM

Tags
apri, asacol, azathioprine, cipro, flagyl, humira, pepcid



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



quincy (11), SickinNJ (4), pwno1 (2), Tree Frog (2), Cm710 (2), msnova74 (2), Isotope (1), jujumcm (1), knockneez (1), thegush (1)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (856), janewhite1 (823), Titchou (771), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 09:54 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!