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New to Crohn's Disease

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Old 06-25-2008, 08:33 PM   #1
Join Date: Jun 2008
Location: PA
Posts: 6
lindysmom14 HB User
Question New to Crohn's Disease

I was diagnosed with Crohn's disease about a year ago . I really do not have any severe symptoms so far, other than the once or twice a day bouts with food I ate seemingly going right through me. I do seem to always have a ferritin level that is 10, very low iron saturation levels and iron levels. I take iron pills, when I remember, that the dr. ordered and Pentasa 4 times a day. I am not big on pills so may take the Pentasa 2 x a day if I am lucky and remember. I have the ulceration in the small intestine which was detected by swallowing a pill with a camera in it. I have chronic sinusitis, which my ear, nose and throat dr. said in 90% of the patients he has seen with Crohn's disease have some sort of sinus problems. I have an underactive thyroid, type II diabetes also. My dr. told me all these illnesses are linked together with the Crohn's disease. I was also told at times I will have seepage from the anal area, which I have not had so far. I guess I do not take the Crohn's as serious as I should because I have not had any real symptoms from it other than being anemic. Can anyone enlighten me on this disease with experiences you may have had? Thanks and God Bless

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Old 06-29-2008, 01:38 AM   #2
Join Date: Jun 2008
Location: Lafayete, Colorado
Posts: 4
amorisma HB User
Re: New to Crohn's Disease

Please take the disease seriously. I, according to one doctor have it and another I don't, I do treat myself as having it. Even though mine is mild I went through a really bad case of it a few months ago where I was hospitalized for it and was bleeding from my rectum. I was no longer passing stool, instead I was bleeding internally because I did not follow my diet and take the supplements I was suppose to. As I get worse I am getting these horrible burps that smell like rotten eggs and I throw up shortly after the burps start. Certain food for me set it off. I recommend starting a diary of what you are eating and when you attacks occur. This is a great tool in helping me know what I can and can not eat. Trust me as it gets worse you will wish you took care of the situation.

I am slightly anemic and have some inner ear problems as well as throat ulcers. I also am lactos intolerant and have endometriosis.

I hope this helps you make some important decisions.

Old 06-29-2008, 01:52 AM   #3
Jeckle and Hyde
Join Date: Jun 2008
Location: Esperance W.A.
Posts: 1
Jeckle and Hyde HB User
Re: New to Crohn's Disease

Gday i have had chrohnes for as long as i can remember if my lactose interlance is anything to go buy . Diagnoised finally 3 years ago had a resection from my small intestine and have to watch what i eat as everyone does. I recently had 2 work related accidents breaking 4 vertabrae each time. I went and got a bone density check done 2 weeks ago and found out last week i have ostioporosis due to lack of calcuim intake due to the chrohnes so please get them to keep an i on that as well as keep up iron,vit b and d. I am only 45 so i would like to let people know to keep an eye on it.

Old 06-29-2008, 06:07 PM   #4
Join Date: Jun 2008
Location: PA
Posts: 6
lindysmom14 HB User
Re: New to Crohn's Disease

Do they contribute the throat ulcers to the Crohn's disease?

Old 06-29-2008, 06:08 PM   #5
Join Date: Jun 2008
Location: PA
Posts: 6
lindysmom14 HB User
Re: New to Crohn's Disease

Jeckle and Hyde,

What is so odd is milk products other than ice cream do not seem to bother my Crohn's disease.

Last edited by moderator4; 06-29-2008 at 09:56 PM. Reason: Quote is unnecessary.

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