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Crohn's Disease / Ulcerative Colitis Message Board
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Old 07-29-2008, 10:31 AM   #1
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Question Humira for Crohn's, Germs, and Complications.

I have Crohn's and will begin Humira in a few days. I was just wondering who is using or has used Humira for Crohn's and what your stories are. I have researched and read all the information there is on the drug, but I would like to hear individual testimonies: the good, the bad, and the ugly.

I was very concerned with the Lymphoma and TB risk. The full prescribing info stated that Lymphoma occured in less than 5% of patients, but it's still an issue to me... Also, since it is an immunosuppressive drug, should I be worried about my school-aged children bringing home germs? Is it like that? Do I have to turn into a 'clean freak' or a 'germiphobe'? I am worried that I do. I would like to know to what extent I need to change my current day to day activities.

I am interested, also, in how your symptoms changed. I have had diarrhea for 9 years now. It is very normal for me to have to go to the restroom 6 or more times a day before lunch; 2-4 times in the evening. I also go after most meals, especially if out to eat, and during EVERY trip in the car...even if 10 minutes away. I have to stop at public restrooms even a mile away from my destination, even if it's home. I have had 5 'accidents' in the past 9 years and my urgency is tremedous...When I have to go, I have to go now.

I have had two small bowel obstructions since February of this year. The first in February and the second in May. I have been taking (8) 500mg Pentasa daily and (1) 20mg Prednisone daily. The Pentasa will not work without the prednisone. My doctor said once I start Humira, I will continue to take Pentasa and come off of Prednisone shortly after.

I recently had my first fissure this past month. I still have it and went to the doctor for it Monday. He said once I get my Crohn's under control it will heal and prescribed two different ointments for it.

Is it normal for all of these Crohn's related complications to happen in a matter of months? Is it a sign that I will most likely require surgery later on? It's in my small bowel and I am paranoid that I will die one day due to not having enough small bowel left if surgery starts.

 
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