Re: Newbie with Lupus and Crohns disease
Hi & welcome! I saw your post last week & got side-tracked with family problems---sorry!
I wish I had real advice, but it's more like questions! Do your specialists (rheumie & gastro) work together & consult when needed? Are you on meds for both the lupus & the Crohn's? Is this your first big "double flare" since you were Dx'ed with lupus?
Starting in my mid-20's, I had 20+ years of recurrent, fierce GI episodes. Because repetitive tests didn't find evidence of *inflammatory* bowel disease, the gastros just didn't know what to make of me. So I took Librax for years, but it didn't help. Then, after I was finally Dx'ed with lupus, mere Plaquenil literally vanquished my GI symptoms. So in that regard, I've been extremely lucky. But I experienced enough to be able to imagine what you're dealing with, and my heart goes out. Hope you post more when you can. With my best wishes, Vee