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Crohn's Disease / Ulcerative Colitis Message Board
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Old 01-01-2010, 04:21 PM   #1
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Bowel resection possibly due to mass/crohns/diverticular disease.

Hi, due to gyny related issues I had a laparoscopy. The results of which a mass was found which was joining my ovaries, fallopian tubes and bowel all together. My bowel was also dialated. The gynys have no idea what this mass is and so I was referred to a bowel specialist. A rectal examination, ct scan and colonoscopy followed to which ulcers were then discovered all over my large intestine. They are now pretty sure I havn't got cancer from the mass or in the bowel. They took 10 biopsys from my colon as they thought it was crohns disease, but the biopsys results were inconclusive. The bowel dr thinks I also have diverticular disease were the bowel dilates, however I think the mass has narrowed the bowel underneath it as they couldn't get the original camera around the bowel during the colonoscopy and had to change it. He has said that if I don't have the op now( bowel resection on sigmoid) then i will need it within the next 10 years and he would rather I have it now while I am younger so that I will have a quicker recovery.

The gyny needs to remove my ovary and Fallopian tube and I might need a full hysterectomy and so all the ops will be carried out at the same time. Has anyone else had a resection due to a mass? How bad can diverticular/ crohns disease get? Can either of them cause adhesions like i have? Can anyone give any advice on whether I should have it done now? I have read so many bad stories on the web re bowel resection and wondered if any of you had good stories to tell? Dr. has said I will be on a normal diet straight afterwards, but from what I have read it doesn't seem correct. Doc's have not told me about aftercare. Is it normal to need to rush to the loo afterwards and for how long? I am just wondering when i will be able to return to work as i do a lot of home visits and couldn't have the embarrassment of asking clients to use their toilet! Sorry for so many questions but I don't seem to be getting any advice from my docs. Any advice would be greatly appreciated. Sorry I'd there are any spelling mistakes I am using a keyboard that has predictive text and it drives me loopy!

Last edited by Chocolicious; 01-01-2010 at 04:24 PM.

 
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Old 01-04-2010, 02:38 AM   #2
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Re: Bowel resection possibly due to mass/crohns/diverticular disease.

Hi Choco, wow before I would have surgery I would want a definite answer about cancer. Pretty sure is not good enough.

I have crohns disease and ulcerative colitis. I had to have an emergency small bowel resection 7 yrs ago because of an abscess and complete blockage. Matter of fact they thought it was my appendix and they took them out first only to find they were fine, The dr made a second incision lower and found the problem and took out 12 inches of the small bowel and did a reconnect. Its about a 6 weeks recovery time for sure.

I would urge you to get a second opinion before doing the surgery. Yes, you may end up with loose stools after surgery. This could be temporary or permanent. Each person is different. If you have crohns disease even after surgery you should be on maintenance meds because crohns can work and do more damage on a microscopic level. Good luck.

 
Old 01-04-2010, 05:15 PM   #3
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Re: Bowel resection possibly due to mass/crohns/diverticular disease.

Hi ditsy, thanks for your response. Doc's have done the blood test for cancer and that came back negative. However they didn't do any biopsys as they were afraid in case they perforated my bowel.

If the mass keeps growing it will close off my bowel completely so I have no choice really in the surgery, and as they don't know what it is at the mo, I don't really want to leave it in.

Can you tell me how your resection went? Were there any complications and how are you now? Do you feel pretty rough after the surgery or did the pain meds take care of that?

Thanks for replying it's very much appreciated.

 
Old 01-05-2010, 06:57 AM   #4
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Re: Bowel resection possibly due to mass/crohns/diverticular disease.

Hi Choco, I had a complete blockage & abscess of the small bowel like I said before and my surgery was an emergency surgery. They don't want those thing perforating. Same with the diverticulitis. Is your dr proposing laproscopic surgery or an open surgery. Naturally laproscopic surgery is easier to recuperate from because you don't have the large incision to deal with. Mine was an open surgery and it took about 6 weeks for everything to heal nicely and I had two surgeries back to back.What pain I had was postop pain that was controlled very well in the hospital. I did not really have much pain once I came home. Would I do it again, yes I would.

The key to any surgery, particularly bowel surgery is as soon as the nurses will let you, get up out the bed and walk. Walking does two things, helps wake the bowels up from surgery and get them going again and it helps you get your strength back. Another good trick is when getting up or down out of the bed take a bed pillow and press it lightly against your stomach as you are getting up or down. The light pressure helps you alot when doing this. Your first day you sleep most of the time, the 2nd day is usually the roughest of all and I think its just from the anesthesia used to put you to sleep.

Since the drs are worried about the possibility of a blockage developing get your surgery done as soon as you can. You don't want to run the risk of any perforation as they can be fatal, when you perforate your insides fill with the infection and people develope what is called toxic shock syndrome it can be fatal. Its not worth taking the risk.

Once the results come back from the biopsy's done at surgery I am sure your drs will know for sure exactly what all that you have going on. If you have crohns or diverticulitis you will need a good gastroenterologist to take care of you.

if you have any more questions or if I can help let me know.

 
Old 01-07-2010, 02:51 PM   #5
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Re: Bowel resection possibly due to mass/crohns/diverticular disease.

Hi ditsy, you have been so helpful so thankyou very much for your wise words of wisdom. Did you have to have a tube down your throat info your stomach on recovery (only it sounds really uncomfortable). Doc's havn't told me what to expect and so I am curious.

Were you having any symptoms before you was rushed in and if so, did it get steadily worse over time or were they sudden symptoms?

Thanks for your help.

 
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