It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Crohn's Disease / Ulcerative Colitis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 05-30-2010, 06:35 AM   #1
Member
(female)
 
Join Date: May 2004
Posts: 62
Lynnmaree HB User
Ulcerative colitis & metamucil

I've been taking Asacol for the past 4 months successfully, to keep my UC under control. When I was first prescribed the pills, my GI said I should also take 3 doses of Metamucil daily. I have tried on and off over the last few months to do this but I feel too bloated and end up not taking it. Lately, I've been "going loose" and am trying to take it once again. I'm so curious, can you please let me know if any of you were advised to take Metamucil or another fiber supplement and if so, does it help? I really need a reply to this question. Thanks.

 
Old 05-30-2010, 08:39 AM   #2
Senior Veteran
(female)
 
Join Date: Apr 2003
Location: Winnipeg, Canada
Posts: 3,663
quincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB User
Re: Ulcerative colitis & metamucil

Which metamucil are you using?

I use the capsules and started off very slowly...that way it aleviates the discomfort. I only eat 2 main meals daily, I'm now at 6 with each meal...I won't increase, however.

REgarding your UC...you should also be on rectal meds...no matter how high your UC is, be it throughout or limited.

Where is your UC location?

You could also consider probiotics.

quincy
__________________
It's all a matter of perspective!

 
Sponsors Lightbulb
   
Old 05-30-2010, 05:27 PM   #3
Member
(female)
 
Join Date: May 2004
Posts: 62
Lynnmaree HB User
Re: Ulcerative colitis & metamucil

Thanks for replying. I really don't know where the location is. I'm sure I was told but forgot. This is still pretty new to me. Rectal meds? I've read about them on this board. I'm due to see the GI in June and will pose these questions to him. I've tried the Metamucil powder only. I only seem to try the Metamucil when I'm having problems. I was doing quite well until I took a prescrip cold medicine and the diar started. Also have been under a LOT of stress and that doesn't help. I do appreciate your reply. Thanks.

 
Old 05-31-2010, 10:37 AM   #4
Senior Veteran
(female)
 
Join Date: Apr 2003
Location: Winnipeg, Canada
Posts: 3,663
quincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB User
Re: Ulcerative colitis & metamucil

I find the capsules much easier and much less bloating than the powder. If you're using the powder that's flavoured and sugar-free, that could be part of the problem...artificial sweeteners can add to bloating.

You could also consider probiotics to help keep the flora of your colon balanced.

When you do go to your doc...make a list of pertinent questions so that you're in the KNOW of where your UC is located (the extent). If you had a c-scope with biopsies...get a copy of the results for your record.

As well...if you've had blood tests...get a copy as well. It's always good to know what and why is getting tested.

The rectal meds come in steroid and 5 ASA as is the ASacol. I've used oral/rectal 5ASA meds for over 21 years. My goal is to NEVER use steroids or other meds...

I use Salofalk (I'm in Canada), but in the US, there's Rowasa. It's a retention enema that's used nightly and tapered to a maintenance dosage. Some go to twice a week, others go to once a week. It's kind of a constant process, at least for me it's been...since I'm a med-lifer, I've at least kept my UC from spreading upward. As well...all my c-scope biopsies have been "unremarkable"..which is a good thing relating to precancer/cancer.

UC starts at the rectum...please don't let your doctor say you don't need rectal meds...that's also where your flares will start. If you're having stomach discomfort, bloating and constipation, that can be a symptom of low level rectal inflammation or low in the rectum inflammaiton.

But, we learn through experience unfortunately, to find out what works for us.....just do the homework and research.

quincy
__________________
It's all a matter of perspective!

 
Old 06-02-2010, 07:17 AM   #5
Member
(female)
 
Join Date: May 2004
Posts: 62
Lynnmaree HB User
Re: Ulcerative colitis & metamucil

Thanks so much for all the useful info. I already have a list of questions started that I'll bring to my next doc appt. I find when someone like yourself replies, it's very helpful as I need all the info I can get!

 
Old 06-02-2010, 12:32 PM   #6
Senior Veteran
(female)
 
Join Date: Apr 2003
Location: Winnipeg, Canada
Posts: 3,663
quincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB User
Re: Ulcerative colitis & metamucil

You're welcome. It's mostly trial and error, but I do encourage to know exactly what you have, where, and know what meds and supplements can work for you. Much takes commitment, but for me....knowing takes care of some of the distress.

Let me know how your appointment goes for sure.

q
__________________
It's all a matter of perspective!

 
Old 06-02-2010, 08:21 PM   #7
Senior Veteran
(male)
 
jonnstar's Avatar
 
Join Date: Mar 2010
Posts: 1,873
jonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB User
Re: Ulcerative colitis & metamucil

The trick is to start off with one dose a day, and then slowly build up to 3 doses a day over a couple of weeks, so you dont get too bloated and gassy.

Citrucel in a non fermentable fibre, so shouldnt cause bloating, might pay to ask your doctor if you can substitute that.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Ulcerative Colitis? Chrohns? JESSIECOLA Crohn's Disease / Ulcerative Colitis 1 03-15-2011 09:48 PM
How can I treat my ulcerative colitis? lifeisg00d Crohn's Disease / Ulcerative Colitis 1 12-04-2009 09:05 PM
Ulcerative Colitis vs Chron's Disease JMYHNY Crohn's Disease / Ulcerative Colitis 3 05-02-2009 11:50 PM
Ulcerative Colitis/Proctitis, autoimmunity, and surgery MachOneMustang Crohn's Disease / Ulcerative Colitis 8 09-08-2008 08:45 PM
Colitis, but not ulcerative colitis? debbiebee Crohn's Disease / Ulcerative Colitis 29 07-31-2008 05:20 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



quincy (12), SickinNJ (4), Cm710 (2), Tree Frog (2), msnova74 (2), pwno1 (2), 50isbestsofar (1), msdenise (1), hammer 403 (1), King for a Day (1)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (832), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 04:43 AM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!