Ulcerative colitis without taking tablets, methods, strategy and so on ...
Hello everybody.
Can anyone share own experience with no taking tablets with ulcerative colitis.
1) is it possible to decrease inflammation without tablets. If yes, methods, tactics, strategy ?
2) if i feel well and do not taking tablets, how fast a flare up may start ? How long it develop ?
3) how physical activities (gym, running, swimming and so on) affect on people with UC?
4) can supercooling of body start flare up ?
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
I noticed that supercooling is not good for me, after it blood or mucus may appear. Hunger has a bad influence. Sport activities (gym) have good influence
Such foods have good influence to decrease flare up
1) honey with hot tea, effects after 1-2 weeks
2) sea buckthorn oil 3 times per day before eating
3) tutsan (St. John's wort broth)
4) yogurt with bifidobacteria (LGG)
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
I guess none of us has the experience as you're wanting. I was diagnosed with UC over 21 years ago and treat with 5ASA oral and rectal meds. The Salofalk retention enema, I taper to maintenance....the Asacol oral 6 pills a day is a constant.
Not using meds is your choice....I personally like the fact that mine hasn't spread, and all my c-scope results has been precancer free.
I've never been on any systemic meds for it, including pred or any immuno meds.
I don't plan on it, either.
Just to add UC is an autoimmune disease. For many, extreme fitness routines can exacerbate symptoms. Doesn't mean that once it's under control it will....balance is a good thing.
q
__________________
It's all a matter of perspective!
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
Eat! and often.
Best to have actual foods that your body can use rather than products with low carbs, artificial sweeteners, etc.
Whatever foods cause you discomfort, choose when to eat them or don't eat them at all.
It took me years to gain the weight I lost during my years if diarrhea before I was diagnosed....and I ate a lot.
If you feel better...is it emotionally or physically. The point of gaining weight is to take in more than you burn....which you can afford to do, it seems.
By the way, exercise won't keep your UC from flaring.....and with many, they don't recognise symptoms or choose to ignore them until they're in a full-blown flare to the point where it's spread throughout their colon.
Get really smart about UC, treatments and that the fact that it's life-long. Don't forget that there are other disorders or invaders that can mimic UC...it's best to make sure you have a difinitive diagnosis.
Regarding stool 2x daily...is it with urgency? Do you have rectal discomfort upon bms? do you have lots of mucus?
If you have periods of constipation...that, in itself, can be a symptom of low in the rectum inflammation.
quincy
__________________
It's all a matter of perspective!
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
I feel better emotionally and physically. For example, after i started the gym my bowel movement become more solid and dense. The color of feces is dark brown. Next day after gym i can have bowel movements in the evening 1 time without mucus and blood or 0 times. But usually i have BM 1 or 2 times in the morning. I can have 3 days without mucus and blood, but next 2 or 3 days small amount of mucus and blood appear again. After that again 3 days no mucus and blood ... I take 3 grams of Salazapyrin. I get up at 8.30 and take 1 gram at 9.00. After that i take 1 gram at 14.00 and again the last one at 21.00 o`clock. I use Asacol rectal 500 mg on the night.
For me eating a lot is no good thing, because if i have no blood and mucus in the stool in the morning, after i eat a lot in the dinner it can appear after 2-4 hours of overeating. I try eat less but 3-4 times a day. I do not have constipation, because if i have no BM 1 day, it does not mean that i have constipation. 09/11/2009 before i visited the doctor i have 3 days with out mucus and blood, and i did not take any med. The firts colonoscopy was 19/11/2009 and doctor said that it is proctosigmoiditis. After that the other doctor did colonoscopy 29/12/2009 and said that a few red marks in rectum. And said it is proctit. The distance was 10 cm from anal. 01/07/2010 i will have another colonoscopy. Will see how salazapyrin and asacol work together.
You said that "By the way, exercise won't keep your UC from flaring"
I think that each people is individual. My doctor said that i should take pills 2-3 years and if i have good result i can try to stop med. She said that some people do not take pills and they do not have flares. She said that she has some patients that 5 years do not take pills and 5 years in remission without taking any med.
Tomorrow i want to start taking the Salofalk and watch the result. It is need 1 or 2 weeks that see the result, but it is for me. Some people need 1 months or 2 to see the result. 1 week ago i did my blood test, and doctor said that i have good results.
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
I do not feel any pain in my muscles, i do have milk acid in muscles, after gym i am not tired, i do not feel that my muscles grow up ... it is very strange ... but gym helps me ... all my life I did sport activities (from childhood), basketball, swimming, break-dance, gym (body-building), i always lifted my weight and felt tired and felt pain in my muscles, muscles growed up ... when UC started in september of 2009 i visited the gym, and i had no problem with weight lifting, i had stool 2-3 times in the morning with mucus...small amount of blood, i started to think that it is gym, and it is the reason of mucus and blood. I decreased 4 times visiting gym to 2 times at week. I started feel worse, 15/10/2009 i completely gave up gym, and it became worse. But i felt that my muscles can grow up, i felt pain... after 5 mounts i started again gym... i can say that i cannot feel anything in my muscles ... some expansion in muscles during the training, but after training i feel like i did no visit the gym at all... i called the doctor and told her that salazapyrin and rectal med block some process in my blood or i do not know ... she told that she do not know anything ...
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
I eat boiled eggs, boiled chicken, curd, yogurt with LGG, boiled rise, boiled potato, a limited mount of fresh beets, tomatoes, cucumbers, pears and bananas. Soups and porridge I eat too. Boiled carrots and cabbage, I noticed that Nestea Lemon and chocolate "Bounty" are very good for me ... do not know why ...
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
Sounds like you have it figured out....but in truth, your rectal meds are NOT enough. You should also be on a higher amount such as a retention enema....I don't know what's available there, but you could ask your pharmacy as to UC rectal medications they can get...then ask your doctor.
I didn't say eat large meals, I said eat a lot more food, over and above what you burn off in a day.
If you burn off the carbs, so I understand, you won't burn off the protein? is that true?
Keep reading about UC.....medications and how to treat.
I will totally advise you to NOT go off your medication. Use a lower amount for maintenance.
Add fibre supplements to bulk/fluff/soften the stool....it's also good for bowel exercise..lol.
VSL#3..I haven't tried it, but many I am in contact with do....start with a lower amount like one package daily..then increase as per instructions.
Be well,
quincy
__________________
It's all a matter of perspective!
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
I do not think that UC can effect on muscles, I think that Salazapyrin and rectal Asacol block some process in blood or some active ingredients in blood stop some functions ... may be someone can speak with their doctor about it ...
Does anyone who take Acasol, Pentasa, Salazapyrin, Lialda, Salofalk ... fill milk acid in their muscles? Does anyone do sport activities? Are your muscles grow up?
I really disappointed with this effect from tablets .... Anyone who have UC answer, please.... share your experience, with it ...
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
I will post.
I was diagnosed 25 years ago and had a terrible time in my late teens and 20's. Meds back then was TONS of steroids and I took a lot for a long time.
My 30's were great! I had maybe 3 or 4 small flair ups in the last 13 years. in that time I have been on pantasa and a short pack (21 pills) of the streoids because it gives me a quick burst while the pentasa builds up.
Currently I am having a big flare up. it started in Feb and got better, stopped taking meds in May and 2 weeks later the symptoms were worse.
I have a colonoscopy sched. in August and I will keep taking the pentasa (4grams) daily until the results come back and the Dr. has a different recomendation.
So here is the long and short of it.
Take the meds, feeling better is much better than feeling bad, your body needs the meds to quiet the immune system and stop itself from attacking itself and hopefully you have chosen your Dr. because you trust them. also this is NOT a quick fix you have to wrap your mind around long term. I hope you too are lucky to have a long pain free period.
Yes working out makes you feel better and keep doing it but in no way will it cure your problems nor will it send you into remission.
when I am sick I am so exausted that I have no energy to do anything but survive. AND the effect UC will have on your muscles boils down to your ability to digest food and get the nutriants out of it. Keep an eye on your vitimin and micro nutriants through regular blood test. vitimin shots can work well if you need them.
My 13 years med free i did learn a few things, hormone fluctuation was tough. Pregnacy and birth were awful (not the kids but the sickness after) I got off of birth control/ eat organic as much as possible and am active daily.
There are foods for me that I can't and won't eat, they just don't digest and I found that I like feeling good better than feeling bad.
I will always have Chron's and colitis managment is my best bet.
As for gaining weight, a good clean protein supliment should help you out. there are lots that Body builders use and you might find one you like that does not upset your stomach.
Good luck and I hope you are feeling better by now.
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
All this f**ing disease started after i felt in love. I had a lot of nerves, the girl I loved was like a b**ch, when i told her that i have this thing, she laughed at me. When i think that all happened because of her, I understand how blind I was... Just want cry and scream ..as story goes "life is life", "it is life, man"
It is very difficult to take it all. But life goes on and I will be healthу without any meds and I will not give up.
Michael Scofield always told in Prison Break "Just a little faith" ...
Re: Ulcerative colitis without taking tablets, methods, strategy and so on ...
It'll be easy to project your anger to your ex-girlfriend...but the truth "out there" is that it's your body that has it, and your responsibility to get realllly smart about the facts.
You seem a bit in denial...ok, a lot in denial and focussed on just one thing. it'll eventually bite you in the butt and you won't have a clue what to do.
Moderation in exercise is good, it doesn't matter what you could do in the past...just make a new plan and use common sense in your decisions.
That requires taking responsibility...
Just my 21+ years of experience talking...oh, and therapy. That might also be a plus for you.
q
__________________
It's all a matter of perspective!
