Hi everyone. I just decided to share my story with you, hoping to show some people you are not alone. I know I felt embaressed and alone when I was going through some bad flare ups, but I know now that was never the case.
My story begins when I was 6 years old, in the middle of the school year I came down with pnuemonia. I have asthma, so I was prone to it. I was put on an antibiotic (i wish i remembered the name) and soon after I recovered from the pnuemonia I came down with horrible diarrhea. My mother was alarmed and took me to the doctors, who said it was from the antibiotics and the diarrhea would pass. It didnt. My mom brought me to the doctors multiple times, and got the same answer of "the antibiotics caused it" even months after I was off the antibiotics.
The summer came, and my family took many vacations. I could not do anything with them. I was terrified of being away from a bathroom for more that a few minutes at a time. The next year and a half of my life mainly consisted of accidents, being absent from school, and severe malnourishment. I didnt want to eat anymore because it would always make me have to use the bathroom nearly instantaneously.
Finally I started having blood in my stool. I never told my mom, but through a long story which I will not get into she found out. After that, my mom took me to the doctors, and today we saw a different doctor than usual. He could see there was something wrong. He promptly sent me into the hospital for a colonoscopy. I was diagnosed with Ulcerative Colitis and put on steriods on and off for the next six months.
I was placed into the care of a gastro-intestinal specialist. She wanted me to get my colon removed, but my parents refused to jump to that conclusion. It was only a last resort to them, and there were too many things to try before making that drastic decision. (BLESS YOU MOM AND DAD!)
I was put onto some medication (i wished remembered the name, again.) At this point I am about 8 I think. I was now seeing a GI specialist and a shrink (I have anxiety related to having accidents in public) and I am on medication. My parents also put me on an unbelievable strict diet. But it helped alot.
Through a long story, I came off the medicine and diet. Today I am actually almost symptom free! Some foods irritate me more than other kids, but I have learned to stay away from them. Now I am healthy and strong, and growing fine. I'm 15 now. I know a girl today who had her colon removed. She cannot put on any wieght, and cannot even get through a day of school without feeling exhausted and nearly fainting.
A NOTICE TO ALL!
If you have kids with ulcerative colitis, or if even you have it, I beg you not to jump to removing your or your childs colon! It may seem like a fix, but there are other more healthy ways to try before you do this.
Thank you for listening!