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Old 12-12-2010, 08:45 PM   #1
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marie12995 HB User
My Story With Ulcerative Colitis

Hi everyone. I just decided to share my story with you, hoping to show some people you are not alone. I know I felt embaressed and alone when I was going through some bad flare ups, but I know now that was never the case.

My story begins when I was 6 years old, in the middle of the school year I came down with pnuemonia. I have asthma, so I was prone to it. I was put on an antibiotic (i wish i remembered the name) and soon after I recovered from the pnuemonia I came down with horrible diarrhea. My mother was alarmed and took me to the doctors, who said it was from the antibiotics and the diarrhea would pass. It didnt. My mom brought me to the doctors multiple times, and got the same answer of "the antibiotics caused it" even months after I was off the antibiotics.

The summer came, and my family took many vacations. I could not do anything with them. I was terrified of being away from a bathroom for more that a few minutes at a time. The next year and a half of my life mainly consisted of accidents, being absent from school, and severe malnourishment. I didnt want to eat anymore because it would always make me have to use the bathroom nearly instantaneously.

Finally I started having blood in my stool. I never told my mom, but through a long story which I will not get into she found out. After that, my mom took me to the doctors, and today we saw a different doctor than usual. He could see there was something wrong. He promptly sent me into the hospital for a colonoscopy. I was diagnosed with Ulcerative Colitis and put on steriods on and off for the next six months.

I was placed into the care of a gastro-intestinal specialist. She wanted me to get my colon removed, but my parents refused to jump to that conclusion. It was only a last resort to them, and there were too many things to try before making that drastic decision. (BLESS YOU MOM AND DAD!)

I was put onto some medication (i wished remembered the name, again.) At this point I am about 8 I think. I was now seeing a GI specialist and a shrink (I have anxiety related to having accidents in public) and I am on medication. My parents also put me on an unbelievable strict diet. But it helped alot.

Through a long story, I came off the medicine and diet. Today I am actually almost symptom free! Some foods irritate me more than other kids, but I have learned to stay away from them. Now I am healthy and strong, and growing fine. I'm 15 now. I know a girl today who had her colon removed. She cannot put on any wieght, and cannot even get through a day of school without feeling exhausted and nearly fainting.

A NOTICE TO ALL!
If you have kids with ulcerative colitis, or if even you have it, I beg you not to jump to removing your or your childs colon! It may seem like a fix, but there are other more healthy ways to try before you do this.

Thank you for listening!

 
The following 2 users give hugs of support to: marie12995
alabamarose46 (01-26-2011), nancyco14 (01-03-2011)
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Old 01-03-2011, 06:43 AM   #2
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nancyco14 HB User
Re: My Story With Ulcerative Colitis

Your story is interesting and uplifting, Marie. It's wonderful to hear that someone has achieved a positive result by herself and is feeling so good.
I've had UC for 24 years now and no medication has worked; I've thought seriously about having a colectomy and ileostomy, but your comments have really encouraged me to seek some other treatment. What foods have to found that help you and what foods cause the problem? I hope you have a moment to respond to me as my life is barely worth living.

Nancy

 
Old 01-19-2011, 05:30 PM   #3
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TCable HB User
Re: My Story With Ulcerative Colitis

Hi Nancy,

This is my very first entry but felt I could relate to your feeling! I had severe UC and no medication would help and I continued to set sicker until I could no longer keep any food down at all and started loosing my hair as well as my mind many days! I had my colon removed two years ago now and while I am sooo much better, I still continue to struggle with what to eat. I can leave the house now for hours at a time and have returned to work. I no longer worry about accidents but have many nights of severe pain in my stomach area from gas build-up I think?! I am hoping to get support in the diet area. It is so hard when you don't have anyone to talk to to know if your symtoms are normal or if you are crazy. I think I am on the road to recovery, just didn't realize the road would be so long

 
Old 10-13-2011, 05:00 AM   #4
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Join Date: Jun 2011
Location: Adelaide, SA, Australia
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Gucci HB User
Re: My Story With Ulcerative Colitis

Hi there,

Thanks for sharing.

What are you on these days?

Gucci

 
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