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Old 01-10-2011, 05:53 PM   #1
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First signs and symptoms of crohn's

I really want to know how the first year, or years, of having Crohn's is like. I know that it can take years to really diagnose Crohn's, and I wanted to know if the symptoms are always about the same as the ones that you start out with durning flare-ups or do they tend to get worse befor treatment can begin. Also I was hoping that someone could tell me what may have triggered your crohn's? Was it from getting the flu and over reacting to the virus or did Crohn's just kinda came on without warning? It would be great if someone could help me out here! ^.^ Thanks, andi.

 
Old 01-11-2011, 10:07 AM   #2
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Re: First signs and symptoms of crohn's

Would you please be a bit more clear in your question...have you seen a GI specialist? have you had a c-scope?

Crohn's is an autoimmune disease, but as far as a trigger to set it into action..difficult. It's in your genetic make-up, either inherited or the tendency.

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Old 01-11-2011, 10:25 AM   #3
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Re: First signs and symptoms of crohn's

I have seen a GI. He's been a big help but I've only seen him a handful of time. I have had endoscope and CT scan and the usual stuff done. My main question is what is crohn's like in the very beginning and how crohn's Can progress.

 
Old 01-11-2011, 10:09 PM   #4
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Re: First signs and symptoms of crohn's

Well, there's tons of info on the internet....have you had a colonoscopy?
Has the doctor suspected you have CD?

You would have specific areas of inflammation...CD can be anywhere from the mouth to the anus, can happen in separate areas at the same time.

The most common area is in the ileum.

One would probably have loose stool, pain, possibly bleeding, weight loss depending on where, sometimes strictures.

CD affects all the layers of the digestive tract, but would start on the mucosal layer.

The treatments can be 5ASA medications, prednisone/steroids (either topical or systemic) depending on where it's located, immunosuppressant meds or biologic immunomodulator meds.

What symptoms are you having and what did the doctor diagnose you with?
Where are your areas of inflammation....etc?

To sum up your last question, yes...CD can worsen...either without treatment or even with treatment. Some require surgery to remove the areas that do not go into remission. In doing that, however, there's no guarantee it won't show up elsewhere in the digestive tract.

hope this helps.
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Old 01-11-2011, 11:45 PM   #5
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Re: First signs and symptoms of crohn's

Crohn's symptoms may be visible prior to diagnose are intestinal pain and also retardation of growth in the children..

 
Old 01-12-2011, 03:26 AM   #6
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Re: First signs and symptoms of crohn's

I have not had a colonoscopy yet. And my doctor says that CD is a possibility, he really isn't to concerned right know but says if this thing continues he may run some new test. I have read a lot about CD and I know what it is and the symptoms. What I don't know is how people WITH CD felt like when they first showing signs of CD. I want to know if CD can get worse without proper medication and treatments.

 
Old 01-12-2011, 07:17 AM   #7
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Re: First signs and symptoms of crohn's

yes, you can get worse without meds...but one can have CD without knowing it for a long time before diagnosis or troubles.

What symptoms exactly are you having?

Has the doc done blood tests as well...for autoimmune disease, inflammation levels, etc?

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Old 01-12-2011, 10:31 AM   #8
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Unhappy Re: First signs and symptoms of crohn's

Quote:
Originally Posted by quincy View Post
yes, you can get worse without meds...but one can have CD without knowing it for a long time before diagnosis or troubles.

What symptoms exactly are you having?

Has the doc done blood tests as well...for autoimmune disease, inflammation levels, etc?

q
I have been having abdominal pain, nausea,a LOT of rumbling, movement and gurgling in my lower abdomen. And just in the last two month been having very irregular bowel movements.

My pain is normally lower than my stomach and to the right(my right) and normally the pain is in the morning, at night and sometimes in the afternoon after I eat. Its not right away, when I get the pain its normaly an hour sometimes more.

The nausea is almost always right before the pain. A few months ago the docter had prescribed something to help with the nausea. It helped a lot with controling the feeling to puke when ever i felt sick

Since I have had this for so long I Really believe that I'm getting used to the pain and nausea. I'm a really tuff cookie so when I'm in my bed with pain its really bad. All I want is for this thing to get better T.T it really is wearing me down.

Oh! and I have had blood tests done but they were from the first few months of this whole ordeal. Idk if my bloods still is the same XD

 
Old 01-12-2011, 11:26 AM   #9
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Re: First signs and symptoms of crohn's

Hi, I have had crohns for 5 years, my personal experiance of it was really bad, blood out of my back passage, vomiting, loss of apatite, weight loss, no energy. and constantly on the toilet. it came out of nowhere, and it was my second pregnancy that seemed to trigger it off, they tried to treat mine accordingly, but I have had an illiostomy now, as it was ruling my life, I am still classed as a crohns patient but am a very healthy one, but they claim there are treatments that can put you in to remission, and I have seen loads of people go in to remission, I had a treatment called infliximab (not sure if i have spelt that right) that is a very good one i used it for a while.

They say most crohns sufferers have to have surgical treatment in the first ten years, and I have found it the most effective form,

The nhs website is a wealth of information,

 
Old 01-15-2011, 09:01 AM   #10
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Re: First signs and symptoms of crohn's

Quote:
Originally Posted by sooty234 View Post
Hi, I have had crohns for 5 years, my personal experiance of it was really bad, blood out of my back passage, vomiting, loss of apatite, weight loss, no energy. and constantly on the toilet. it came out of nowhere, and it was my second pregnancy that seemed to trigger it off, they tried to treat mine accordingly, but I have had an illiostomy now, as it was ruling my life, I am still classed as a crohns patient but am a very healthy one, but they claim there are treatments that can put you in to remission, and I have seen loads of people go in to remission, I had a treatment called infliximab (not sure if i have spelt that right) that is a very good one i used it for a while.

They say most crohns sufferers have to have surgical treatment in the first ten years, and I have found it the most effective form,

The nhs website is a wealth of information,
Would you say that your crohns is normal or mild ect.? I have read up a lot about crohns and the info that I get is very generic . If I did have crohns would it get worse over time? I'm concered that if I do have crohns that my symptoms will get worse. Since I have had these symptoms for so long I know them like the back of my hand, and I am very concerend because they are starting to change. Did your symptoms change after awhile or did they stay the same? I'm only 15 and I am . I just need some answers to reassure me that what I have is not some very serious.

 
Old 01-17-2011, 01:47 PM   #11
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Re: First signs and symptoms of crohn's

hi, yes the signs and symptoms did change, usually when it was getting better or worse, i found it very important to tell my GP when this was happening so they could react accordangly, I would say mine was very aggressive.

anyone with crohns will have 'flare up's' a period of time where it is really bad that is normal, but it is treatable you just need to find the right medication, have you seen a doctor for tests yet?

 
Old 01-17-2011, 02:01 PM   #12
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Re: First signs and symptoms of crohn's

Quote:
Originally Posted by sooty234 View Post
hi, yes the signs and symptoms did change, usually when it was getting better or worse, i found it very important to tell my GP when this was happening so they could react accordangly, I would say mine was very aggressive.

anyone with crohns will have 'flare up's' a period of time where it is really bad that is normal, but it is treatable you just need to find the right medication, have you seen a doctor for tests yet?
I have a GI that I've been seeing, and we have ran tests. I have not had a colonoscopy yet. And from what other people have told me thats the main test that helped them get diagnosed. I had my blood and stool test at the very beginning. I think my stool has changed since then. And I think I have flare ups. I feel like crap a lot, which is normal, but I Have really bad episodes periodically. They are really bad, all of my symptoms hit at once, its very scary. I am sometimes scared to go to the bathroom!

 
Old 01-17-2011, 04:29 PM   #13
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Re: First signs and symptoms of crohn's

the only real way i know of to tell is that test., was not my fave bit but it ment that they could treat me., have they told you anything yet? You sound like all you have is information of the internet and some sketchy maybe's off the medical staff.?

 
Old 01-17-2011, 05:19 PM   #14
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Re: First signs and symptoms of crohn's

Quote:
Originally Posted by sooty234 View Post
the only real way i know of to tell is that test., was not my fave bit but it ment that they could treat me., have they told you anything yet? You sound like all you have is information of the internet and some sketchy maybe's off the medical staff.?
My GI doctor diagnosed me with IBS then Functional Dyspepsia. He said that if I don't see any change, and my bowels keep acting the way they are, he will do the test and check for Crohn's. I really don't want to have to get to that point, but I'm so tired of nothing working. I feel like my meds are really not doing anything. The only change that I see in me is that I'm getting use to my symptoms Right now, sitting at my computed in pain and horrible nausea, and really wish it would stop.

 
Old 01-17-2011, 09:27 PM   #15
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Re: First signs and symptoms of crohn's

I would say its time to have a scope done and find out for sure what you have..Are you seeing a gastrologist? They can also do a blood test called a prometheus blood test that can show markers in your blood that help determine if its crohn's ask about that. I have had crohn's for over 40 years..3 bowel resections. so far..

 
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