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Old 01-19-2011, 06:40 PM   #1
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Diet Help?

I had my colon removed two years ago. To this day I still struggle with what to eat. Someone recommended a gluten free diet. I faithfully removed all gluten from my diet for three months and made myself so sick I am not sure what to do. Since the surgery I have always had very liquid like stools but since the gluten diet it is mostly blood. I have since found that my small intestine needed that gluten lining. In the last two weeks in the evenings I have severe stomach cramps and a very bloated stomach. I have been sick for so long I can't even remember what it feels like to be healthy? Can anyone give me some diet advice?

 
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Old 01-19-2011, 10:55 PM   #2
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Re: Diet Help?

What exactly did you have that your colon was removed?

Do you have a permanent ileostomy, a J-pouch or K-pouch?

There's no reason to remove gluten from one's diet unless one has a gluten intolerence.

What type of foods are you eating at this point...maybe a general list of foods for a few days?

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Old 01-19-2011, 11:32 PM   #3
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Re: Diet Help?

I had Ulcerative Colitis for two years and tried every medication to no avail. I had an ileostomy - I believe the J pouch - then the reversal after two months. I started with just pasta cheese bread and applesauce. After a few months I was told I could eat pretty much anything. I don't eat any raw veggies but do eat alot of fruit. I have cut down my meal sizes so I eat a small amount every four hours or so. I think I eat quite healthy and the only food I have found that truly doesn't agree with me are cooked red and green peppers and broccoli. For months I kept a food journal but couldn't really put my finger on any real triggers other then the above mentioned items. I eat at least one banana every day. I have been told to eat dairy and to also avoid it. There seems to be so much conflicting information out there I am just kind of lost!

Have you had your colon removed? If so how long has it been and do you feel like there is light at the end of the tunnel so to speak? Thanks in advance for your input - I really appreciate the advice!

 
Old 01-20-2011, 12:21 PM   #4
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Re: Diet Help?

Hi..no, I haven't had my colon out. I have UC, rectosigmoiditis. I control it with 5 ASA meds, oral and rectal for the past 22 years.

The point that you mention blood is disconderting because to me it means you have tissue that's inflamed and bleeding. I believe that with J-pouch, you would still have some of the rectum...could it be that maybe you have inflammation there still?

Have you added any probiotics or fibre supplements to bulk things up?

When was the last time you saw the surgeon/GI? You might have to see a GI who specialises in patients with j-pouch, etc.

You definitely need the doc to take a look-see soon. It's possible that you may have not had UC but in fact CD...and maybe part of your small intestine is involved?

Definitely do LOTS of research and ask the doc lots of questions as to what to do to help you.

I know of others who are taking imodium to help with their bms...but don't exactly know the reason why...so it's not a suggestion, it's just one question you can ask the doc to help.

I can do some research and see If I can find some info for you.

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Old 01-20-2011, 04:27 PM   #5
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Re: Diet Help?

Thanks for your input. I have an appointment with my general prac. doc tomorrow and it is very hard to get into see the GI doctor but will start there! I will mention the imodium also as I did read that somewhere this week as well! My list of questions is getting quite long... my doctor will surely earn the co pay tomorrow Thanks again!

 
Old 01-21-2011, 12:44 AM   #6
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Re: Diet Help?

Hi...you're welcome.
it's always good to have a list of questions however long....(doctor groans..lol).

Regarding your GI...maybe set up appointments every 6 months or so...just to keep an ongoing. That way, if anything comes up, you could probably be squeezed in.

I'm happy to hear you're going to the GP at least...post how your appointment went.

Oh....ask the doc to do a check for your B12, D, iron...considering you have no colon and are having diarrhea.

I wonder if fibre supplements such as metamucil is something you could use to bulk the stool a bit. something to research.

Looking forward to your update.
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Last edited by quincy; 01-21-2011 at 12:46 AM.

 
Old 01-21-2011, 05:59 PM   #7
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Re: Diet Help?

I think the doctor thought I was crazy... It was my first visit with the new insurance and new doctor. But all in all I think it went well. I had blood work done but will not have the results until Monday. She gave me a referral to the GI doc and was concerned about the blood issue and mentioned that I may have Colitis in my rectum since that is all I have left but didn't want to speculate. In the meantime I am going to go back to the post surgery diet to see if that makes any difference in my stool and since I had to fast the day away it's a perfect time to start. At least now things are moving forward... Thanks again for the support - nice to have someone in my crazy corner!

 
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