I'm just writing to get some advice from those who know first hand and have experience with colitis.
On Jan. 24 my daughter had a colonoscopy to find out that she had a severe colitis infection in a portion of her colon. The surgeon thought it was probably not ulcerative and hoped with the use of Asacol that it would clear up and not be a problem for her anymore. She seemed fine for about 3 weeks afterward, taking the Asacol then a sudden flare-up that is causing her alot of abdominal pain, bloody diarrhea, nausea, hot flashed, muscle and headaches. I took her to Emergency, they said it was normal to have flare-ups even while on medication. Thats it, no advice, no alternatives given!
So, since then, she's been home from school almost a week. We've changed her diet, removed Dairy completely, she's taking probiotics and vitamins, drinking green and peppermint tea for nausea......We've tried it all and she has moments where it seems to be improving but then it goes bad in a hurry again.
Anything I've read tells me its normal and could last a couple days to a couple weeks. She's only 14 and I hate to watch her suffer, she's normally so outgoing but has no ambition for anything right now.
Can anyone give me any insight, advice, anything that might help at all would be greatly appreciated. Just trying to understand and know what to expect and when to worry.
Thanks in advance!