I'm just writing to get some advice from those who know first hand and have experience with colitis.
On Jan. 24 my daughter had a colonoscopy to find out that she had a severe colitis infection in a portion of her colon. The surgeon thought it was probably not ulcerative and hoped with the use of Asacol that it would clear up and not be a problem for her anymore. She seemed fine for about 3 weeks afterward, taking the Asacol then a sudden flare-up that is causing her alot of abdominal pain, bloody diarrhea, nausea, hot flashed, muscle and headaches. I took her to Emergency, they said it was normal to have flare-ups even while on medication. Thats it, no advice, no alternatives given!
So, since then, she's been home from school almost a week. We've changed her diet, removed Dairy completely, she's taking probiotics and vitamins, drinking green and peppermint tea for nausea......We've tried it all and she has moments where it seems to be improving but then it goes bad in a hurry again.
Anything I've read tells me its normal and could last a couple days to a couple weeks. She's only 14 and I hate to watch her suffer, she's normally so outgoing but has no ambition for anything right now.
Can anyone give me any insight, advice, anything that might help at all would be greatly appreciated. Just trying to understand and know what to expect and when to worry. Thanks in advance!
No I didn't get a copy but have seen the results and pictures several times. The surgeon was the one who diagnosed it as a colitis infection, said he thought it would clear up but to come see him in a month. She is taking 800 mg 3 times a day (prescribed by the surgeon). I was just told to increase it to 2 pills twice a day. I wasn't expecting a flare-up as it was never explained. She has been referred to a gastro-intestinal specialist but could be several months before she can see her. Thanks.
Hi...colitis infection would mean from something....did the doc say specifically what the infection was? I'm surprised that he didn't give your daughter any antibiotics...unless her infection was caused by previously using antibiotics?
I suggest you call the surgeon's office and request to go pick up a copy of the biopsy report and do the research long before you see the gastroenterologist. That way you'll be ready with a list of questions that we/I can help you with.
At this point....what's your daughter's diet like? Is she consuming foods that may cause more activity in her digestive tract that will cause more discomfort or more loose stool..etc.
You should consider for her to use fibre supplements to help bulk the stool...I use metamucil capsules, which I take after eating. I started with one capsule a day for a week..then added. I can explain that further if you're interested.
As well...I strongly suggest a good probiotic. If your daughter indeed did have an infection from a bacterial imbalance or from a virus, her intestinal flora should be encouraged into a better balance. I use Renew Life Ultimate Flora Critical Care...one a night before bedtime. But for your daughter, there is one that's a bit higher dosage..I can find the name if you're interested.
I'm pleased your daughter will be sent to a GI doc....I do hope she doesn't have UC or CD....but sometimes triggers such as infection can set it into motion.
The Asacol will help deal with the inflammation.
Last question...what areas of her colon are affected?
It's all a matter of perspective!
Thanks, we have taken some things out of her diet or cut right back on things that have always caused some bloating and gas such as cheese. I've also taken her off of the Asacol and it's replacement Salofalk the anti-inflammatories that caused severe side effects. She takes acidophollus, yogurt and a product named Intestinew from the Health Hut. Her symptoms are under control but not in remission. She can now cope and is not in any pain. Eventually we are hoping that with continuted natural treatments and healthier diet she will go into remission or be rid of it perminantely assuming it's only Infectious Colitis instead of Ulcerative.
Sorry it happend to her at 14. It happened to me (I'm 24) this past spring. Mine is mild but I do get flare ups once in a while, I take 3 asacols a day. I figured I mostly have to stay away from fried foods. Even if I have some chicken nuggets from mcdonalds I think that gives me gas and a small flare up.
Make sure she stays away from greasy foods.