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Crohn's Disease / Ulcerative Colitis Message Board
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Old 04-04-2011, 09:51 PM   #1
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loisgriffin HB User
Please help, scared and confused!!!!!

Hello,

I am new to the IBD Board, but several years ago used to frequent the IBS Board under Desertflower1993. I am so confused and scared right now,i don't know how to get this out. I had a scope in 2006 due to alot of symptoms and blood. The GI Doc found 2 precancerous polyps,Diverticulosis,Redundancy of Colon and some Internal Hemorrhoids. I was to come back in 3 years for repeat scope, which I didn't. I was 35 at the time. I did go back due to symptoms worsening, changing etc, but he blew me off and said live with it your IBS is worsening, here's some more Bentyl..... It had gotten to the point that I didn't want to eat because i became afraid of a "flare". When I had one, which my symptoms would range from IBS-A, gas, cramps, pain and very tender to the touch whole abdomen. I would stop eating for 2 or 3 days and it would get better. For the last 2 years, I can count on one hand any blood I have had. Which was good. FAST FORWARD 2 WEEKS AGO. I have to say that i'm in a new state, in a small town, so the last GI is history. Anyhoo, I wake up at around 2:30 in the morning, hurting, run to the bathroom and have what I call diapation(where you have slow diarrhea and are begging for more to come out). I sat there for 3 hours in severe pain, cold sweat, trying not to pass out and then get up, try to get to my bed, never make it there because the feeling of still having to go is unbelievable. I run back and behold here comes the blood. 8 bloody bouts. I feel horrible, get to a doc who puts me in the hospital. and i'm running 100.9 fever. CT scan shows Circumferential Wall thickening of the Sigmoid, Descending and Distal Transverse Colon with Moderate pericolonic stranding consistent with Colitis. They start IV'ing me with Flagyl and Cipro the next day. In the mean time my blood counts are dropping etc... I managed to get out after 5 days, still on Cipro and have a scope and an upper endoscopy scheduled. I have never had anything like this bout, with the fever, blood counts etc.. MY QUESTION IS THIS. The doc is a General Surgeon, He says UC does not cause wall thickening, but I keep reading that it does. He says Crohns is a better fit, but it is not on the right side of my colon. The Primary care doc is saying Colitis and the scan showed Colitis. I am scared it's cancer, they both say no. I am confused and terrified. Please, what do you guys think??????????? HELP ME! I am doing much better now with all the IV antibiotics and the Cipro they sent home with me. Just tired. On the last day I was there, my blood counts started to come up a little and they did test my stools-negative and test for C-Diff-negative. I don't know what to think. Thank you for reading.

 
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Old 04-05-2011, 11:21 AM   #2
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quincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB User
Re: Please help, scared and confused!!!!!

Hi...colitis is a general term for colon inflammation. Ulcerative colitis isn't usually diagnosed via CT scan. Wall thickening would be mild in UC, but definitely more prominent in CD. CD can happen anywhere in the digestive tract from mouth to anus...so the fact that it's not on the right side would have no bearing on that possible diagnisis.

The pericolic stranding leans towards a few things from my research.

If your rectum isn't involved it seems CD is more the camp you'd be in.

When you were checked for c.diff...did you have only one test? Were you on the antibiotics previous to the test?

You have a LOT going on in your colon...you need a good GI who can give you answers. You also need to make sure that the GI takes TONS of biopsies of your colon and removes any polyps for sure.

Do you have any colon cancer in your family?

I would be as scared and confused as you are. I believe that the research you're doing is important, albeit causing more frightening possibilities. Arm yourself with appropriate questions and try to keep it all in perspective as to the fact that you are now in the process of having the testing done with the specialist.

If you don't like the answers finding another GI might be in order.

Do the research to find a good GI, research the one you're going to. When you go...be wise and efficient in asking your questions to get the answers you need that are definitive.

Please keep us posted for sure!
quincy
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