As you can see by my name I'm a bit of a worrier and always seem to think the worst. I have been poorly now for 5 years Ive had pain and diahoria whenever i eat, Ive always been told that on paper Its crohn's disease I was stuck with the same nasty consultant for ages untill i decided id had enough and moved hospitals, Ive been having blood tests for a while and the inflammation markers have been up so they decided I needed another colonscopy, I had one 4 years ago but it came back normal. I had this one yesterday most of it was fine until i got alot of pain in the ileum they took about 7 biopsies and said it was unusual didnt look like "typical crohns" but it maybe a type of crohns they hadnt seen before they also said in my report under diagnosis "ileitis"they said under advice colon looks entirely happy. Intubation of the ileum caused lots of pain, the procedure up to that point had been tolerated very well. Appearences were unusual not typical IBD there was marked lymphoid hyperplasia with and almost nodular appearance I have said that these will be reviewed in the first instance before any further tests eg capsule or mri of the small bowel. Now am so worried, she didnt even mention cancer but thinking of an mri makes me think of cancer am only 24, I tried to go to my gp to ask but she didnt really say much she said it doesnt suggest that but Im just worried sick I couldnt sleep all night last night cant imagine 2-6 week wait for results any ideas anyone? sorry its so long I just needed to put all the details in.
Would they say if they thought it was would they know if it looked like it, she said it was like nothing she had seen before and I was a medical mystery she also said there was inflammation>