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Crohn's Disease / Ulcerative Colitis Message Board
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Old 11-10-2011, 11:16 PM   #1
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Join Date: Nov 2011
Location: USA
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Springroll HB User
Crohns or something else?

Hi, I am new to the boards here. I've been having some issues and saw this and thought hey maybe they have advice or help for me?
Sooo here is my deal. For the last two months i've been pretty sick. It started with a bad, painful outbreak of canker sores in my mouth. They hurt very bad and made eating impossible. Around the same time I started feeling down, tired if you will. The sores went away but the feeling of exhaustion did not.
A month later the sores came back but worse. I was incorrectly diagnosed by a dr. for herpes. This alone was a hard diagnosis which left me upset only to find out it was false. At this point my exhaustion was severe. I slept all the time, didn't wanna get out of bed, and couldn't do things that used to make me happy. Added to this my spine hurt, my lower back in particular, my hands started to ache and I couldn't grip as well as I used to. I figured it was like mono or something but it wasn't.
On top of this was my bowel movements. I guess since they have been like this for so long (maybe like 5 months?) they were not something i mentioned to doctors when i went in. But basically I had diarrhea a lot. Some days I wouldn't have a bowel movement and would get so bloated it would hurt. then the next I would go like 8 times at least. Also i started to notice that my stool was white... and i referred to them to my parents as "mummified". weird description i know. but basically, it is mucus I think. Now there is blood in my stool and I just had an anal fissure.
My pain has gotton worse, my bowel movements are more of an issue than they were before. My doctor blood tested me and said I am perfectly normal. The IBD tests arn't coming in for a while but she wants be to see a GI and get a colonoscopy. I think i should also mention that my grandfather died of colon cancer, my cousin has crohns, and my dad's cousin has crohns as well. I also have had issues with kidney stones in the past and I am 22 years old.
My issue is that I am not so well off right now. My parents are helping me pay current hospital bills from my kidneys. I don't want to get tests that might not be needed and have to pay for them. Do you think i should go for the tests for crohns or IDB? or should i hold off and wait? Is it more likely that it is something else? I am very confused and scared right now. any advice or help is great.
sorry this is so long!

 
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Old 01-21-2012, 04:51 PM   #2
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Join Date: Jan 2012
Location: England
Posts: 10
mattjuk81 HB User
Re: Crohns or something else?

Quote:
Originally Posted by Springroll View Post
Hi, I am new to the boards here. I've been having some issues and saw this and thought hey maybe they have advice or help for me?
Sooo here is my deal. For the last two months i've been pretty sick. It started with a bad, painful outbreak of canker sores in my mouth. They hurt very bad and made eating impossible. Around the same time I started feeling down, tired if you will. The sores went away but the feeling of exhaustion did not.
A month later the sores came back but worse. I was incorrectly diagnosed by a dr. for herpes. This alone was a hard diagnosis which left me upset only to find out it was false. At this point my exhaustion was severe. I slept all the time, didn't wanna get out of bed, and couldn't do things that used to make me happy. Added to this my spine hurt, my lower back in particular, my hands started to ache and I couldn't grip as well as I used to. I figured it was like mono or something but it wasn't.
On top of this was my bowel movements. I guess since they have been like this for so long (maybe like 5 months?) they were not something i mentioned to doctors when i went in. But basically I had diarrhea a lot. Some days I wouldn't have a bowel movement and would get so bloated it would hurt. then the next I would go like 8 times at least. Also i started to notice that my stool was white... and i referred to them to my parents as "mummified". weird description i know. but basically, it is mucus I think. Now there is blood in my stool and I just had an anal fissure.
My pain has gotton worse, my bowel movements are more of an issue than they were before. My doctor blood tested me and said I am perfectly normal. The IBD tests arn't coming in for a while but she wants be to see a GI and get a colonoscopy. I think i should also mention that my grandfather died of colon cancer, my cousin has crohns, and my dad's cousin has crohns as well. I also have had issues with kidney stones in the past and I am 22 years old.
My issue is that I am not so well off right now. My parents are helping me pay current hospital bills from my kidneys. I don't want to get tests that might not be needed and have to pay for them. Do you think i should go for the tests for crohns or IDB? or should i hold off and wait? Is it more likely that it is something else? I am very confused and scared right now. any advice or help is great.
sorry this is so long!
Hi, I have crohn's and this is how mine started, I first noticed a prolapse near my anus and thought nothing much of it as it caused no pain, look that up if you don't know what I mean, I had trouble with bowel movements due to a fistula which caused great pain, I had blood on my stools but I think this was blood from the open fisulta, I then started to get extreme abdominal pain in the lower right, worse in the mornings, but would come in waves of pain, and make me feel sick, I was sick many times, and constant diarrhea, I had a colonoscopy and it showed ulcers along the assending colon and terminal ilium, I also had barium xrays to show the small bowel.

I would say if you have constant diarrhea and pain in one area, then that is not normal and you really need to get a colonoscopy to rule anything bad out, It may just be IBD and hemorrhoids, but probably best to get checked, I am not sure I agree with the all of the USA medical system, it's not like the UK and our NHS, even if you work or not all treatment is free, but I think here in the UK it can sometimes take longer to be referred to a specialist than in the USA, unless I was to pay and go private.

 
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