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Old 04-23-2012, 03:17 AM   #1
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pollylolly HB User
Crohns Diagnosis

After over a year off and on of suffering severe stomach pain, major abdominal bloating after eating, diarrhea alternating with severe constipation, nausea, weight loss and lack of appetite (and 5 hospital visits!), my doctor now suspects I may have Crohn's disease. I still need to go to a specialist for testing, but I'm the symptoms certainly add up. I'll be relived to finally have an answer for my symptoms (which have already caused significant disrruption to my life, particularly at work!).

Anyway, I know I haven't got a diagnosis yet so I don't want to work myself up over nothing, but I'm still dreadfully upset. I LIVE for my career and already my illness has got in the way of that - I'm constantly unwell, have taken a lot of sick leave, and when I AM at work, I'm often too ill to REALLY be there but will go just so I don't have to take even more time off work! I just want to cry when I hear about those who can't work because of their illness. I'm only 22 and I should have my whole life ahead of me. Instead, I feel like a big part of my chance to full live and excel and enjoy life is about to be snatched away from me. I don't mean to whine, but it's not fair! I'm so upset. I've tried so hard to be healthy and make the right choices in life. =(

 
Old 04-23-2012, 10:07 AM   #2
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SickinNJ HB UserSickinNJ HB User
Re: Crohns Diagnosis

Don't Panic! First go to more than one specialist, what I mean is get your diagnoses and then get a second opinion. what your going through can be many things, from a bad infection to Colitis to Chron's....so don't over think it until you know. Second, your 22 so your career has just started, and many of us take turns down the windy road that are our career choices.

I am 36 and was diagnosed with sever colitis in November 2011 and have been depressed ever since. I have been experiencing symptoms that fit and some that don't fit colitis, some are just not there (like blood in my stool or constant D- never happened) but this is what the biopsy come back with. I am on meds and have been in the position where I show up to work and just watch the clock....it sucks, but that is not always going to be that way. As time has gone on I have had more good days than bad days, and it will continue that way.

The only reason why I said get 2 opinions was because my first GI who has me on the current meds said what i feel is just healing, a second GI (A very accredited one) suggested just this morning that he wants to do a second c-scop. he does not believe that i have colitis....for multiple reasons. So the point is, you cant get yourself down and out about things you may have.....but why! Get it checked out and get it treated the right way.

It seems like your a strong person, i am sure you will be able to continue your career even if you have to make adjustments...Good Luck!

 
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Old 04-23-2012, 10:38 AM   #3
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SickinNJ HB UserSickinNJ HB User
Re: Crohns Diagnosis

Don't Panic! First go to more than one specialist, what I mean is get your diagnoses and then get a second opinion. what your going through can be many things, from a bad infection to Colitis to Chron's....so don't over think it until you know. Second, your 22 so your career has just started, and many of us take turns down the windy road that are our career choices.

I am 36 and was diagnosed with sever colitis in November 2011 and have been depressed ever since. I have been experiencing symptoms that fit and some that don't fit colitis, some are just not there (like blood in my stool or constant D- never happened) but this is what the biopsy come back with. I am on meds and have been in the position where I show up to work and just watch the clock....it sucks, but that is not always going to be that way. As time has gone on I have had more good days than bad days, and it will continue that way.

The only reason why I said get 2 opinions was because my first GI who has me on the current meds said what i feel is just healing, a second GI (A very accredited one) suggested just this morning that he wants to do a second c-scop. he does not believe that i have colitis....for multiple reasons. So the point is, you cant get yourself down and out about things you may have.....but why! Get it checked out and get it treated the right way.

It seems like your a strong person, i am sure you will be able to continue your career even if you have to make adjustments...Good Luck!

 
Old 05-06-2012, 04:08 AM   #4
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Join Date: May 2012
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santapaws HB User
Re: Crohns Diagnosis

Your distress tugged at my heart as I was your age when I was diagnosed. 50 years later and Crohns is still with me. Learn early that you have the power to take control over your own health and it starts with an attitude that in spite of this disease, YOU will control your life. So many people let the disease control and rule and miss the best that is still available to them. Know that you will have good and bad days and make the most of the good. Find a great GI doc, one you can relate to and learn all you can. The treatment is much better now than back in the day. See if HUMIRA is available to you. Sign up for Social Security Disabality and never give up. Everybody has something to deal with and this is managable once you get the hang of it. I have raised a family and traveled the world, lived the best of life and still have problems that slow me down, but with this illness know that it's just for a period of time and than you will have a long stretch of feeling great. Make the most of good days, pack in all you can and never waste a second of life. I wish your fortitude and remission, you're going to need it!

 
Old 05-24-2012, 03:57 PM   #5
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Join Date: May 2012
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shermel2 HB User
Re: Crohns Diagnosis

So sorry to hear about your distress. Remember that only a physician can give you a definitive answer so try not to work yourself up (easier said than done, I know).

I was diagnosed with Crohn's disease at age 26 so I understand your concern about being young and having your whole life ahead of you. One test that you will probably undergo is a colonoscopy. Just a heads up the procedure itself is a breeze, it's the prep that is unpleasant.

In the end if you are diagnosed with Crohn's there are many options for medication. You and your doctor can discuss your symptoms and decide which medications work for you and your lifestyle. Some are oral medications and some are IV meds, either way they may help with your symptoms and allow you to continue working and living a "semi" normal life.

Hope you get some answers soon! Take care.

 
Old 05-26-2012, 05:05 PM   #6
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AnnaEmily HB User
Re: Crohns Diagnosis

I have no answers for you but I just wanted to say that I know how you feel because I'm in the exact same situation with just starting my career, being 23 and having to deal with symptoms like this. It's extremely frustrating because if you have a good week then you think that maybe it was just some illness and you've gotten over it, and then it acts up again. And it's really hard to talk to people about because I don't want them to worry about me or think that it's going to affect my work, like you were saying, and it can be just plain embarrassing. Personally I'm trying not to obsess over it, just go easy and try not to worry while dealing with it or figuring it out. Good luck anyway!

 
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